Measuring Gender in the Healthy Oregon Project

健康俄勒冈项目中的性别衡量

• 批准号: 10794845
• 负责人: JACKILEN SHANNON
• 金额: $ 16.16万
• 依托单位: OREGON HEALTH & SCIENCE UNIVERSITY
• 依托单位国家: 美国
• 财政年份: 2023
• 资助国家: 美国
• 起止时间: 2023-09-13 至 2025-05-31
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/10794845
• 关键词: Address; Administrative Supplement; Attention; Behavior; Cancer Burden; Cancer Survivor; Caring; Categories; Clinical Research; Cohort Studies; Collection; Communities; Consultations; Continuity of Patient Care; Data; Data Collection; Discrimination; Disparity; Enrollment; Ensure; Equity; Ethnic Origin; Evaluation; Exclusion; Face; Feedback; Feeling; Focus Groups; Fright; Future; Gender; Gender Identity; Goals; Guidelines; Health; Health behavior; Hereditary Breast and Ovarian Cancer Syndrome; Hereditary Nonpolyposis Colorectal Neoplasms; Individual; Inequity; Interview; Language; Lesbian Gay Bisexual Transgender Queer; Malignant Neoplasms; Measurement; Measures; Medical; Methods; Monitor; Mutation; National Comprehensive Cancer Network; Oregon; Outcome; Parents; Participant; Persons; Police; Population; Population Study; Prevention; Process; Race; Recommendation; Reporting; Research; Rural; Screening for cancer; Sex Orientation; Sexual and Gender Minorities; Signal Transduction; Subgroup; Surveys; Telephone; Terminology; Testing; United States National Institutes of Health; Work; age group; anticancer research; cancer care; cancer health disparity; cisgender; cognitive interview; cohort; community engagement; cultural competence; effectiveness study; evidence base; fluidity; gender diversity; gender fluid; gender minority community; gender minority health; genetic testing; health care settings; health disparity; health equity; improved; intersectionality; marginalized population; mortality; novel; outcome disparities; parent grant; pilot test; population based; recruit; response; satisfaction; screening; sex assigned at birth; social; transgender; urban dwelling

PROJECT SUMMARY The sexual and gender minority (SGM) community (i.e., LGBTQ+) is vastly underrepresented in cancer research. As such, there are limited data on cancer-related health outcomes and inequities, and a lack of evidence-based approaches to improve health equity. Importantly, the SGM umbrella term encompasses a heterogenous population, but much work to date has either combined subgroups or failed to disaggregate transgender and gender diverse (TGD) individuals. As such, there is an even greater need to include TGD individuals in research, and to include meaningful and accurate assessment of gender identity in that research. The NIH has developed recommendations for improvements in clinical research to improve SGM health. These include improved and expanded collection of gender identity and sexual orientation data, attention to intersectionality, and community engagement to ensure cultural competence/humility. The proposed administrative supplement project follows these recommendations by engaging TGD participants in the process of creating gender measurement items, testing the new measures in a large existing cohort, and conducting descriptive analyses to inform future research. The primary aim of this project is to conduct a mixed-methods study to guide decisions about terminology used for assessing gender within the Healthy Oregon Project (HOP). Much progress has been made toward improvement in and implementation of gender measurement, but persistent challenges remain. More specifically, current recommendations for language/terminology and response options used may not adequately and inclusively capture gender or the fluidity of gender identity. Such issues can lead to systemic gender miscategorization and low response rates in research, as well as contribute to discomfort and feelings of exclusion among TGD individuals. With the goal of improved and inclusive gender measurement, we propose to identify and test assessment items through an iterative process of individual interviews, focus groups, survey implementation in a large community cohort, and consultation with community stakeholders regarding results and recommendations. This work will add novel data to the extensive data already collected through HOP on health behaviors and cancer screening. In addition, the proposed supplement will facilitate improved data collection across the parent study cohorts that are recruited through HOP and provide a valuable opportunity to address important future questions regarding possible differences in follow on screening and prevention behaviors among TGD individuals who carry an HBOC or Lynch mutation. More broadly, the results will contribute to the expanded collection of valid gender identity data, the inclusion of TGD-specific data in research, and the improved assessment of cancer outcomes and health disparities for TGD communities.

项目摘要 性和性别少数民族（SGM）社区（即LGBTQ+）在癌症中的代表性差不多 研究。因此，关于癌症相关的健康结果和不平等的数据有限，缺乏 基于证据的方法来改善健康公平。重要的是，SGM伞项包括A 异源人群，但迄今为止的许多工作要么结合了亚组，要么未能分类 变性人和性别多样化（TGD）个体。因此，更需要包括TGD 研究中的个人，并在该研究中包括对性别认同的有意义，准确的评估。 NIH已为改进临床研究提出建议，以改善SGM健康。这些 包括改进和扩大性别认同和性取向数据的收集，注意 交叉性和社区参与，以确保文化能力/谦卑。提议 行政补充项目遵循这些建议，使TGD参与者参与 创建性别衡量项目，在大型现有队列中测试新措施的过程以及 进行描述性分析以告知未来的研究。该项目的主要目的是进行 混合方法研究指导有关用于评估健康性别的术语的决策 俄勒冈州项目（HOP）。在改善和实施性别方面取得了很多进展 测量，但仍然存在持续的挑战。更具体地说，当前的建议 使用的语言/术语和响应选项可能无法充分地捕获性别或 性别认同的流动性。这样的问题可能导致系统性的性别错误分类和低反应率 在研究中，并有助于TGD个体中的不适和排斥感。有目标 通过改进和包容性的性别衡量，我们建议通过 个人访谈，焦点小组，在一个大型社区队列中的调查实施的迭代过程， 并就结果和建议与社区利益相关者进行磋商。这项工作将添加 通过对健康行为和癌症筛查收集的广泛数据的新数据。在 此外，拟议的补充剂将促进在父母研究队列中改进的数据收集 通过Hop招募并提供了一个宝贵的机会来解决有关未来的重要问题 携带TGD个人的筛选和预防行为的可能差异 HBOC或LYNCH突变。更广泛地，结果将有助于扩大有效性别的收集 身份数据，在研究中纳入TGD特定数据以及对癌症结果的改进评估 TGD社区的健康差异。