Parenting in the Face of Cancer: Non-Ill Sibling and Parent Relationships

面对癌症时的养育子女：无病兄弟姐妹和父母关系

• 批准号: 9252393
• 负责人: Amy J Walker
• 金额: $ 7.73万
• 依托单位: UNIVERSITY OF WASHINGTON
• 依托单位国家: 美国
• 财政年份: 2016
• 资助国家: 美国
• 起止时间: 2016-04-01 至 2019-06-30
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/9252393
• 关键词: Absenteeism; Adolescent; Adult; Age; Age-Years; Alcohol consumption; Anger; Attention; Awareness; Behavioral; Caring; Child; Child Rearing; Code; Communication; Comprehensive Cancer Center; Data; Depressed mood; Development; Diagnosis; Early treatment; Elements; Emotional; Evidence based intervention; Family; Family dynamics; Feeling; Fright; Future; Guilt; Health Personnel; Interview; Jealousy; Left; Life; Loneliness; Malignant Childhood Neoplasm; Malignant Neoplasms; Measures; Mediating; Mental Health; Modeling; Mothers; Outcome; Pacific Northwest; Parent-Child Relations; Parents; Participant; Patient Self-Report; Perception; Performance; Persons; Pilot Projects; Population; Questionnaires; Recruitment Activity; Reporting; Risk Behaviors; School-Age Population; Schools; Siblings; Social support; Source; Standardization; Structure; Telephone; United States; anxious; base; behavioral health; biological adaptation to stress; cancer diagnosis; cancer therapy; design; experience; improved; post-traumatic stress; prevent; public health relevance; theories

 DESCRIPTION (provided by applicant): Approximately 18,000 children and adolescents are diagnosed with cancer each year in the United States [21]. Childhood cancer is a crisis that impacts the entire family, including the non-ill siblings, who report feeling sad, lonely, anxious; guilty about their ill sibling's cancer; and jealous of the attention toward the sibling. They feel displaced, isolated, deprived, and angry about their parents' lack of attention toward them [1, 3-5]. Early treatment (2 to 6 months after diagnosis), is an important period because the stage is being set for future parenting behavior and communication during cancer treatment, which lasts one and three years. Parental availability and open communication are key elements for building and maintaining quality parent and child relationships during school age years [15], especially when a threat such as a sibling's cancer exists. The specific aims of this pilot study are to examine: 1) Ways in which parents express their availability (i.e., physical accessibility, openness to communication, responsiveness to calls for help) to non-ill children during early cancer treatment; 2) Content and ways in which parents communicate with non-ill children about their ill sibling's cancer diagnosis and treatment; 3) Non-ill children's self-reports of their parnts' availability (i.e., physical accessibility, openness to communication, and responsiveness to calls for help); 4) How non-ill children interpret their parents' communications about the ill sibling's cancer diagnosis and treatment; and to 5) Describe and analyze the parenting challenges for non-ill children during early treatment. Ninety participants (30 school age children, 60 parents) will be recruited from a Comprehensive Cancer Center in the Pacific Northwest during early cancer treatment (2 to 6 months after diagnosis). Semi-structured interviews will be conducted separately by telephone for parents and in-person for children. Content analysis with inductive and deductive coding will be used to analyze the interview data. A standardized questionnaire will be used to measure non-ill children's self-reports of each parent's availability. Study findins will inform the design of an evidence-based intervention to assist parents and non-ill siblings manage the challenges of a sibling's cancer and improve the quality of non-ill sibling and parent relationships. Strategies that assist parents in parenting their non-ill children can have a lastin impact on the non-ill sibling's adjustment and long-term parenting relationship.

 描述（由适用提供）：在美国，每年约有18,000名儿童和青少年被诊断出患有癌症[21]。儿童癌症是一场影响整个家庭的危机，其中包括非兄弟姐妹，他们报告感到悲伤，孤独，焦虑； 对他们的兄弟姐妹的癌症有罪；嫉妒兄弟姐妹的关注。他们感到 流离失所，孤立，被剥夺和生气，对父母对他们缺乏关注[1，3-5]。早期治疗（诊断后2至6个月）是一个重要时期，因为阶段是为癌症治疗期间的未来育儿行为和交流而设定的，持续一年和三年。父母的可用性和开放式沟通是在学年期间建立和维持高质量的父母和子女关系的关键要素[15]，尤其是在存在兄弟姐妹癌症之类的威胁时。这项试点研究的具体目的是检查：1）在早期癌症治疗期间，父母表达其可用性（即身体上的可及性，对沟通的开放性，对呼吁的响应，对帮助的响应能力）的方法； 2）父母与非伊利姆孩子沟通的内容和方式有关患病兄弟姐妹的癌症诊断和治疗； 3）非ill儿童的自我报告对他们的可用性（即物理上的可访问性，对沟通的开放性以及对呼吁寻求帮助的响应能力）； 4）非ill儿童如何解释父母关于病态兄弟姐妹的癌症诊断和治疗的沟通； 5）在早期治疗期间描述和分析非小儿童的育儿挑战。在早期癌症治疗期间（诊断后2至6个月），将从太平洋西北部的一个综合癌症中心招募90名参与者（30名学龄儿童，60名父母）。半结构化访谈将通过电话为父母和面对面的孩子分别进行。用归纳和演绎编码的内容分析将用于分析访谈数据。标准化的问卷将用于衡量每个父母的可用性的非国际收获的自我报告。研究Findins将为设计基于证据的干预措施的设计提供帮助，以帮助父母和非兄弟姐妹管理兄弟姐妹癌症的挑战，并提高非兄弟姐妹和父母关系的质量。帮助父母育儿的策略对非伊利·兄弟姐妹的调整和长期育儿关系有最后的影响。