Creating a Faith-Based Toolbox for African Americans Living with Moderate and Severe Dementia

为患有中度和重度痴呆症的非裔美国人创建基于信仰的工具箱

• 批准号: 10388096
• 负责人: Fayron Recha Epps
• 金额: $ 19.13万
• 依托单位: EMORY UNIVERSITY
• 依托单位国家: 美国
• 财政年份: 2020
• 资助国家: 美国
• 起止时间: 2020-03-15 至 2024-02-29
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/10388096
• 关键词: Adult; Advisory Committees; Affect; African American; African American population; Age; Aging; Alzheimer' s Disease; Alzheimer' s disease related dementia; Area; Assisted Living Facilities; Award; Behavior; Behavioral Symptoms; Belief; Biological; Blood Pressure; Cardiovascular system; Caregiver well-being; Caregivers; Caring; Christianity; Chronic Disease; Church; Climacteric; Clinical; Clinical Trials; Cognitive; Collaborations; Communities; Data; Dementia; Dementia caregivers; Diagnosis; Discipline of Nursing; Disease; Distress; Doctor of Philosophy; Educational workshop; Effectiveness; Elderly; Emotional; Environment; Exposure to; Face; Family; Family Caregiver; Family Practice; Family member; Feasibility Studies; Fright; Galvanic Skin Response; Goals; Health; Home; Individual; Intervention; Interview; Knowledge; Leadership; Learning; Life; Literature; Measures; Medical; Memory; Mental Depression; Mentored Patient-Oriented Research Career Development Award; Mentors; Outcome; Patient Self-Report; Personal Satisfaction; Persons; Physiological; Plague; Problem behavior; Productivity; Program Development; Property; Quality of life; Readiness; Religion; Religion and Spirituality; Religious Belief; Reporting; Research; Research Methodology; Research Personnel; Research Project Grants; Research Training; Resources; Role; Sampling; Self Care; Social support; Stress; Structure; Testing; Time; Training; Transcend; Uncertainty; United States National Institutes of Health; Universities; Vertebral column; Well in self; Work; associated symptom; base; biobehavior; biological adaptation to stress; career; cognitive function; design; effectiveness outcome; experience; family caregiving; feasibility testing; feasibility trial; health care disparity; health disparity; heart rate variability; high risk; implementation research; improved; interest; meetings; member; metropolitan; minority communities; minority engagement; pleasure; positive emotional state; primary caregiver; professor; programs; prototype; psychologic; recruit; research and development; skills; success; therapy development

Project Summary/Abstract Fayron Epps, PhD, RN is an Assistant Professor of Nursing at Georgia State University. Her research focuses on promoting quality of life for older adults living with Alzheimer’s disease and related dementias (ADRD) and their family caregivers through improving self-care and promoting and developing meaningful engagement activities. She is particularly interested in working with and conducting research in faith communities to support African American (AA) families affected by ADRD. Her long-term career goal is to establish herself as a productive, independent gerontologist and leader with expertise in family caregiving and ADRD within the AA community. The candidate proposes a comprehensive training plan that incorporates didactic coursework, hands-on experiences, active participation in seminars and workshops, and dedicated meetings overseen by an interdisciplinary mentor team and advisory committee. Dr. Epps’ training plan immerses three goals: 1) to strengthen skills in biobehavioral research methods with a focus on measuring biological properties related to stress response; 2) to deepen understanding of the role of religiosity for families affected by ADRD; and 3) to continue to strengthen academic productivity and leadership skills. The proposed research includes three aims: 1) develop a prototype faith-based home activity toolkit (Faith-HAT) for AA families living with moderate and severe ADRD; 2) test the feasibility and explore preliminary effectiveness of employing Faith-HAT; and 3) construct a refined toolkit of meaningful faith-based home activities. Georgia State University offers an ideal research environment for the proposed research and training. Study recruitment, retention, and execution will be conducted in collaboration with Emory University Alzheimer’s Disease and Research Center Minority Engagement Core and an Atlanta-based Ministerial Alliance. The proposed research will advance ADRD support by providing AA families with a nonpharmacological intervention and meaningful activities to promote quality of life. This K23 award will give Dr. Epps essential practical experience in the conduct of program development and implementation research, as she will be mentored in developing and implementing a clinical feasibility trial to examine the effect of a home-based religious program on the well-being of AA families affected by ADRD. At the conclusion of this award, the candidate will have obtained the skills, knowledge, and preliminary data to successfully become a full-fledged independent investigator improving the health and well- being of persons with ADRD and their caregivers.

项目概要/摘要 Fayron Epps 博士、注册护士是佐治亚州立大学护理学助理教授，她的研究重点是。 提高患有阿尔茨海默病和相关痴呆症 (ADRD) 的老年人的生活质量，以及 通过改善自我护理以及促进和发展有意义的参与来帮助他们的家庭照顾者 她特别有兴趣与信仰社区合作并进行研究以支持。 受 ADRD 影响的非裔美国人 (AA) 家庭 她的长期职业目标是将自己打造为一名非裔美国人 (AA) 家庭。 高效、独立的老年学家和领导者，在 AA 内拥有家庭护理和 ADRD 方面的专业知识 候选人提出了一个包含教学课程的综合培训计划， 实践经验、积极参与研讨会和讲习班以及由以下人员监督的专门会议 Epps 博士的培训计划包含三个目标：1) 加强生物行为研究方法的技能，重点是测量与 压力反应；2) 加深对宗教信仰对受 ADRD 影响的家庭的作用的理解； 继续加强学术生产力和领导技能 拟议的研究包括三项。 目标：1）为患有中度疾病的 AA 家庭开发基于信仰的家庭活动工具包原型（Faith-HAT） 和严重的ADRD；2）测试可行性并探索采用Faith-HAT的初步有效性；3） 佐治亚州立大学提供了一个理想的构建有意义的基于信仰的家庭活动的精致工具包。 拟议研究和培训的研究环境。 与埃默里大学阿尔茨海默病和少数民族研究中心合作进行 参与核心和亚特兰大部长级联盟拟议的研究将推动 ADRD。 通过为 AA 家庭提供非药物干预和有意义的活动来促进 该 K23 奖项将为 Epps 博士提供开展项目的重要实践经验。 开发和实施研究，因为她将在开发​​和实施临床研究方面得到指导 可行性试验，以检验家庭宗教计划对 AA 家庭福祉的影响 受 ADRD 影响，在该奖项结束时，候选人将获得技能、知识和能力。 初步数据成功成为一名成熟的独立调查员，改善健康和福祉 患有 ADRD 的人及其照顾者。

项目成果

The Alter Program: A Nurse-Led, Dementia-Friendly Program for African American Faith Communities and Families Living With Dementia.

Alter 计划：一项由护士主导、针对患有痴呆症的非裔美国人信仰社区和家庭的痴呆症友好计划。

• 发表时间: 2022-01-01
• 作者: Epps, Fayron;Moore, Miranda;Chester, Mia;Gore, Janelle;Sainz, Mayra;Adkins, Aisha;Clevenger, Carolyn;Aycock, Dawn
• 通讯作者: Aycock, Dawn

A Framework for Mobilizing Health Care to Respond to the Community Within the COVID-19 Pandemic.

动员医疗保健以应对 COVID-19 大流行期间社区的框架。

• 发表时间: 2021-04-01
• 影响因子: 5.5
• 作者: Epps, Fayron;Wiley, Zanthia;Teunis, Larissa J;Johnson 2nd, Theodore M;Patzer, Rachel E;Ofotokun, Igho;Franks, Nicole
• 通讯作者: Franks, Nicole

A Mixed-Methods Formative Evaluation of a Dementia-Friendly Congregation Program for Black Churches.

对黑人教会痴呆症友好会众计划的混合方法形成性评估。

• 发表时间: 2022-04-08
• 作者: Gore, Janelle;Toliver, Jamilla;Moore, Miranda A;Aycock, Dawn;Epps, Fayron
• 通讯作者: Epps, Fayron

"Falling between the cracks": Experiences of Black dementia caregivers navigating U.S. health systems.

“陷入裂缝”：黑人痴呆症护理人员在美国卫生系统中的经历。

• 发表时间: 2022-02
• 影响因子: 6.3
• 作者: Alexander, Karah;Oliver, Sloan;Bennett, Stephanie G;Henry, Jenyl;Hepburn, Kenneth;Clevenger, Carolyn;Epps, Fayron
• 通讯作者: Epps, Fayron

Experiences of Black American Dementia Caregivers During the COVID-19 Pandemic.

COVID-19 大流行期间美国黑人痴呆症护理人员的经历。

• 发表时间: 2022-08
• 作者: Oliver, Sloan;Alexander, Karah;Bennett, Stephanie G;Hepburn, Kenneth;Henry, Jenyl;Clevenger, Carolyn K;Epps, Fayron
• 通讯作者: Epps, Fayron