New York City Hispanic Dementia Caregiver Research Program (NHiRP)

纽约市西班牙裔痴呆症护理人员研究计划 (NHiRP)

基本信息

批准号：
9251192
负责人：
SUZANNE BAKKEN
金额：
$ 52.06万
依托单位：
COLUMBIA UNIVERSITY HEALTH SCIENCES
依托单位国家：
美国
项目类别：
财政年份：
2013
资助国家：
美国
起止时间：
2013-06-01 至 2019-03-31
项目状态：
已结题

来源：
https://reporter.nih.gov/project-details/9251192
关键词：
Academic Medical Centers Acculturation Address Alzheimer&apos s Disease Area Bioinformatics Caregiver Burden Caregiver research Caregivers Characteristics Clinical Clinical Trials Clinical Trials Design Data Collection Daughter Dementia Dementia caregivers Demographic Factors Doctor of Philosophy Effectiveness Effectiveness of Interventions Employment Enrollment Epidemiology Evidence based intervention Family Family health status Goals Health Health Information System Hispanics Homes for the Aged Hybrids Individual Information Management Intervention Intervention Studies Knowledge Management Information Systems Medical Mental Health New York New York City Not Hispanic or Latino Observational Study Online Systems Outcome Perception Persons Phase Physicians Population Positioning Attribute Public Health Randomized Registries Research Research Infrastructure Resources School Nursing Self Efficacy Social support Socioeconomic Status Surgeon Testing Universities arm care giving burden caregiver interventions caregiving caregiving outcomes caregiving research coping depressive symptoms design evidence base follow-up informal caregiver low socioeconomic status medical schools member minority health multidisciplinary novel phase 1 study primary outcome programs public health relevance randomized trial response sex stress symptom systems research therapy design treatment as usual

项目摘要

DESCRIPTION (provided by applicant): We submit this application in response to RFA-NR-13-001 "Addressing Needs of Informal Caregivers of Individuals with Alzheimer's Disease in the Context of Socio-demographic Factors (R01)". Hispanics are a rapidly growing population who suffer disproportionately from dementia, including Alzheimer's dementia, and related caregiving burdens compared to Non-Hispanic Whites. Little is known about the key characteristics and needs of these caregivers and how they influence long-term outcomes, the effectiveness of interventions, and the management of information critical to their health and that of persons with dementia. We propose to address these questions by creating the New-York-City Hispanic-dementia-caregiver Research Program (NHiRP), a multifaceted, novel research program designed to understand the particular needs of and tailor evidence-based clinical interventions to Hispanic caregivers of persons with dementia. We are uniquely positioned to respond to this RFA because our multidisciplinary team is conducting the Northern Manhattan Caregiver Intervention Project (NOCIP, clinicaltrials.gov ID NCT01306695), a randomized trial of 6-months duration testing the effectiveness of the New York University (NYU) Caregiver Intervention in 160 Hispanic relative caregivers of persons with dementia. The NHiRP will build on the resources of NOCIP and will be co- led by multiple PIs, Jose Luchsinger, MD, MPH, Roberto Lucero, RN, PhD and Mary Mittelman, DrPH, who will merge their complementary areas of expertise in epidemiology, clinical trials, minority health, mental health, medical bioinformatics, and caregiving research to achieve its 3 main goals: 1. Conduct a longitudinal follow-up of caregivers in NOCIP; 2.Create a registry of Hispanic caregivers in order to study the relation of socio- demographic factors with their caregiving-related needs; 3. Adapt and test a web-based personal health information management system intervention, working with registry members, tailored to their socio- demographic characteristics and needs. NHiRP will achieve its goals through the following specific aims: 1. To compare caregiver change in depressive symptoms and burden between the NOCIP study arms in a 5-year observational study phase 1 and 5 years after NOCIP enrollment; 2. To examine the interplay of key socio- demographic characteristics, caregiver burden, stress, and depressive symptoms in 300 members from our newly formed registry-Key characteristics include sex and family position, employment, acculturation, socioeconomic status (SES), social support, and coping; 3. To iteratively develop, refine, and test a web-based health information system with caregivers in the registry.

描述（由申请人提供）：我们根据RFA-NR-13-001提交此申请：“在社会人口统计学因素（R01）的背景下，解决患有阿尔茨海默氏病的人的非正式护理人员的需求”。西班牙裔人是一个迅速增长的人口，与非西班牙裔白人相比，包括阿尔茨海默氏症在内的痴呆症（包括阿尔茨海默氏症）和相关的照顾负担不成比例。这些护理人员的关键特征和需求知之甚少，它们如何影响长期结果，干预措施的有效性以及对健康和痴呆症患者至关重要的信息的管理。我们建议通过创建纽约市西班牙裔痴呆症护理研究计划（NHIRP）来解决这些问题，这是一项多方面的新型研究计划，旨在了解对痴呆症患者西班牙裔护理人员的特定需求和量身定制的循证临床干预措施。 We are uniquely positioned to respond to this RFA because our multidisciplinary team is conducting the Northern Manhattan Caregiver Intervention Project (NOCIP, clinicaltrials.gov ID NCT01306695), a randomized trial of 6-months duration testing the effectiveness of the New York University (NYU) Caregiver Intervention in 160 Hispanic relative caregivers of persons with dementia. NHIRP将基于Nocip的资源，并将由多个PIS，Jose Luchsinger，MD，MPH，Roberto Lucero，RN，RN，PhD和Mary Mittelman（DRPH）合并，后者将合并其在流行病学，临床试验，少数群体健康，医学，医学生物学，医学生物学，医学生物学的临床试验中的互补领域，和护理研究以实现其3个主要目标：1。对Nocip的护理人员进行纵向随访； 2.创建西班牙裔护理人员的注册表，以研究社会人口因素与与护理相关的需求的关系； 3.适应和测试基于网络的个人健康信息管理系统干预措施，与注册表成员一起量身定制其社会人群特征和需求。 NHIRP将通过以下特定目的实现其目标：1。在5年观察性研究中，在NOCIP入学后的1阶段和5年中，NOCIP研究臂之间的抑郁症状和负担的变化和负担； 2。检查关键社会人口特征，照料者负担，压力和抑郁症状的相互作用，来自我们新成立的注册表钥匙特征的300名成员包括性别和家庭地位，就业，适应性，社会经济地位（SES），社会支持和应对； 3。迭代开发，完善和测试与注册表中的护理人员一起使用的基于网络的健康信息系统。