Exploring Neurological Effects and Life Experiences of Language Deprivation in the Deaf Community of the Dominican Republic

探索多米尼加共和国聋人社区语言剥夺的神经影响和生活经历

• 批准号: 9815601
• 负责人: TIMOTHY De Ver DYE
• 金额: $ 19.7万
• 依托单位: UNIVERSITY OF ROCHESTER
• 依托单位国家: 美国
• 财政年份: 2019
• 资助国家: 美国
• 起止时间: 2019-09-01 至 2021-05-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/9815601
• 关键词: Active Learning; Acute; Adult; Asthma; Auditory; Caribbean region; Child; Childhood; Cognitive; Collaborations; Communities; Country; Development; Diabetes Mellitus; Dominican; Dominican Republic; Education; Employment; Family; Family member; Foundations; Friends; Funding; Goals; Health; Healthcare; Hearing; Human Development; Human Resources; Income; Infrastructure; Institution; International; Intervention; Language; Language Development; Latin America; Left; Life Experience; Linguistics; Logistics; Medical; Medical center; Mental Depression; Mental Health; Methods; Modeling; Neurologic Effect; Outcome; Pattern; Personal Satisfaction; Pilot Projects; Population; Prevalence; Procedures; Psyche structure; Research; Risk; Running; Schools; Services; Sign Language; Surveys; Sustainable Development; Technology; Television; Testing; Theoretical model; Time; USAID; Unemployment; United States National Institutes of Health; Universities; Visual; base; community organizations; critical period; deaf; deprivation; disability; early childhood; elementary school; ethnographic method; experience; fifth grade; fourth grade; global health; hearing impairment; instrument; interest; literacy; low and middle-income countries; physical conditioning; programs; social; social health determinants; years lived with disability; Active Learning; Acute; Adult; Asthma; Auditory; Caribbean region; Child; Childhood; Cognitive; Collaborations; Communities; Country; Development; Diabetes Mellitus; Dominican; Dominican Republic; Education; Employment; Family; Family member; Foundations; Friends; Funding; Goals; Health; Healthcare; Hearing; Human Development; Human Resources; Income; Infrastructure; Institution; International; Intervention; Language; Language Development; Latin America; Left; Life Experience; Linguistics; Logistics; Medical; Medical center; Mental Depression; Mental Health; Methods; Modeling; Neurologic Effect; Outcome; Pattern; Personal Satisfaction; Pilot Projects; Population; Prevalence; Procedures; Psyche structure; Research; Risk; Running; Schools; Services; Sign Language; Surveys; Sustainable Development; Technology; Television; Testing; Theoretical model; Time; USAID; Unemployment; United States National Institutes of Health; Universities; Visual; base; community organizations; critical period; deaf; deprivation; disability; early childhood; elementary school; ethnographic method; experience; fifth grade; fourth grade; global health; hearing impairment; instrument; interest; literacy; low and middle-income countries; physical conditioning; programs; social; social health determinants; years lived with disability

This Deaf-led proposal aims to better understand salient concepts and patterns of language deprivation in Deaf communities of the Dominican Republic (DR), generating research capacity and strengthening partnerships using Popular Education principles and community collaboration around the conduct of a participatory qualitative study. The interference of acquiring language is the greatest threat to the long- term health and well-being of deaf children. “Language deprivation” is the experience of inconsistently accessible language exposure during the critical period of language acquisition – a time-sensitive neurodevelopmental period for establishing a first language foundation. Not having a complete first language foundation before the critical period “window” closes is associated with permanent atypical neurostructural changes in deaf people and may be associated with poor education, health, and employment outcomes seen in the deaf population. Hearing loss is the fourth leading cause of Years Lived with Disability (YLD) worldwide, and is particularly acute in Latin America and the Caribbean. This project proposes to expands two existing partnerships - one long-term existing NIH-funded research partnership between the University of Rochester (UR) and Pontifica Universidad Catolica Madre y Maestra (PUCMM), and another existing USAID- funded partnership between Discovering Deaf Worlds (DDW; an international deaf NGO based in Rochester) and the Asociación Nacional de Sordos de la República Dominicana (ANSORDO; National Association of the Deaf of the Dominican Republic). Little is known about the manifestations and experiences of language deprivation in the DR’s deaf population and strong but heretofore separate existing partnerships can be merged to create a new emphasis and experiential learning on the topic. As such, our aims are to: 1) Investigate and document the health concerns and needs of the DR’s Deaf communities, with particular focus on early childhood language experiences, perceived consequences, and the identification of language dynamics and engagement of Deaf populations; 2) Generate and expand capacity to conduct community- engaged research with Deaf Dominicans, and 3) Grow and strengthen a collaborative research focus on global deaf health and language deprivation between US and Dominican academic institutions and deaf community organizations. The project is guided by principles and methods the involved bi/tri/quadrilingual (ASL/ DSL/ English/ Spanish) teams have already demonstrated, and the project is centered around a model of capacity building and partnership strengthening implemented by the partners in completing a pilot study to develop logistics, instruments, procedures, and personnel for this project.

这个聋哑的提议旨在更好地理解在 多米尼加共和国（DR）的聋人社区，产生研究能力并增强 使用流行的教育原则和社区合作的合作伙伴关系围绕 参与性定性研究。获得语言的干预是对长期的最大威胁 聋哑儿童的健康和福祉。 “语言剥夺”是不一致的经历 在语言获取的关键时期内可访问的语言暴露 - 时间敏感 神经发育时期建立第一语言基础。没有完整的 关键时期“窗口”关闭之前的语言基础与永久非典型 聋人的神经结构变化，可能与教育，健康不良和 在聋人人群中看到的就业结果。听力损失是多年的第四大原因 全世界都生活在残疾人（YLD），在拉丁美洲和加勒比海地区特别敏锐。这 项目提案以扩大两种现有伙伴关系 - 一项长期现有的NIH资助研究 罗切斯特大学（UR）和庞蒂法加大学的伙伴关系 Maestra（PUCMM）和另一个现有的美国国际开发署资助的伙伴关系 （DDW；位于罗切斯特的国际聋哑非政府组织）和AsociaciónNacionalde Sordos de la RepúblicaDominicana（Ansordo；多米尼加共和国聋人全国协会）。几乎没有 关于博士聋人人群中语言剥夺的表现和经历的了解 强大但迄今为止单独的现有伙伴关系可以合并以创建新的重点，并且 关于该主题的体验式学习。因此，我们的目标是：1）调查并记录健康状况 博士聋人社区的关注和需求，特别关注幼儿语言 经验，感知后果以及语言动态的识别和参与 聋人人群； 2）产生和扩大能力与聋人进行社区参与研究 多米尼加人，以及3）成长和加强协作研究的重点是全球聋人健康和 我们与多米尼加学术机构与聋人社区之间的语言剥夺 组织。该项目以原则和方法为指导 英语/西班牙语）团队已经证明了 合作伙伴完成试点研究的能力建设和伙伴关系加强 为该项目开发物流，工具，程序和人员。