Core E: Outreach, Recruitment, and Engagement Core

核心 E：外展、招聘和参与核心

• 批准号: 10663301
• 负责人: Scott ROBERTS
• 金额: $ 43.21万
• 依托单位: UNIVERSITY OF MICHIGAN AT ANN ARBOR
• 依托单位国家: 美国
• 财政年份: 2021
• 资助国家: 美国
• 起止时间: 2021-09-01 至 2026-06-30
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/10663301
• 关键词: Achievement; Address; Affect; African American; Aging; Ally; Alzheimer' s Disease; Alzheimer' s disease related dementia; Area; Awareness; Biological Markers; Black American; Black race; COVID-19 pandemic; Caregivers; Clinical; Collaborations; Communication; Communities; Community Outreach; Community Physician; Consensus; Dementia; Development; Diagnosis; Disclosure; Education; Education and Outreach; Educational Materials; Elderly; Evaluation; Event; Faculty; Family; Family member; Funding; Genetic; Gerontology; Goals; Health Personnel; Health Professional; Health education; Individual; Knowledge; Lead; Lewy Body Dementia; Longitudinal cohort; Longitudinal cohort study; Memory; Memory Loss; Mentors; Methods; Michigan; Mission; Neuropsychological Tests; Newsletter; Ohio; Online Systems; Participant; Patients; Personal Satisfaction; Persons; Policy Maker; Population Heterogeneity; Postdoctoral Fellow; Process; Program Evaluation; Protocols documentation; Provider; Research; Research Personnel; Research Training; Resources; Risk; Schools; Test Result; Training; Training Activity; Training and Education; United States National Institutes of Health; Universities; advanced dementia; amyloid imaging; clinically significant; community based participatory research; community engagement; community partnership; contextual factors; data management; dementia care; education research; experience; graduate student; health communication; innovation; interest; lectures; multidisciplinary; neuroimaging; neuropathology; outreach; programs; recruit; research study; skill acquisition; skills; virtual; volunteer; web site

ABSTRACT – CORE E: OUTREACH, RECRUITMENT, AND ENGAGEMENT CORE The Outreach, Recruitment, and Engagement Core (OREC) will serve as a liaison between the Michigan Alzheimer’s Disease Research Center and key stakeholders including patients, families, research participants, and a variety of professional and lay community groups. To support ADRC goals of advancing research and practice in Alzheimer’s disease and related dementias, the OREC leads the development, implementation and evaluation of innovative means of health education and community outreach activities, with an overarching goal of enhancing research study recruitment and retention. These efforts will be closely coordinated with the activities of the Administrative, Clinical, Data Management and Statistical, Neuropathology, Biomarker, and Neuroimaging Cores, and the Research Education Component; they will also involve key regional academic collaborators at the University of Michigan (U-M), Wayne State University (WSU), and Michigan State University (MSU), as well as ORE Cores within the national ADRC network. Community partnerships across the state of Michigan and Northern Ohio (e.g., with the Michigan chapter of the Alzheimer’s Association and the Michigan Dementia Coalition) will enhance the reach and depth of OREC programs. Core aims will address the following: 1) education of key stakeholder groups about Alzheimer’s disease and related dementias and available ADRC resources; 2) recruitment of a diverse population of research participants through strategic outreach and engagement efforts, with emphasis on continuing to engage the Black American community in southeastern Michigan, facilitated by a community-based participatory research (CBPR) approach developed with input from our Detroit Advisory Council; 3) enhancement of efforts to retain research participants in Center-sponsored studies, including its longitudinal cohort (LC) study the University of Michigan – Memory and Aging Project; 4) development and evaluation of a protocol for disclosing individual research results with clinical significance to participants in the LC; and 5) Contribution to Center efforts in professional training and education, with a focus on dementia researchers and healthcare professionals. In carrying out its mission, the OREC will draw upon the skills and experience of an interdisciplinary team with considerable expertise in dementia care and support, health communication, caregiver and patient wellness, patient and provider education and training, program evaluation, and community engagement. These activities will not only address local and regional needs, but will also contribute to a national effort to promote Alzheimer’s disease research and education.

摘要 - 核心E：外展，招聘和参与核心 外展，招聘和参与核心（OREC）将作为密歇根州的联络 阿尔茨海默氏病研究中心和主要利益相关者，包括患者，家庭，研究参与者， 以及各种专业和外行社区团体。支持ADRC的目标，以推进研究和 在阿尔茨海默氏病和相关痴呆症的实践中，荷兰人领导着发展，实施和 评估健康教育和社区外展活动的创新手段，并具有总体 增强研究研究招聘和保留的目标。这些努力将与 行政，临床，数据管理和统计，神经病理学，生物标志物的活动 神经影像核心和研究教育部分；他们还将涉及关键的区域学术 密歇根大学（U-M），韦恩州立大学（WSU）和密歇根州立大学的合作者 大学（MSU）以及国家ADRC网络中的矿石核心。社区伙伴关系 密歇根州和俄亥俄州北部（例如，在阿尔茨海默氏症协会的密歇根州分会和 密歇根州痴呆症联盟将增强OREC计划的影响力和深度。核心目标将解决 以下内容：1）关于阿尔茨海默氏病和相关痴呆症的主要利益相关者群体的教育 可用的ADRC资源； 2）通过战略招募潜水员的研究参与者 宣传和参与工作，重点是继续与黑人美国社区参与 由社区参与研究（CBPR）制定的密歇根州东南密歇根州开发了 在我们的底特律顾问委员会的意见下； 3）加强保留研究参与者的努力 中心赞助的研究，包括其纵向队列（LC）研究密歇根大学 - 记忆和 衰老项目； 4）开发和评估协议，用于披露个人研究结果 对LC的参与者的临床意义； 5）为专业培训和 教育，专注于痴呆症研究人员和医疗保健专业人员。在执行任务时， OREC将借鉴具有考虑专业知识的跨学科团队的技能和经验 痴呆症护理和支持，健康沟通，照顾者和患者健康，患者和提供者 教育和培训，计划评估以及社区参与。这些活动不仅会解决 地方和地区的需求，但也将为促进阿尔茨海默氏病研究的全国努力做出贡献 和教育。