XD GrantTransfer #6 from Rush to Rutgers PHS Grant #R01NR014846: Culture and Caregiving Need for Chinese Elderly with Cognitive Impairment

XD 拨款转让

• 批准号: 9754945
• 负责人: XINQI DONG
• 金额: $ 67.94万
• 依托单位: RUTGERS, THE STATE UNIV OF N.J.
• 依托单位国家: 美国
• 财政年份: 2019
• 资助国家: 美国
• 起止时间: 2019-02-14 至 2020-12-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/9754945
• 关键词: Address; Adherence; Adult Children; Belief; Caregiver Burden; Caregivers; Caring; Chicago; China; Chinese People; Communities; Complex; Conflict (Psychology); Data Collection; Dementia; Elderly; Emotional; Family; Formal caregiver; Funding; Future; Generations; Grant; Health; Impaired cognition; Individual; Intervention; Intervention Studies; Investigation; Knowledge; Life; Linguistics; Longitudinal Studies; Medical; Mental disorders; Modeling; Parents; Pathway interactions; Patients; Perception; Personal Satisfaction; Persons; Policies; Policy Maker; Population; Population Study; Preventive Intervention; Principal Investigator; Published Comment; Qualitative Methods; Readiness; Research; Research Personnel; Research Project Grants; Risk; Self Efficacy; Shame; Social Environment; Social Policies; Social Work; Suggestion; Translating; United States National Institutes of Health; Variant; aging population; bilingualism; caregiving; cohesion; community based participatory research; depressive symptoms; expectation; experience; family structure; gender difference; help-seeking behavior; improved; informal caregiver; intergenerational; protective factors; psychological distress; public health relevance; rapid growth; response; skills; social stigma; solidarity; willingness

 DESCRIPTION (provided by applicant): We are grateful for the constructive comments and suggestions from the prior review to improve this application. The overall objective of this resubmission study (R01NR014846) is to conduct a population-level 3-waves longitudinal investigation of 300 adult children caregivers in order to quantify the relations between intergenerational solidarity and needs for caregivers of Chinese older adults with significant cognitive impairment. More specifically, we will conduct three waves of data collection and employ mixed effects models to examine three primary objectives: 1) Quantify the relations between intergenerational solidarity to the trajectory of caregivers' psychological distress; 2) Quantify the relations between intergenerational solidarity and caregivers' preparedness; 3) Quantify the relations between intergenerational solidarity and caregiver's help seeking behaviors in providing care for Chinese older adults with significant cognitive impairment. Our secondary objectives are to: 4) examine the gender differences in the above aims 1-3; and 5) explore the barriers, challenges, and cultural variations in adult children's expectation and adherence of intergenerational solidarity in providing care for Chinese older adults with cognitive impairment. Despite the rapid growth of Chinese populations, there is great paucity in our current understanding of caregivers' needs for Chinese older adults with significant cognitive impairment. Due to cultural beliefs, many families believe dementia is a form of mental illness. The word dementia (¿F) literally translates into two characters: "Crazy and Catatonic". The stigma, shame and negative responses experienced by patients and families interfere with their willingness to seek appropriate medical care. This marked gap in our knowledge is further exacerbated by the linguistic and cultural complexities and nuances when studying these issues. Moreover, there has been inadequate community support necessary to empower the Chinese community to be fully engaged as equal partners in research on culturally sensitive issues. Accordingly, we will leverage principles of community-based participatory research (CBPR) to quantify the relationship between important cultural factors and caregiving needs for Chinese older adults with cognitive impairment. In this application, a bilingual and bicultural principal investigator and an experienced multi-institutional interdisciplinary team will build on our prior NIH funded CBPR projects to collaborate with Chicago Chinese community groups. The findings from this proposal will inform clinician, investigator, community, social services and policy makers to: a) identify risk/protective factors; b) better understand pathways for addressing caregiver needs; c) inform future prevention and intervention studies; and d) inform the practice and policy to improve health and wellbeing in caregiver populations.

 描述（由申请人提供）：我们感谢先前审查中为改进本申请而提出的建设性意见和建议。本次重新提交研究（R01NR014846）的总体目标是对 300 名成年人进行人群水平的 3 波纵向调查。为了量化代际团结与中国患有严重认知障碍的老年人的照顾者需求之间的关系，我们将进行三波数据收集并采用混合效应模型进行检验。三个主要目标： 1) 量化代际团结与照顾者心理困扰轨迹之间的关系； 2) 量化代际团结与照顾者准备之间的关系； 3) 量化代际团结与照顾者在提供照顾时寻求帮助的行为之间的关系。对于患有严重认知障碍的中国老年人，我们的次要目标是：4）检查上述目标 1-3 中的性别差异；5）探讨成人中的障碍、挑战和文化差异。儿童对代际团结在为中国认知障碍老年人提供护理方面的期望和坚持 尽管中国人口数量快速增长，但由于文化观念的原因，我们对护理人员对患有严重认知障碍的老年人的需求知之甚少。 (¿F) 字面意思是两个字符：“疯狂和紧张症”。患者和家人所经历的耻辱、羞耻和消极反应干扰了他们寻求适当医疗护理的意愿，而语言进一步加剧了我们的知识差距。以及学习时的文化复杂性和细微差别此外，缺乏足够的社区支持来让华人社区作为平等的合作伙伴充分参与文化敏感问题的研究。因此，我们将利用基于社区的参与性研究（CBPR）的原则来量化这种关系。在此应用程序中，双语和双文化的首席研究员和经验丰富的多机构跨学科团队将在我们之前 NIH 资助的 CBPR 项目的基础上与芝加哥华人社区团体合作。研究结果该提案将告知临床医生、研究者、社区、社会服务和 政策制定者： a) 识别风险/保护因素； b) 更好地了解解决途径 照护者的需求； c) 为未来的预防和干预研究提供信息；以及 d) 为改善照护者群体的健康和福祉的实践和政策提供信息。