Survivor Stories: Impact on Cancer Patients' QOL and Follow-Up Care

幸存者故事：对癌症患者生活质量和后续护理的影响

• 批准号: 7613000
• 负责人: GRAHAM A. COLDITZ
• 金额: $ 16.27万
• 依托单位: WASHINGTON UNIVERSITY
• 依托单位国家: 美国
• 财政年份: 2003
• 资助国家: 美国
• 起止时间: 2003-09-01 至 2013-08-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/7613000
• 关键词: Address; Adherence; Affect; African American; Aftercare; Archives; Aromatase Inhibitors; Breast; Cancer Center; Cancer Patient; Cancer Survivor; Caring; Caucasians; Caucasoid Race; Collaborations; Communication; Communities; Community Hospitals; Depressed mood; Diagnosis; Diagnostic Neoplasm Staging; Disease; Enrollment; Exposure to; Guidelines; Health Services Accessibility; Healthcare Systems; Incidence; Intervention; Life; Malignant Neoplasms; Mammography; Mediating; Medical Surveillance; National Comprehensive Cancer Network; Newly Diagnosed; Numbers; Outcome; Patients; Personal Satisfaction; Quality of life; Randomized; Rate; Recurrence; Reporting; Screening procedure; Social support; Staging; Standards of Weights and Measures; Survivors; Tablets; Tamoxifen; Upper arm; Videotape; Week; Woman; Work; compliance behavior; coping; dissemination research; experience; follow-up; hormone therapy; inhibitor/antagonist; innovation; laptop; malignant breast neoplasm; mortality; Address; Adherence; Affect; African American; Aftercare; Archives; Aromatase Inhibitors; Breast; Cancer Center; Cancer Patient; Cancer Survivor; Caring; Caucasians; Caucasoid Race; Collaborations; Communication; Communities; Community Hospitals; Depressed mood; Diagnosis; Diagnostic Neoplasm Staging; Disease; Enrollment; Exposure to; Guidelines; Health Services Accessibility; Healthcare Systems; Incidence; Intervention; Life; Malignant Neoplasms; Mammography; Mediating; Medical Surveillance; National Comprehensive Cancer Network; Newly Diagnosed; Numbers; Outcome; Patients; Personal Satisfaction; Quality of life; Randomized; Rate; Recurrence; Reporting; Screening procedure; Social support; Staging; Standards of Weights and Measures; Survivors; Tablets; Tamoxifen; Upper arm; Videotape; Week; Woman; Work; compliance behavior; coping; dissemination research; experience; follow-up; hormone therapy; inhibitor/antagonist; innovation; laptop; malignant breast neoplasm; mortality

Disparities in incidence and mortality between African Americans and Caucasians have been well documented for breast cancer. While incidence rates are lower overall, African American women who are diagnosed with breast cancer tend to be diagnosed with more advanced-stage disease, and mortality from breast cancer is higher among African American women compared with Caucasian women. We propose to evaluate in a randomized controlled trail including 220 women with newly diagnosed breast cancer (stages 0 to ffl), an innovative cancer communication strategy to help African American breast cancer patients cope with a variety of challenges during and after treatment and to better adhere to recommended treatment guidelines and follow-up care during 24 months follow-up. Patients randomly assigned to the intervention arm of the trial will have access to a tablet (laptop) PC on which they will browse an archive of 1-3 minute videotaped survivor stories about five topics: coping, relationships, experiences with the health care system, follow-up care, and quality of life (QOL) living with breast cancer. Patients will have the laptop for two weeks after enrollment in the study, and again at 6 and 12 months. Patients in the control arm will receive usual care. The survivor stories were videotaped and collected as part of the Living Proof study in CECCR I. We will determine whether and to what extent African American breast cancer survivor stories affect: 1) aspects of QOL, depressed mood, concern about recurrence, information sharing and perceived informational social support; 2) African American breast cancer patients' adherence to recommended surveillance mammography and prescribed hormone therapy (e.g., tamoxifen and/or aromatase inhibitors); and 3) whether watching different story topics, identification with storytellers and engagement with the stories mediate the effects of exposure to stories on outcomes in aims 1) and 2). A dissemination aim will, through collaboration with partner Community Cancer Centers, assess ways to deliver African American breast cancer survivor stories to newly diagnosed patients in community hospitals.

非裔美国人和高加索人之间的发病率和死亡率差异很好 记录在乳腺癌中。尽管发病率总体较低，但非洲裔美国妇女是 被诊断出患有乳腺癌的往往会被诊断出患有更晚期的疾病，而死亡率 与高加索妇女相比，非洲裔美国妇女的乳腺癌更高。我们建议 在一条随机控制的小径中评估，包括220名诊断为乳腺癌的女性（阶段） 0至FFL），一种创新的癌症传播策略，可帮助非洲裔美国乳腺癌患者 应对治疗期间和之后的各种挑战，并更好地遵守建议 治疗指南和随访期间的随访。随机分配给 试验的干预部门将可以使用平板电脑（笔记本电脑）PC，他们将浏览档案馆 关于五个主题的1-3分钟录像幸存者的故事：应对，人际关系，与 医疗保健系统，后续护理和生活质量（QOL）患有乳腺癌。患者会有 注册研究后的两周，在6个月和12个月的时间内再次进行笔记本电脑。患者 控制臂将获得常规护理。作为生活的一部分，幸存者的故事被录像和收集 CECCR I的证明研究。我们将确定非裔美国乳腺癌是否以及在何种程度上 幸存者的故事影响：1）QOL的各个方面，情绪低落，对复发的关注，信息共享 并感知的信息社会支持； 2）非洲裔美国乳腺癌患者遵守 建议的监视乳房X线摄影和处方激素治疗（例如，他莫昔芬和/或 芳香酶抑制剂）； 3）观看不同的故事主题，与讲故事的人认同和 与故事的互动调解了故事对目标结果的影响1）和2）。一个 传播目标将通过与合作伙伴社区癌症中心合作评估方法 向社区中新诊断的患者提供非裔美国乳腺癌幸存者的故事 医院。