ITCA Capacity Building: Developing the Arizona Tribal Research Review

ITCA 能力建设：制定亚利桑那部落研究审查

• 批准号: 10700061
• 负责人: Travis Lane
• 金额: $ 27.92万
• 依托单位: INTER TRIBAL COUNCIL OF ARIZONA, INC.
• 依托单位国家: 美国
• 财政年份: 2021
• 资助国家: 美国
• 起止时间: 2021-09-23 至 2025-07-31
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/10700061
• 关键词: Address; Agreement; Alaska Native; American Indians; Arizona; Authorization documentation; Awareness; Belmont Report; Biomedical Research; Code; Collaborations; Committee Members; Communication; Communities; Consultations; Data; Data Set; Educational workshop; Ensure; Ethics; Fostering; Genetic; Goals; Government; Health; Health Promotion; Indigenous; Individual; Infrastructure; Institution; Institutional Review Boards; Institutionalization; Leadership; Link; Morals; Native American Research Center for Health; Notification; Online Systems; Persons; Policies; Population; Procedures; Process; Protocols documentation; Publications; Recording of previous events; Reduce health disparities; Regulation; Research; Research Ethics; Research Personnel; Research Project Grants; Research Support; Resolution; Resources; Rights; Science; Stereotyping; System; Training; Tribal Council; Tribes; United States Indian Health Service; Universities; authority; case history; community building; cultural competence; data sharing; digital; distrust; health record; human subject; improved; interest; intertribal; lightspeed; member; pilot test; prevent; privacy protection; recruit; research faculty; tool; tribal Nation; tribal community; tribal institution; tribal lands; tribal member; unethical; welfare

NARCH XI Capacity Building Project Abstract The cultural differences of conducting research within the American Indian/Alaska Native communities is becoming a greater concern of ethical and moral approach. A large number of researchers from institutions is vastly increasing with greater interest. However, an ethical approach to research conducted on tribal land is important from implementing a project, collecting the data and data sharing. The American Indian people are culturally connected to with an Indigenous framework of one’s self as a whole especially during research. The historical cases of mistrust of research from non-community members has promoted negative publications and promote stereotypes of AI/AN. The Belmont Report created in 1974 prompted the Indian Health Service to establish Institutional Review Board or other forms of research committees. Several Tribes have created IRBs; smaller tribes do not have the resources nor opportunity. As each tribal government is organized differently, the Inter Tribal Council of Arizona, Inc. (ITCA), goal is to serve as the Institutional Review Board for Member Tribes ensuring the research purpose is appropriate for the protecting and benefit for the tribal members and tribal communities. ITCA has developed a strong relationship with Member Tribes in addition to creating partnerships with research institutions. The purpose of the capacity building project, “Developing the Arizona ITCA Tribal Research Review Board” is to address the concern in creating a research review board to ensure member tribal communities are assisted in providing protection and guidance with thought of benefits of all research presented to the community. Specific Aims. We will: 1. A consultation with ITCA Member Tribes and The University of Arizona partnership will develop a Tribal Research Coalition to review policies, and procedures, along with agreements, and protocols align with data sovereignty rights. 2. Establish a Tribal Institutional Review Board (IRB) consisting of members of Tribal leadership and voluntary committee members collaborating within research institutions providing guidance on research ethics to ensure tribal members and tribal community benefit from research projects in an ethical approach serving ITCA Member Tribes who do not have an institutionalized IRB process within the tribal government. 3. Collaborate with The University of Arizona to create training workshops for tribal and non-tribal members who acknowledge interest in conducting tribal research with any ITCA Member Tribe to increase culturally appropriate awareness and ethical research respecting tribal sovereignty.

Narch XI能力建设项目摘要 在美洲印第安/阿拉斯加土著社区内进行研究的文化差异是 成为对道德和道德方法的更关注。来自机构的大量研究人员是 随着更大的兴趣大大增加。但是，在部落土地上进行的研究道德方法是 从实施项目，收集数据和数据共享中很重要。美洲印第安人是 在文化上与整个自我的土著框架在文化上联系在一起，尤其是在研究过程中。这 非社区成员对研究不信任的历史案例促进了负面出版物， 促进AI/AN的刻板印象。 1974年创建的贝尔蒙特报告促使印度卫生服务部 建立机构审查委员会或其他形式的研究委员会。几个部落创造了IRB。 较小的部落没有资源或机会。随着每个部落政府的组织不同， 亚利桑那州Inc.（ITCA）的部落委员会的目标是担任成员的机构审查委员会 部落确保研究目的​​适合部落成员的保护和利益 部落社区。 ITCA除了创建成员部落建立了牢固的关系 与研究机构的合作伙伴关系。能力建设项目的目的，“发展亚利桑那州 ITCA部落研究审查委员会”是为了解决创建研究审查委员会的关注 成员部落社区得到了为所有人的利益提供保护和指导 向社区提出的研究。 具体目标。我们将： 1。与ITCA成员部落和亚利桑那大学合作伙伴关系的咨询将开发部落 研究联盟审查政策和程序，以及协议，协议与 数据主权权利。 2。建立由部落领导成员和部落机构审查委员会（IRB） 在研究机构中合作的志愿委员会成员提供研究指南 以道德方式从研究项目中确保部落成员和部落社区从研究项目中受益的道德规范 为ITCA成员部落提供服务，他们在部落政府内没有制度化的IRB程序。 3。与亚利桑那大学合作，为部落和非部落成员创建培训研讨会 谁承认有兴趣与任何ITCA成员部落进行部落研究以在文化上增加 适当的意识和尊重部落主权的道德研究。