Piloting a standardized psychosocial assessment tool (BATHE) in genetic counseling

在遗传咨询中试点标准化社会心理评估工具（BATHE）

基本信息

批准号：
10683373
负责人：
Maryann W Campion
金额：
$ 19.68万
依托单位：
STANFORD UNIVERSITY
依托单位国家：
美国
项目类别：
财政年份：
2022
资助国家：
美国
起止时间：
2022-08-12 至 2025-05-31
项目状态：
未结题

来源：
https://reporter.nih.gov/project-details/10683373
关键词：
Accreditation Address Adoption Adult Affect Anxiety Appointment Area Assessment tool Attention California Cardiology Caring Certification Characteristics Client satisfaction Clinical Competence Consultations Consumption Counseling Data Development Educational workshop Emotional Emotions Ensure Evaluation Exploratory/Developmental Grant Feedback Foundations Funding Genetic Counseling Genomics Goals Health Healthcare Hearing Hereditary Malignant Neoplasm Institution Interview Investigation Learning Literature Malignant Neoplasms Medical Genetics Medicine Methods Modeling Modification National Human Genome Research Institute Neurology Outcome Participant Patient-Centered Care Patient-Focused Outcomes Patients Practice Guidelines Primary Care Process Provider Psychological Impact Psychosocial Assessment and Care Questionnaires Research Sampling Social Work Standardization Strategic vision Structure Surveys Techniques Time Training Transcript acceptability and feasibility anxiety reduction clinical care clinical practice coping empowerment experience genetic counselor genetic testing health care settings impression improved innovation instrument medical specialties person centered prenatal primary care setting psychologic psychological distress psychosocial randomized trial response satisfaction skills social tool

项目摘要

PROJECT ABSTRACT Significant rates of psychological distress have been found in patients across a range of genetic counseling settings, including cancer, cardiology, prenatal and medical genetics. In many cases, these needs are profound and unmet. Such data suggest that genetic counselors providing clinical care should routinely assess patients’ emotions and psychological impact. Accreditation boards for genetic counseling require this skill to achieve certification, but there is no standard definition of a “psychosocial assessment” in genetic counseling nor universal instruments to facilitate it. Those tools that do exist are questionnaire-based or specific to a clinical indication, eg. hereditary cancer. We can look to other healthcare settings, such as social work and primary care, to borrow tools which standardize the psychosocial assessment and which may be applicable in genetic counseling. One such tool developed in primary care is the BATHE method: a structured technique consisting of four questions that explore patients’ main presenting concerns, emotional affect and coping, paired with guidance for empathic responses. Evidence from the primary care literature shows the BATHE method reduces patient anxiety and improves patient empowerment. Providers find it concise and easy-to-learn, allowing for a person-centered interaction without increasing consultation time. These characteristics combined make it an attractive tool to pilot in genetic counseling, which provides patient-centered care while balancing information delivery and support. For these reasons, we request funding through this NHGRI R21 mechanism to better characterize the current state of psychosocial practices and pilot an innovative standardized way to provide such an assessment in genetic counseling. These goals are in line with the NHGRI’s 2020 Strategic Vision to promote patient empowerment around genomic information and train a workforce that is scalable and efficient. First, this study will describe the current practices of psychosocial assessments in genetic counseling, using descriptive content analysis of transcripts of a purposive sample of genetic counseling sessions at Stanford Medicine. Second, this study will pilot a psychosocial assessment tool (the BATHE method) in genetic counseling to assess its feasibility and acceptability by genetic counselors. Exploring patients’ perspectives, patient-related outcomes, and influence of cultural differences are crucial, and the current study lays the groundwork for this subsequent research. At the conclusion of our study, the findings from our aims will inform the development of a genetic counseling-specific standardized psychosocial assessment. The ultimate goal of this research is to build a foundation for investigation of patient outcomes in response to psychosocial counseling approaches.

项目摘要在一系列遗传咨询中发现患者出现显着的心理困扰在许多情况下，这些需求是深远的。这些数据表明，提供临床护理的遗传咨询师应该定期评估患者的健康状况。遗传咨询认证委员会需要这种技能才能实现。认证，但遗传咨询中没有“社会心理评估”的标准定义，也没有那些确实存在的通用工具是基于调查问卷的或特定于临床的。适应症，例如遗传性癌症，我们可以寻求其他医疗保健环境，例如社会工作和初级保健。护理，借用使社会评估标准化并可能适用于遗传的工具初级保健中开发的此类工具之一是 BATHE 方法：一种结构化技术，包括以下内容：四个问题探讨患者的主要担忧、情绪影响和应对方式，并搭配来自初级保健文献的证据表明 BATHE 方法可减少共情反应。提供者发现它简洁且易于学习，可以减轻患者的焦虑并提高患者的能力。以人为中心的互动而不增加咨询时间。这些特征结合起来使其成为一种。遗传咨询试点的有吸引力的工具，它提供以患者为中心的护理，同时平衡信息出于这些原因，我们请求通过 NHGRI R21 机制提供资金，以更好地提供服务。描述心理社会实践的现状，并试点一种创新的标准化方法来提供这些目标符合 NHGRI 的 2020 年战略愿景。围绕基因组信息促进患者赋权，并培训可扩展且高效的员工队伍。首先，本研究将描述遗传咨询中心理社会评估的当前实践，使用对斯坦福大学遗传咨询会议的有目的样本的记录进行描述性内容分析其次，本研究将在遗传领域试行心理社会评估工具（BATHE方法）。咨询以评估遗传咨询师的可行性和可接受性，患者相关的结果和文化差异的影响至关重要，当前的研究表明为后续研究奠定基础在我们的研究结束时，我们的目标结果将为您提供信息。制定针对遗传咨询的标准化心理社会评估的最终目标。这项研究旨在为调查患者的心理社会结果奠定基础咨询方法。