Beneath the Urologic Iceberg: A Qualitative Study

泌尿科冰山之下：一项定性研究

基本信息

批准号：
7413588
负责人：
SHARON L TENNSTEDT
金额：
$ 38.32万
依托单位：
NEW ENGLAND RESEARCH INSTITUTES, INC.
依托单位国家：
美国
项目类别：
财政年份：
2006
资助国家：
美国
起止时间：
2006-06-01 至 2011-05-31
项目状态：
已结题

来源：
https://reporter.nih.gov/project-details/7413588
关键词：
AIDS/HIV problem Address African American Age Area Attention Belief Boston Caring Cells Class Clinical Management Community Health Conceptions Condition Count Daily Decision Making Depth Development Diagnosis Diagnostic Disease Doctor of Philosophy Economic Factors Effectiveness End Point Epidemiology Ethnic Origin Event Gender General Population Health Health Services Health Surveys Healthcare Systems Healthy People 2010 Human Iceberg Individual Interstitial Cystitis Intervention Investigation Knowledge Label Latino Lead Life Lip structure Literature Medical Metaphor Modeling Pathway interactions Patients Population Prevalence Process Provider Public Health Qualitative Research Race Range Rate Relative (related person)Reporting Research Research Personnel Respondent Sampling Self Care Self-control as a personality trait Services Sexual Dysfunction Shapes Stigmata Strategic Planning Study Subject Surveys Symptoms Techniques United States National Institutes of Health Urinary Incontinence Urologic Diseases Variant Woman base care seeking care systems concept design experience falls health disparity help-seeking behavior improved independency lower urinary tract symptoms men painful bladder syndrome racial and ethnic racial and ethnic disparities social social stigma urinary urologic

项目摘要

DESCRIPTION (provided by applicant): The metaphor of an "illness iceberg" (Last, 1963; 2001) is employed in recognition of the fact that, while common, some clinically important symptoms never make it to the health care system for effective treatment. Many symptoms are: (a) recognized by individuals, presented for treatment, diagnosed, treated and eventually recorded as a case. Others, however, are: (b) recognized, presented, but not diagnosed, treated, or counted; some symptoms are (c) recognized by individuals but not presented (possibly receiving self care); while others (d) are not recognized and never presented, treated or counted. Building on the epidemiologic findings from the Boston Area Community Health (BACH) survey (DK56842), this qualitative research is designed to explore the submerged areas of urologic disease, in order to understand reported disparities in help-seeking for a specific constellation of symptoms (Urinary Incontinence, Lower Urinary Tract Symptoms and Interstitial Cystitis/Painful Bladder Syndrome), by race/ethnicity, gender, age and SES. BACH is revealing how different sociocultural groups respond to these urologic symptoms; this complementary qualitative research is designed to explain why. BACH subjects (already identified) will be randomly selected to fill specific design cells. Established qualitative techniques will be employed by experienced investigators to elicit information on values, beliefs, norms, attributions, barriers and the perceived stigma associated with urologic symptoms. Several features are designed to overcome perceived limitations of qualitative research (representativeness, external validity and replicability). The project has high public health significance: (1) There are few in-depth studies of the "urologic iceberg" being uncovered by the BACH study; (2) It represents a practical and focused approach to an emerging area of health disparities; (3) It highlights a flaw in reported urologic disease rates (only those presenting get counted); and (4) Better understanding of help-seeking can improve the everyday clinical management of disease.

描述（由申请人提供）：采用“疾病冰山”的比喻（拉斯特，1963 年；2001 年）是为了认识到这样一个事实，即一些临床上重要的症状虽然常见，但从未进入医疗保健系统进行有效治疗。许多症状是：(a) 被个人识别、提出治疗、诊断、治疗并最终记录为病例。然而，其他情况是： (b) 已识别、呈现，但未诊断、治疗或计数； (c) 某些症状已被个人识别但并未表现出来（可能正在接受自我护理）；而其他 (d) 则未被识别，也从未被呈现、处理或计算。这项定性研究以波士顿地区社区健康 (BACH) 调查 (DK56842) 的流行病学调查结果为基础，旨在探索泌尿系统疾病的潜在领域，以了解报告的针对特定症状群寻求帮助的差异（尿失禁、下尿路症状和间质性膀胱炎/膀胱疼痛综合征），按种族/民族分类，性别、年龄和社会经济地位。巴赫正在揭示不同的社会文化群体如何应对这些泌尿系统症状；这项补充性定性研究旨在解释原因。 BACH 受试者（已确定）将被随机选择来填充特定的设计单元。经验丰富的研究人员将采用既定的定性技术来获取有关与泌尿系统症状相关的价值观、信仰、规范、归因、障碍和耻辱感的信息。设计了几个功能来克服定性研究的局限性（代表性、外部有效性和可复制性）。该项目具有较高的公共卫生意义：（1）对于BACH研究所揭示的“泌尿科冰山”的深入研究很少； (2) 它代表了针对新出现的健康差异领域的实用且有重点的方法； (3) 它强调了报告的泌尿系统疾病发生率的缺陷（仅计算那些出现的病例）； (4)更好地理解寻求帮助可以改善疾病的日常临床管理。

项目成果

期刊论文数量（7）

专著数量（0）

科研奖励数量（0）

会议论文数量（0）

专利数量（0）

Complementary and alternative therapies for urinary symptoms: use in a diverse population sample qualitative study.

泌尿系统症状的补充和替代疗法：用于多样化人群样本定性研究。

DOI：
发表时间：
2012
期刊：
Urologic nursing
影响因子：
0
作者：
Jackson,CourtneyB;Taubenberger,SimoneP;Botelho,Elizabeth;Joseph,Journel;Tennstedt,SharonL
通讯作者：
Tennstedt,SharonL

A qualitative inquiry of patient-reported outcomes: the case of lower urinary tract symptoms.

对患者报告结果的定性调查：下尿路症状的情况。