Alternative Approaches to Supporting ASD Services for Young Adults

支持年轻人 ASD 服务的替代方法

基本信息

批准号：
9769882
负责人：
Lindsay Lawer Shea
金额：
$ 38.59万
依托单位：
DREXEL UNIVERSITY
依托单位国家：
美国
项目类别：
财政年份：
2018
资助国家：
美国
起止时间：
2018-09-01 至 2022-06-30
项目状态：
已结题

来源：
https://reporter.nih.gov/project-details/9769882
关键词：
18 year old Administrator Adolescent Adult Advocacy Advocate Affect Age Age-Years Aging Automobile Driving Behavioral Caring Catalogs Characteristics Childhood Complex Cost Control Data Data Collection Developmental Disabilities Diagnosis Diagnostic Disease Drug Prescriptions Education Eligibility Determination Enrollment Ensure Foundations Funding Healthcare Home environment Hospitalization Impairment Individual Inpatients Insurance Insurance Coverage Intellectual functioning disability Interview Longevity Measures Medicaid Medicaid eligibility Mental Retardation Outpatients Participant Peer Review Policies Prevalence Research Review Literature Risk Service provision Services Source System Time Youth autism spectrum disorder behavioral health care costs care systems child health care service community based service comparison group cost disability experience health care availability health care delivery health care service utilization insight programs waiver young adult

项目摘要

PROJECT ABSTRACT The proposed study requests funding to conduct a detailed comparison of eligibility for healthcare coverage and healthcare service use in the Medicaid system among adolescents with autism spectrum disorder (ASD) as they age into adulthood. Given the recent increased number of adolescents diagnosed with ASD, the lifelong presentation of ASD, and the under-researched changes in the needs of adolescents with ASD as they age, examining healthcare access and service use among adolescents with ASD as they transition into adulthood is critical to developing an efficient and effective system of care. Most states have mechanisms to utilize Medicaid to pay for healthcare for a similar group (adolescents with intellectual disability, or ID) as they age into adulthood but it remains unclear if or how these mechanisms also support aging adolescents with ASD. We propose to use 2006-2014 national Medicaid claims data to identify individuals with ASD between 14 and 18 years of age in 2006 who were followed until they were 22 to 26 years of age in 2014. Specifically, we will compare Medicaid eligibility among adolescents with ASD, including the extent to which they remain eligible for Medicaid-funded services into adulthood compared with adolescents with ID. Differences across states with ASD-specific programs, those that serve individuals with ASD through programs established for ID, and states with no programs will be compared. Many states created new programs during the study period, which will be catalogued to measure impact on adolescents with ASD aging into adulthood. We will also examine differences across states in changes in type and quantity of ambulatory, inpatient and residential services among Medicaid-eligible adolescents with ASD and adolescents with ID as they age into adulthood. Interviews with administrators and advocates in states with the most and least discrepant differences in enrollment and service use for adolescents with ASD and ID will also be conducted. Completion of this study will provide a foundation for how differing state approaches to establishing Medicaid programs impact adolescents with ASD during the transition into adulthood.

项目摘要拟议的研究需要资金来对医疗保险的资格进行详细比较患有自闭症谱系障碍 (ASD) 的青少年在医疗补助系统中的医疗保健服务使用情况当他们步入成年时。鉴于最近被诊断患有自闭症谱系障碍 (ASD) 的青少年数量不断增加，自闭症谱系障碍 (ASD) 的终生表现，以及患有自闭症谱系障碍 (ASD) 青少年的需求变化尚未得到充分研究年龄，检查患有自闭症谱系障碍 (ASD) 的青少年在过渡到成年期对于建立高效且有效的护理系统至关重要。大多数州都有机制利用 Medicaid 为类似群体（智力障碍青少年或 ID）支付医疗费用年龄进入成年期，但目前尚不清楚这些机制是否或如何支持老年青少年自闭症谱系障碍。我们建议使用 2006 年至 2014 年国家医疗补助索赔数据来识别 14 岁之间患有 ASD 的个人 2006 年为 18 岁，2014 年为 22 至 26 岁。具体来说，我们将比较患有 ASD 的青少年的医疗补助资格，包括他们仍然存在的程度与患有智力障碍的青少年相比，他们有资格在成年后享受医疗补助资助的服务。差异拥有 ASD 特定计划的州，即通过针对 ID 制定的计划为 ASD 患者提供服务的州，和没有计划的州将进行比较。许多州在研究期间创建了新项目，将对其进行编目，以衡量对患有自闭症谱系障碍（ASD）青少年进入成年期的影响。我们也会检查各州在门诊、住院和住院的类型和数量变化方面的差异为符合医疗补助资格的自闭症谱系障碍青少年和智力障碍青少年提供服务。对差异最大和最小的州的管理人员和倡导者进行访谈还将对患有自闭症谱系障碍和智力障碍的青少年进行登记和服务使用。完成本研究将为不同州建立医疗补助计划的方法如何影响提供基础成年过渡期间患有自闭症谱系障碍 (ASD) 的青少年。