Enhancing American Indian Caregiver Mastery through a Savvy Caregiver Peer Program

通过精明的护理人员同伴计划提高美洲印第安人护理人员的掌握程度

基本信息

批准号：
10806587
负责人：
JORDAN Paul LEWIS
金额：
$ 71.1万
依托单位：
UNIVERSITY OF MINNESOTA
依托单位国家：
美国
项目类别：
财政年份：
2023
资助国家：
美国
起止时间：
2023-09-30 至 2028-06-30
项目状态：
未结题

来源：
https://reporter.nih.gov/project-details/10806587
关键词：
Address Adherence Adverse event Aging Alzheimer&apos s Disease American Indians Buffers Caregiver research Caregiver support Caregiver well-being Caregivers Caring Communities Control Groups Coping Skills Country Data Dementia Dementia caregivers Development Disease Management Dissemination and Implementation Education Educational Curriculum Educational Materials Effectiveness Elements Empathy Enrollment Ensure Exercise Family Caregiver Feeling Future Goals Health Health behavior Home Hour Hybrids Indigenous Infrastructure Intervention Knowledge Learning Literature Measures Mediating Mediation Medical Memory Mental Depression Mentorship Minnesota Modeling Outcome Participant Personal Satisfaction Persons Pilot Projects Play Population Preparation Productivity Protocols documentation Quality of Care Quality of life Randomized Randomized, Controlled Trials Recommendation Reporting Research Resources Role Safety Self Efficacy Social support Stress Structure Support Groups Testing Time Training Training and Education Uncertainty White Earth Work acceptability and feasibility arm behavior change caregiver education caregiver interventions caregiving community based participatory research community engagement community living cost effective cultural values design effectiveness evaluation evidence base expectation experience health care availability improved indigenous community insight interest intergenerational knowledge translation member peer peer coaching peer support physical conditioning programs prototype psychoeducation psychoeducational psychoeducational intervention psychosocial randomized, clinical trials recruit skills social social cognitive theory theories transmission process uptake

项目摘要

Enhancing American Indian Caregiver Mastery through a Savvy Caregiver Program-Peer addresses the growing number of American Indian caregivers with limited knowledge of dementia. The high level of burden associated with providing care for those with dementia, along with uncertainty about managing disease conditions, problems with different psychosocial aspects of care, lack of culturally responsive training and education materials results in caregivers reporting feelings of isolation and depression. Despite the unique needs of American Indian caregivers, few resources support this group in a culturally appropriate way. The Savvy Caregiver Program is a multi-component, psychoeducational program consisting of 6 weekly 2-hour sessions for family caregivers of people living with dementia at home. Informed by Stress Mediation and Social Cognitive Theories, the Savvy Caregiver Program was developed to alleviate caregiving strains and strengthen knowledge, skills, and outlook through classes, interactive exercises, and home assignments. This study will use a community-based participatory research framework to enhance the Savvy Caregiver Program by adding a peer-based educational and support component, referred to as the Savvy Caregiver Peer Program, that incorporates Stress Mediation and Generativity Theories. Six sequential talking circles will be held with 5-8 previous American Indian dementia caregivers who are enrolled members of White Earth Nation (Aim 1) to develop the Savvy Caregiver Peer Program prototype. Participants will review the Savvy Caregiver Program curriculum and discuss the roles and expectations of peer mentors in the program, including peer selection, training, and a management structure to oversee peer mentors and caregiver engagement. The 6 planning and design talking circles will gather strategic, culturally appropriate information to (1) provide the peer mentors with an opportunity to directly define their role and expectations as part of the Savvy Caregiver Peer Program; (2) educate peers on the Savvy Caregiver Program core elements and their role in supporting the materials; and (3) gather insights about the peer mentor material to be provided to the caregiver. Upon completion of the sequential talking circles and development of the Savvy Caregiver Program-Peer training materials and infrastructure, a parallel arm randomized clinical trial of 30 caregivers (20 to intervention, 10 to control group) will be conducted for 12 weeks (6 biweekly sessions) (Aim 2). Qualitative and quantitative data from peer mentors and caregivers will be collected to assess the feasibility and acceptability of recruitment, randomization, intervention adherence, and administration of caregiver measures. During Year 4 (Aim 3), we will host talking circles to engage caregivers and peer mentors in the refinement and improvement of the Savvy Caregiver Program-Peer in preparation for testing in a larger, subsequent randomized clinical trial. This study will contribute cultural and contextual knowledge to inform the eventual development of caregiver interventions grounded in cultural values to improve the quality of life and outcomes for American Indian dementia caregivers.

通过精明的看护者计划加强美洲印第安人看护者的掌握 - 同行解决了越来越多的美洲印第安人护理人员对痴呆症的了解有限。负担水平高与为痴呆症患者提供护理以及控制疾病的不确定性相关条件、护理不同心理社会方面的问题、缺乏文化响应培训和教育材料导致护理人员报告感到孤立和抑郁。尽管有独特的需求对于美洲印第安人的护理人员来说，很少有资源以文化上适当的方式支持这个群体。精明的人看护者计划是一个多组成部分的心理教育计划，由每周 6 次每次 2 小时的课程组成在家中照顾痴呆症患者的家庭护理人员。通过压力调解和社会认知了解从理论上讲，精明的护理人员计划的开发是为了减轻护理压力并加强知识，通过课程、互动练习和家庭作业来培养技能和前景。本研究将使用基于社区的参与性研究框架来增强精明的护理人员通过添加基于同伴的教育和支持部分（称为“精明的看护者同伴”）的计划计划，结合了压力调解和生成理论。将连续举行六场谈话圈与 5-8 名以前是美国印第安人痴呆症护理人员的人一起，他们是 White Earth Nation 的注册成员（目标 1) 开发 Savvy Caregiver Peer Program 原型。参与者将回顾精明的护理人员计划课程并讨论同伴导师在该计划中的角色和期望，包括同伴选择，培训，以及监督同伴导师和护理人员参与的管理结构。 6 规划与设计谈话圈将收集战略性的、文化上适当的信息，以便 (1) 为同伴导师提供作为精明的看护者同伴计划的一部分，有机会直接定义他们的角色和期望； (2) 向同龄人介绍精明看护者计划的核心要素及其在支持材料中的作用；和（3）收集有关提供给护理人员的同伴导师材料的见解。顺序完成后谈话圈和精明看护者计划的发展——同伴培训材料和基础设施，将进行 30 名护理人员（20 名干预组，10 名对照组）的平行臂随机临床试验为期 12 周（每两周 6 次）（目标 2）。来自同伴导师和护理人员的定性和定量数据将收集数据以评估招募、随机化、干预依从性的可行性和可接受性，和护理措施的管理。在第 4 年（目标 3）期间，我们将举办谈话圈来吸引护理人员和同伴导师一起完善和改进精明的看护者计划-同伴，为在随后进行的更大规模的随机临床试验中进行测试。这项研究将有助于文化和背景为最终制定基于文化价值观的护理人员干预措施提供信息，以改善美洲印第安人痴呆症护理人员的生活质量和结果。