Subject Registry Core

主题注册核心

• 批准号: 8314044
• 负责人: DEBORAH HATTON
• 金额: $ 53万
• 依托单位: UNIV OF NORTH CAROLINA CHAPEL HILL
• 依托单位国家: 美国
• 资助国家: 美国
• 起止时间: 至
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/8314044
• 关键词: Address; Computers; Data; Databases; Developmental Disabilities; Disease; Exhibits; Family; Geographic Locations; Goals; Grant; Internet; Participant; Preparation; Recruitment Activity; Registries; Research; Research Personnel; Research Project Grants; Research Subjects; Sampling; Source; Subgroup; Technology; Telephone; Update; cost effective; design; interest

E. JUSTIFICATION This SRC is designed to assist investigators with the identification and recruitment of adequate samples of research participants and is particularly helpful in facilitating the study of large samples of selected disorders. The SRC serves as a centralized source for research subjects in a geographic area with numerous investigators studying the same disorders. Currently, the SRC has data on 4,600 potential subjects and is assisting approximately 15-18 projects annually. Two important goals of the Registry are the conservation of research subjects by limiting inappropriate contacts (subjects who do not match research requirements are not contacted) and timely and cost effective recruitment of research participants who are considering participating in research. Another goal of the SRC is to avoid attrition of subjects by contacting families annually to update addresses and phone numbers. An overarching goal of the SRC is to populate our registries with large numbers of appropriate research participants and to provide sufficient characterization for researchers to identify subgroups of interest. Web and computer database technology makes it easy for researchers to identify and access samples of interest.

E.理由 该SRC旨在协助调查人员确定和招募足够的样本 研究参与者，特别有助于促进大量疾病样本的研究。 SRC是地理区域中研究对象的集中式来源 研究人员研究相同的疾病。目前，SRC有4,600个潜在受试者的数据，并且 每年协助大约15-18个项目。 注册表的两个重要目标是通过限制不适当 联系人（不匹配研究要求的受试者未联系），并且及时且具有成本效益 招募正在考虑参与研究的研究参与者。 SRC的另一个目标是 通过每年联系家庭以更新地址和电话号码来避免受试者的流失。一个 SRC的总体目标是通过大量适当的研究填充我们的注册表 参与者并提供足够的表征，以供研究人员识别感兴趣的亚组。网络和 计算机数据库技术使研究人员可以轻松识别和访问感兴趣的样本。