Building Tribal Capacity through Informing the Development of Tribal Research Codes to Govern Genomic Research: A Collaboration between Cherokee Nation and the University of Oklahoma

通过制定部落研究代码来管理基因组研究来建设部落能力：切罗基民族与俄克拉荷马大学之间的合作

• 批准号: 10438445
• 负责人: Jessica Blanchard
• 金额: $ 30.52万
• 依托单位: CHEROKEE NATION
• 依托单位国家: 美国
• 财政年份: 2022
• 资助国家: 美国
• 起止时间: 2022-09-20 至 2026-07-31
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/10438445
• 关键词: Address; Agreement; Alaska Native; American Indians; Attention; Biological; Biomedical Research; Biotechnology; Cherokee Indian; Code; Collaborations; Collection; Communities; Consult; Data; Development; Employee; Equipment and supply inventories; Ethics; Face; Foundations; Funding; Genomics; Goals; Health; Indigenous; Information Systems; Institutional Review Boards; Legal; NCI Scholars Program; Native American Research Center for Health; Oklahoma; Ownership; Persons; Policies; Policy Research; Procedures; Protocols documentation; RADx Underserved Populations; Regulation; Research; Research Infrastructure; Research Personnel; Research Training; Resources; Rights; Role; Sampling; Self Determination; Series; Services; Shapes; Specimen; Structure; Students; Time; Training; Tribes; Universities; Work; bean; biobank; biological research; cohort; data sharing; design; ethical legal social implication; innovation; interest; meetings; member; precision medicine; programs; research and development; training opportunity; tribal Nation

Project Summary The changing landscape of genomic research and the emergence of new biotechnologies presents opportunities to grow tribal research capacity in collaborative ways that reflect sovereign data practices and dynamic tribal interests. This proposal builds on a record of collaboration between Cherokee Nation and University of Oklahoma (OU) researchers that addresses the ethical, legal and social questions tribal nations face as they navigate the changing role of genomic research in their communities, and promotes training of AI/AN students to pursue research in genomics and health related fields. We propose to inform the development of a set of tribal research codes to govern genomics and other biomedical research involving bio- specimens for Cherokee Nation.

项目摘要 基因组研究的不断变化和新生物技术的出现呈现出来 以合作的方式提高部落研究能力的机会，以反映主权数据实践和 动态的部落利益。该提议建立在切诺基国家与 俄克拉荷马大学（OU）的研究人员解决了道德，法律和社会问题部落国家 当他们在基因组研究在社区中的作用变化时面对面，并促进培训 AI/A A学生从事基因组学和健康与健康领域的研究。我们建议通知 开发一组部落研究法规，以控制基因组学和其他生物医学研究，涉及生物 切诺基国家的标本。