Technology Enhanced Self-Management Interventions for Fatigue and Pain: The Symptoms Self Management Center

技术增强疲劳和疼痛的自我管理干预措施：症状自我管理中心

• 批准号: 10115249
• 负责人: Teresa J Kelechi
• 金额: $ 20.01万
• 依托单位: MEDICAL UNIVERSITY OF SOUTH CAROLINA
• 依托单位国家: 美国
• 财政年份: 2016
• 资助国家: 美国
• 起止时间: 2016-07-27 至 2022-04-30
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/10115249
• 关键词: Address; Adherence; Administrative Supplement; Adopted; Adult; Affect; Age-Years; Aging; Agreement; Alzheimer' s Disease; Alzheimer' s disease care; Alzheimer' s disease caregiver; Alzheimer' s disease related dementia; Anxiety; Award; Biological Assay; Biological Markers; Breathing; Caregiver Burden; Caregivers; Caring; Cellular Phone; Chronic; Clinical Trials; Communities; Consultations; Data; Dementia; Dementia caregivers; Discipline of Nursing; Elderly; Enhancement Technology; Ensure; Faculty; Family Caregiver; Fatigue; Feedback; Female; Focus Groups; Frequencies; Funding; Future; Goals; Health; Health Care Costs; Health Insurance Portability and Accountability Act; Health Personnel; Health Technology; Home environment; Hydrocortisone; Impairment; Individual; Infrastructure; Institution; Intervention; Intervention Studies; Interview; Investigation; Leadership; Life; Loneliness; Measures; Medical; Mental Depression; Methods; Mood Disorders; Nutritional; Outcome; Parents; Persons; Physical Function; Physical activity; Pilot Projects; Population; Positioning Attribute; Principal Investigator; Quality of life; Questionnaires; Request for Proposals; Research; Resources; Salivary; Self Care; Self Efficacy; Self Management; Sleep disturbances; Social isolation; South Carolina; Stress; Surveys; Sustainable Development; Symptoms; Tablets; Telephone; Testing; Training; Training Programs; Training and Infrastructure; Universities; Work; Yoga; associated symptom; base; care recipients; caregiving; college; comorbidity; dementia care; density; design; diaries; digital; dosage; eHealth; efficacy testing; efficacy trial; experience; follow-up; improved; intervention effect; mHealth; male; mood symptom; neuropsychiatric symptom; pain symptom; physical inactivity; post intervention; programs; psychosocial; ranpirnase; recruit; reduce symptoms; respite care; satisfaction; social; stress management; stress symptom; study population; symptom self management; training opportunity

PROJECT SUMMARY/ABSTRACT The goal of this study within the supplement is to test the feasibility of a self-managed (SM), electronic/mobile Health (e/mHealth) yoga intervention for reducing stress symptoms (burden) in older caregivers (CG) of people with Alzheimer’s Disease and related dementia’s (PWD). CG burden can exacerbate a myriad of physical and psychosocial comorbidities in CGs as well as PWD neuropsychiatric symptoms. These effects may be further amplified in older CG with underlying health concerns or those who are not able to access programs for effective management of their own medical or self-care needs. Low-impact physical activities such as gentle Yoga (GY) have shown positive effects on mood and symptoms of pain and fatigue in older community dwellers, and digital e/mHealth platforms have a great deal of potential to overcome financial and medical barriers for the delivery SM stress interventions across demographic boundaries. In this study, we will examine the feasibility of a 12-week e/mHealth gentle yoga+yogic breathing (GYYB) intervention for alleviating symptoms of burden in aging CG of PWD (Aim 1); measure initial changes in stress and QoL indicators in CG and PWD (post- vs. pre-intervention) to inform an adequately-powered, future efficacy trial (Aim 2), and; establish a Dyadic Analysis Training Program for MUSC faculty within the College of Nursing and P20 Symptom Self-Management Center (SSMC) to support future research evaluating the influence of care- recipient interactions on health outcomes (Aim 3). Feasibility will be assessed using the RE-AIM framework, and will include measures such as recruitment, adherence, treatment satisfaction, attrition, and feedback for intervention refinement. Data related to CG physical function, fatigue, depression, social isolation, loneliness, relationship quality, burden, and stress biomarkers, as well as PWD and CG QoL, will be collected via daily electronic practice logs and interviews at study beginning and end. Older (> 55 yrs. old) male and female CG (N=20) of PWD regularly attending respite care (RCC) programs will be recruited from an existing study population (R01 NR016466) participating in CG-RCC mealtime partnerships for improved PWD nutritional outcomes. The HIPAA-compliant GYYB intervention will employ ‘tablets’ that allow CG to practice GYYB at home by following along with recorded lessons. CG will initially be trained on the use of the tablet and proper GYYB practices by the study coordinator (in-home), with weekly follow up (Skype/phone) for the duration of the study. This investigation is ideally aligned with the aims of the parent SSMC (P20 NR016575) that are focused on providing infrastructure and community-based resources for design and ecologically-valid testing of SM interventions for individuals with chronic conditions.

项目摘要/摘要 该研究中这项研究的目的是测试自我管理（SM），电子/移动的可行性 健康（E/MHealth）瑜伽干预减轻了老年护理人员（CG）的压力症状（负担） 患有阿尔茨海默氏病和相关痴呆症（PWD）。 CG Burnen会加剧无数的身体和 CGS以及PWD神经精神症状的社会心理合并症。这些影响可能会进一步 在较老的CG中放大了基本的健康问题或无法访问计划的人 有效管理自己的医疗或自我保健需求。低影响的体育活动，例如温柔 瑜伽（GY）对年龄较大的社区的情绪和疼痛和疲劳症状显示出积极影响 居民和数字E/MHealth平台具有克服金融和医疗的巨大潜力 交付SM应力干预的障碍，跨人口统计界限。在这项研究中，我们将检查 12周的E/MHealth温柔瑜伽+瑜伽呼吸（GYYB）干预的可行性以减轻 PWD老化CG燃烧的症状（AIM 1）；测量CG中应力和QOL指标的初始变化 和PWD（后与干预前），以告知足够的未来效率试验（AIM 2），并且； 在护理学院和P20中为MUSC教师建立二元分析培训计划 症状自我管理中心（SSMC）支持未来的研究，以评估护理的影响 接受健康结果的接收者互动（AIM 3）。可行性将使用RE-AIM框架进行评估， 并将包括招聘，遵守，治疗满意度，流失和反馈等措施 干预精致。与CG身体功能，疲劳，抑郁，社会隔离，孤独感有关的数据 关系质量，伯恩和压力生物标志物以及PWD和CG QOL将通过每日收集 电子实践日志和访谈的开始和结束。年龄较大（> 55岁）男性和女性CG （n = 20）定期参加暂托护理（RCC）计划将从现有研究中招募 人口（R01 NR016466）参加CG-RCC进餐时间合作伙伴关系，以改善PWD营养 结果。符合HIPAA的GYB干预将采用“平板电脑”，使CG能够在 通过跟随录制的课程来回家。 CG最初将接受使用平板电脑和适当的培训 研究协调员（家庭）的GYYB练习，每周随访（Skype/Phone）在此期间 学习。这项投资理想地与专注的父母SSMC（P20 NR016575）的目标保持一致 在提供基础架构和基于社区的资源，用于SM的设计和生态播放测试 对患有慢性疾病的人进行干预措施。

项目成果

Addressing Physical, Functional, and Physiological Outcomes in Older Adults using an Integrated mHealth Intervention "Active for Life": A Pilot Randomized Controlled Trial.

使用“Active for Life”综合移动医疗干预措施解决老年人的身体、功能和生理结果：一项试点随机对照试验。

• DOI: 10.29011/2688-9501.101285
• 发表时间: 2022
• 期刊: International journal of nursing and health care research
• 作者: Kelechi,TeresaJ;Hernandez-Tejada,MelbaA;Balasubramanian,Sundaravadivel;Bian,John;Madisetti,Moby;Nagel,Alexis
• 通讯作者: Nagel,Alexis

Feasibility of RESP-FIT: Technology-Enhanced Self-Management Intervention for Adults with COPD.

• DOI: 10.2147/copd.s326675
• 发表时间: 2021
• 期刊: International journal of chronic obstructive pulmonary disease
• 影响因子: 2.8
• 作者: Miller S;Teufel R 2nd;Nichols M;Davenport P;Mueller M;Silverman E;Madisetti M;Pittman M;Kelechi T;Strange C
• 通讯作者: Strange C