Administrative Core

行政核心

基本信息

批准号：
10678889
负责人：
Michael Byrne Robinson
金额：
$ 23.56万
依托单位：
CHILDREN'S HOSP OF PHILADELPHIA
依托单位国家：
美国
项目类别：
财政年份：
2021
资助国家：
美国
起止时间：
2021-07-15 至 2026-05-31
项目状态：
未结题

来源：
https://reporter.nih.gov/project-details/10678889
关键词：
Adult Advisory Committees Advocacy Advocate Affective Applied Research Area Award Basic Science Behavioral Biometry Budgets Cardiology Chalk Child Cognitive Collaborations Communication Communities Computing Methodologies Data Data Science Core Development Disease Education Educational workshop Electroencephalography Electronic Health Record Electronics Ensure Environment Etiology Faculty Family Fostering Functional disorder Funding Genetic Genetic Risk Genomics Goals Grant Growth Human Individual Infant Innovative Therapy Institution Intellectual and Developmental Disabilities Research Centers Intellectual functioning disability Interdisciplinary Study Intervention Journals Language Lead Leadership Magnetic Resonance Imaging Magnetoencephalography Measures Mentors Mission Modernization Monitor Motor National Institute of Child Health and Human Development National Institute of Neurological Disorders and Stroke Neurodevelopmental Disability Neurosciences Oncology Parents Pathogenesis Patients Pediatric Hospitals Pennsylvania Perinatology Phenotype Philadelphia Physicians Positioning Attribute Pre-Clinical Model Program Development Publications Reporter Reproducibility of Results Research Research Institute Research Project Grants Research Support Research Training Resources Risk Scientist Series Site Surveys System Technology Training Training Activity Training Programs Translational Research Universities Utilization Review Vision Work auditory processing career development clinical translation cognitive ability community organizations cost effectiveness data integration educational atmosphere gene therapy genetic variant induced pluripotent stem cell innovation meetings member mouse model multidisciplinary neural circuit neuroimaging next generation novel therapeutics patient advocacy group post-doctoral training processing speed professor programs recruit satisfaction skills social success support network systematic review technology validation translational goal web site

项目摘要

(CORE A: ADMINISTRATIVE CORE) PROJECT SUMMARY This Administrative Core will provide oversight and management of the Intellectual and Developmental Disabilities Research Center at the Children’s Hospital of Philadelphia (CHOP) and the University of Pennsylvania (Penn). The center has three specific aims. First, we will lead an innovative, translational research agenda by supporting cores that continually evolve to provide cutting-edge technologies and meet the needs of center members. The center also supports a new research project that uses most of these cores to determine if magnetoencephalography (MEG) can be used to predict general cognitive ability and language-specific ability in children with a genetic risk for intellectual disability. Second, we will lead a career development initiative that supports multidisciplinary training. Third, we will promote interactions and collaboration, advocate for IDD research and its growth at CHOP/Penn and beyond, and we will ensure that advances in IDD research are rapidly disseminated to a wide variety of scientific and lay audiences with a focus on families of children with IDDs. The Administrative Core oversees management, strategy and vision for the IDDRC. It will: (1) Provide oversight of the cores including review and approval of new users, review of utilization, and survey user satisfaction; (2) Provide oversight of the research project, including regular progress meetings; (3) Provide oversight of core budget and monitoring their of cost-effectiveness; (4) Manage all training related activities, including organizing seminar series; (5) Maintain websites for the IDDRC and our training programs; (6) Coordinate meetings with internal, external, and patient advisory groups; (7) Manage all communication with NICHD; (8) Foster collaborations with other IDDRCs across the network; (9) Lead institutional, regional, and national advocacy; (10) Disseminate research findings to academic and community/family organizations and stakeholders; and (11) Organize activities that encourage networking and collaboration between cores, among center members, and with other centers and resources at CHOP/Penn. The center has three guiding principles. First, we seek to foster community, to encourage collaborative, inter- disciplinary research and to attract the next generation of scientists to the field. Second, solicit advice from our advisory committees to help the center continually evolve so that we meet the needs of our users and our community of constituents. Finally, we emphasize support of innovative, translational research that will define the etiology/pathophysiology of IDDs and lead to new interventions for children and adults with neurodevelopmental disabilities. Collectively, our activities are sharply focused on supporting research that has the potential to greatly impact the lives of those with an IDD.

（核心A：行政核心）项目概要该行政核心将为智力和发育障碍提供监督和管理费城儿童医院 (CHOP) 和宾夕法尼亚大学 (Penn) 的研究中心。该中心有三个具体目标，首先，我们将通过支持来领导创新的转化研究议程。不断发展的核心，以提供尖端技术并满足中心成员的需求。该中心还支持一个新的研究项目，该项目使用大部分核心来确定是否脑磁图（MEG）可用于预测一般认知能力和语言特定能力其次，我们将领导一项职业发展计划，以帮助有智力障碍遗传风险的儿童。第三，促进互动与协作，倡导IDD。 CHOP/Penn 及其他机构的研究及其发展，我们将确保 IDD 研究迅速取得进展向广大科学界和非专业受众传播，重点关注 IDD 儿童的家庭。行政核心负责监督 IDDRC 的管理、战略和愿景它将： (1) 提供监督。核心内容包括新用户审核、使用情况审核、用户满意度调查（2） (3) 对研究项目进行监督，包括定期召开进展会议； (3) 对核心进行监督；预算并监控其成本效益； (4) 管理所有与培训相关的活动，包括组织研讨会系列； (5) 维护 IDDRC 和我们的培训计划的网站； (6) 协调会议； (7) 管理与 NICHD 的所有沟通； (8) Foster；与整个网络中的其他 IDDRC 合作； (9) 领导机构、区域和国家宣传活动 (10) 向学术和社区/家庭组织和利益相关者传播研究成果；以及 (11) 组织活动，鼓励核心之间、中心成员之间的联系和协作，以及与 CHOP/宾夕法尼亚大学的其他中心和资源合作。该中心有三个指导原则，首先，我们寻求培育社区，鼓励协作、相互交流。第二，征求我们的建议。咨询委员会帮助中心不断发展，以满足用户和我们的需求最后，我们强调对创新性、转化性研究的支持，这些研究将定义 IDD 的病因学/病理生理学，并为患有 IDD 的儿童和成人提供新的干预措施总的来说，我们的活动主要集中于支持已经发生的研究。可能会对 IDD 患者的生活产生巨大影响。