University of Michigan Training Program in ELSI Research

密歇根大学 ELSI 研究培训计划

• 批准号: 10397043
• 负责人: Scott ROBERTS
• 金额: $ 12.19万
• 依托单位: UNIVERSITY OF MICHIGAN AT ANN ARBOR
• 依托单位国家: 美国
• 财政年份: 2018
• 资助国家: 美国
• 起止时间: 2018-05-07 至 2023-08-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/10397043
• 关键词: Michigan; Research; Training Programs; Universities; ethical legal social implication

ABSTRACT Genetics and genomics research are rapidly generating scientific discoveries, technological advances, and clinical applications, each with important implications for medicine and public health. In order for the promise of the “genomics revolution” to be achieved, however, numerous ethical, legal and social implications (ELSI) will need to be proactively addressed. Since 1990, the National Human Genome Research Institute (NHGRI) has funded an ELSI Research Program focused on areas including ethical dilemmas in genomics research, integration of genetic testing in healthcare settings, and legal, regulatory and public policy challenges. The ELSI Program's recent inclusion in the broader NIH Institutional Training Grants Program (T32) signals a recognition of the need to train the next generation of ELSI researchers to face the growing challenges and opportunities posed by advances in genomics research. The University of Michigan (UM) Training Program in ELSI Research will help meet this need by providing integrated, interdisciplinary instruction for predoctoral and postdoctoral scholars. We propose to support two predoctoral and two postdoctoral fellows per year. Each fellow will participate in an individualized, 2-year course of training that will provide mentoring, knowledge and skills in areas including 1) the current state of genomic science and medicine; 2) core principles and frameworks in bioethics; 3) quantitative and qualitative research methods; 4) grant writing and manuscript preparation; and 5) the implementation of interdisciplinary ELSI research projects. The training program will be based in the UM School of Public Health, in close collaboration with units in the UM Medical School including the Center for Bioethics & Social Sciences in Medicine, and the Department of Human Genetics. The training program will feature a team of 18 faculty mentors with vast experience in ELSI research and/or clinical genetics and a proven track record of NIH- funded projects and research mentoring; these mentors possess expertise across relevant disciplines including bioethics, clinical psychology, genetic counseling, genetic health / risk communication, health education, health law, health services research, medical decision-making, medical genetics, medical sociology, oncology, pediatrics, public policy, science / technology studies, and statistical genetics. The proposed training program will also draw upon the considerable resources of the University of Michigan, including the career development programs of the Michigan Institute for Clinical & Health Research, research methods training opportunities at the Institute for Social Research, and institutional support from the Rackham Graduate School.

抽象的 遗传学和基因组学研究正在迅速产生科学发现，技术进步和 临床应用，每种应用都对医学和公共卫生有重要影响。为了承诺 然而，要实现的“基因组革命”，许多道德，法律和社会含义（ELSI）将会 需要主动解决。自1990年以来，国家人类基因组研究所（NHGRI）拥有 资助了一项ELSI研究计划，重点是基因组学研究中的道德困境， 在医疗机构中的基因检测以及法律，监管和公共政策挑战的整合。 ELSI计划最近纳入更广泛的NIH机构培训补助计划（T32） 认识到需要培训下一代ELSI研究人员以面对日益严峻的挑战和 基因组学研究进步所定位的机会。 密歇根大学（UM）ELSI Research培训计划将通过提供来满足这一需求 综合跨学科教学，用于杂物前和博士后学者。我们建议支持两个 每年占主导地位和两个博士后研究员。每个人将参加一个个性化的2年 培训方案将在包括1）当前状态在内的领域提供心理，知识和技能 基因组科学与医学； 2）生物伦理学中的核心原则和框架； 3）定量和定性 研究方法； 4）授予写作和手稿准备； 5）实施跨学科 ELSI研究项目。该培训计划将基于UM公共卫生学院 与UM医学院的单位合作，包括生物伦理学与社会科学中心 医学和人类遗传学系。培训计划将由18名教师组成 在ELSI研究和/或临床遗传学方面拥有丰富经验的导师以及NIH-的可靠记录 资助的项目和研究指导；这些导师在相关学科中拥有专家 生物伦理学，临床心理学，遗传咨询，遗传健康 /风险交流，健康教育，健康 法律，卫生服务研究，医学决策，医学遗传学，医学社会学，肿瘤学， 儿科，公共政策，科学 /技术研究和统计遗传学。拟议的培训计划 还将利用密歇根大学的考虑资源，包括职业发展 密歇根州临床与健康研究所计划，研究方法培训机会 拉克汉姆研究生院的社会研究研究所和机构支持。

项目成果

What Can the Chemical Hold?: The Politics of Efficacy in the Psychedelic Renaissance.

• DOI: 10.1007/s11013-021-09708-7
• 发表时间: 2022-06
• 期刊: Culture, medicine and psychiatry
• 作者: Hendy K

Big Advocacy, Little Recognition: The Hidden Work of Black Patients in Precision Medicine.

大倡导，小认可：黑人患者在精准医学中的隐秘工作。

• DOI: 10.21203/rs.3.rs-2340760/v1
• 发表时间: 2023
• 期刊: Research square
• 作者: Gerido,LynetteHammond;Resnicow,Kenneth;Stoffel,Elena;Tomlin,Tiah;Cook-Deegan,Robert;Cline,Melissa;Coffin,Amy;Holdren,Jill;Majumder,MaryAnderlik;He,Zhe
• 通讯作者: He,Zhe

Biking for Health: Results of a Pilot Randomized Controlled Trial Examining the Impact of a Bicycling Intervention on Lower-Income Adults.

骑自行车促进健康：一项随机对照试点试验的结果，该试验检验了骑自行车干预措施对低收入成年人的影响。

• 发表时间: 2017
• 期刊: WMJ : official publication of the State Medical Society of Wisconsin
• 作者: Bernstein,Rebecca;Schneider,Robert;Welch,Whitney;Dressel,Anne;DeNomie,Melissa;Kusch,Jennifer;Sosa,Mirtha
• 通讯作者: Sosa,Mirtha

The Public Performativity of Trust.

信任的公共表现力。

• DOI: 10.1002/hast.1527
• 发表时间: 2023
• 期刊: The Hastings Center report
• 作者: Creary,Melissa;Gerido,LynetteHammond
• 通讯作者: Gerido,LynetteHammond

"If It Needs to be Done, It Needs to be Done": National Survey of Youth Experiences and Perspectives on Caregiving.

• DOI: 10.1016/j.jadohealth.2021.03.003
• 发表时间: 2021-10
• 期刊: The Journal of adolescent health : official publication of the Society for Adolescent Medicine
• 作者: Raj M;Feldman SJ;Platt JE;Chang T
• 通讯作者: Chang T