Conexion: A localized information resource for a low-income Hispanic community

Conexion：针对低收入西班牙裔社区的本地化信息资源

基本信息

批准号：
9761577
负责人：
Rita Kukafka
金额：
$ 9.7万
依托单位：
COLUMBIA UNIVERSITY HEALTH SCIENCES
依托单位国家：
美国
项目类别：
财政年份：
2017
资助国家：
美国
起止时间：
2017-09-12 至 2021-08-31
项目状态：
已结题

来源：
https://reporter.nih.gov/project-details/9761577
关键词：
Address Adoption Clinic Collaborations Communities Cultural Sensitivity Decision Aid Diabetes Mellitus Diagnosis Diffusion Dominican Republic Education Evaluation Family member Geography Goals Health Health Priorities Health education Hispanics Immigrant Improve Access Information Resources Intervention Knowledge Language Librarians Link Low Income Population Low income Maintenance Measures Medical Mental Depression Mental disorders Modeling Neighborhoods New York City Not Hispanic or Latino Nurse Practitioners Outcome Patients Pharmaceutical Preparations Population Primary Health Care Process Provider Public Health Informatics Randomized Controlled Trials Readability Recommendation Reporting Resource Sharing Resources Review Committee Role Self Efficacy Services Site Subgroup Target Populations Testing Time Translations Trust Washington Work base care providers community based service design follow-up health disparity health literacy help-seeking behavior innovation interactive tool member novel online community primary care setting primary endpoint psychological distress service delivery service providers social cognitive theory tool usability user centered design web portal web site

项目摘要

Nationwide, Hispanics have many barriers to accessing health information, and are subject to significant health disparities, including disproportionate burden of diabetes and mental illness. Hispanics are 1.7 times more likely to have been diagnosed with diabetes and 1.4 times more likely to report serious psychological distress, compared to non-Hispanics whites. Lack of access to useful and understandable health information represents a significant health disparity for Hispanics. Tailoring information culturally and geographically, and use of trusted community sites to disseminate information are effective approaches that can improve access to health information and reduce Hispanic health disparities. The goal of our project is to develop, disseminate, and evaluate two novel, contextualized “Conexion” health information resources for a low-income Hispanic population. The essential concept of a Conexion resource is to combine high quality health information resources that are already publicly available (e.g., links to Medline Plus) with local resources, local flavor, and endorsement from locally known trusted entities. To disseminate Conexion resources, we will leverage an existing platform, GetHealthyHeights.org (GHH), which our team developed as an online community to engage people in the Washington Heights-Inwood community to share resources about health. Additional preliminary work for this project includes established partnerships among community based organizations (CBOs), and the GHH Steering Committee, which consists of 24 CBO members. Specific aims are to (1) develop Conexion localized health information resources on diabetes and depression for the existing GHH platform through a participatory, user-centered design process that: (a) engages consumers, service providers, medical experts, and medical librarians, and (b) demonstrates usability and understandability of the final design products; (2) disseminate Conexion to the targeted population of low-income Hispanics in Washington Heights-Inwood through two CBOs, a primary care setting, and direct access through GHH, and apply the RE-AIM framework to assess reach, adoption, implementation, and maintenance of the dissemination strategies; and (3) conduct a randomized controlled trial of 200 consumers to examine impact of Conexion on: (a) depression or diabetes knowledge, (b) self-efficacy to use depression/diabetes information (e.g., to communicate with providers or family members, to seek professional help and services, or to participate in treatment decisions), and (c) patient activation. The primary endpoint for the Aim 3 trial is patient activation, which will be assessed at one- month follow up. We will also examine barriers to implementation and sustainability after the trial ends. This proposal, which involves an active collaboration between CBOs, a medical librarian, and a nurse practitioner primary care provider site, seeks to overcome barriers to health information access in a population of low- income Hispanics. Conexion provides a generalizable model for a health information resource that can be replicated in other communities once it is tested and lessons learned are documented.

在全国范围内，西班牙裔在获取健康信息方面存在许多障碍，并且受到重大健康影响差异，包括糖尿病和精神疾病负担不成比例，是西班牙裔的 1.7 倍。被诊断患有糖尿病的可能性高出 1.4 倍，报告严重心理困扰的可能性高出 1.4 倍，与非西班牙裔白人相比，缺乏获得有用且易于理解的健康信息的机会。西班牙裔人的健康状况存在显着差异。传播信息的值得信赖的社区网站是改善获得医疗服务的有效方法我们项目的目标是开发、传播和减少西班牙裔人的健康差异。评估两本小说，针对低收入西班牙裔的情境化“Conexion”健康信息资源 Conexion 资源的基本概念是结合高质量的健康信息。已经公开可用的资源（例如，Medline Plus 的链接），具有本地资源、本地风格和为了传播 Conexion 资源，我们将利用当地知名可信实体的认可。现有平台 GetHealthyHeights.org (GHH)，我们的团队将其开发为一个在线社区来参与华盛顿高地-因伍德社区的人们分享有关健康的额外初步资源。该项目的工作包括在社区组织 (CBO) 和 GHH 指导委员会由 24 名 CBO 成员组成，具体目标是 (1) 发展 Conexion。通过以下方式为现有 GHH 平台提供有关糖尿病和抑郁症的本地化健康信息资源参与式、以用户为中心的设计过程：(a) 吸引消费者、服务提供商、医学专家、 (2) 和医学图书馆员，以及 (b) 展示最终设计产品的可用性和可理解性；向华盛顿高地-因伍德的低收入西班牙裔目标人群传播 Conexion 通过两个 CBO、一个初级保健机构以及通过 GHH 直接访问，并应用 RE-AIM 框架评估传播策略的覆盖范围、采用、实施和维护；以及 (3) 开展对 200 名消费者进行的随机对照试验，旨在检验 Conexion 对以下方面的影响：(a) 抑郁症或糖尿病知识，(b) 使用抑郁/糖尿病信息的自我效能（例如，与提供者沟通或家庭成员，寻求专业帮助和服务，或参与治疗决策），以及 (c) Aim 3 试验的主要终点是患者激活，将在以下时间进行评估：试验结束后，我们还将检查实施和可持续性的障碍。提案涉及社区组织、医学图书馆员和执业护士之间的积极合作初级保健提供者网站，旨在克服低收入人群获取健康信息的障碍 Conexion 为健康信息资源提供了一个可推广的模型。一旦经过测试并记录经验教训，就会在其他社区进行复制。