Spanish CD-ROM for Underserved Women With Breast Cancer

面向服务不足的乳腺癌女性的西班牙文 CD-ROM

• 批准号: 6791168
• 负责人: KARYN L ANGELL
• 金额: $ 14.33万
• 依托单位: MPOWER, LLC
• 依托单位国家: 美国
• 财政年份: 2004
• 资助国家: 美国
• 起止时间: 2004-08-01 至 2005-07-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/6791168
• 关键词: DVD /CD ROM; Hispanic Americans; Internet; behavioral /social science research tag; breast neoplasms; clinical research; computer assisted instruction; computer system design /evaluation; culture; educational resource design /development; female; health services research tag; interactive multimedia; interview; medical outreach /case finding; medically underserved population; neoplasm /cancer education; nonEnglish language; patient oriented research; psychological aspect of cancer; questionnaires; rural health; social support network; socioeconomics; women' s health; young adult human (21-34)

DESCRIPTION (provided by applicant): Women with breast cancer require immediate and continuing education and support as an integral part of their oncology treatment. Spanish-speaking Hispanic women experience particularly high levels of psychosocial distress, partially as a result of increased isolation due to culture, language, education, poverty, and immigration status. While some cancer educational resources have been linguistically translated into Spanish, these are only accessible to those who read, which is the case for less than half the immigrant Hispanic population in the US. Even for those who do read, the linguistic translations frequently fall short of accurately conveying the meaning of this cancer information in a culturally understandable way. In this Phase I SBIR, we propose to develop an interactive, culturally and linguistically appropriate, CD-ROM for coping with breast cancer. The program will be adapted in part from an NCI-funded SBIR CD-ROM, "Living With Breast Cancer." The presentation style and format will be changed to meet the needs of Spanish-speaking women who live in rural communities and who have, at most, a 3rd grade education. In particular, information will be presented only in oral format, either in narration or as conversations between women about their experiences with breast cancer, about their struggles to find medical care and support, and about the ways they coped with the disease. Conversations will then lead into particular content and skill areas. Content and stories will be derived from personal interviews and focus groups. The program will be filled with pictures and stories from Latinas in the US who have breast cancer. The navigation will be simple and intuitive, using only a touch screen or a mouse. Since these women are unlikely to have a home computer, computers will be installed in community sites and public health clinics, where support and outreach staff can demonstrate the program and encourage women to use it. The product will be tested in a sample of 30 Spanish-speaking Latinas with breast cancer receiving care at a public health clinic in Woodburn, OR. Commercial applications for this product would be for public health clinics, HMO' s, and other providers, who could then make the program available to their patients either for sale or as part of their education and outreach services.

描述（由申请人提供）：患有乳腺癌的妇女需要立即和继续教育和支持，这是其肿瘤治疗中不可或缺的一部分。讲西班牙语的西班牙裔妇女尤其是由于文化，语言，教育，贫困和移民身份增加的隔离而导致的隔离程度特别高。尽管某些癌症教育资源已在语言上转化为西班牙语，但这些资源只能对阅读者可以使用，而在美国，这是不到一半的移民西班牙裔人口的情况。即使对于那些阅读的人，语言翻译也经常以文化上可以理解的方式准确地传达出这种癌症信息的含义。在此I阶段SBIR中，我们建议开发一种互动性，文化和语言适当的CD-ROM来应对乳腺癌。该计划将部分改编自NCI资助的SBIR CD-ROM“患有乳腺癌”。演讲风格和格式将得到更改，以满足居住在农村社区的讲西班牙语女性的需求，这些妇女最多拥有三年级的教育。特别地，信息将仅以口头形式，无论是在叙事中还是作为女性之间的乳腺癌经历，她们努力寻找医疗保健和支持的努力以及他们应对这种疾病的方式的对话。然后，对话将导致特定内容和技能领域。内容和故事将来自个人访谈和焦点小组。该计划将充满来自美国患有乳腺癌的拉丁裔的图片和故事。仅使用触摸屏或鼠标，导航将是简单而直观的。由于这些女性不太可能拥有家用计算机，因此将安装在社区现场和公共卫生诊所中，在这里，支持和外展人员可以演示该计划并鼓励妇女使用它。该产品将在俄勒冈州伍德本的一家公共卫生诊所的30种讲西班牙语的拉丁裔的样本中进行测试。该产品的商业应用程序将用于公共卫生诊所，HMO和其他提供商，然后他们可以向患者出售或作为其教育和外展服务的一部分提供该计划。