Building Community and Research Engagement among Sexual and Gender Minority Older Adults at Risk for Alzheimer’s Disease and Related Dementias

在有阿尔茨海默病和相关痴呆症风险的性少数群体老年人中建立社区和研究参与

• 批准号: 10685369
• 负责人: Joel G. Anderson
• 金额: $ 72.73万
• 依托单位: EMORY UNIVERSITY
• 依托单位国家: 美国
• 财政年份: 2021
• 资助国家: 美国
• 起止时间: 2021-09-30 至 2024-08-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/10685369
• 关键词: Address; Adult; Affect; Aging; Alzheimer' s Disease; Alzheimer' s disease related dementia; Alzheimer' s disease risk; Cardiovascular Diseases; Caregivers; Caring; Clinic; Clinical; Clinical Research; Clinical Trials; Communities; Community Networks; Community Participation; Data; Data Collection; Dementia caregivers; Development; Diabetes Mellitus; Distress; Documentation; Economics; Elderly; Enrollment; Evaluation; Event; Focus Groups; Funding; Future; Goals; Health; Health education; Heterosexuals; High Prevalence; Hypertension; Impaired cognition; Institution; Intervention Studies; Lesbian Gay Bisexual Transgender; Mental Depression; Modeling; National Institute on Aging; Needs Assessment; Nursing Staff; Output; Parents; Participant; Personal Satisfaction; Persons; Population Heterogeneity; Provider; Psyche structure; Registries; Research; Research Activity; Research Methodology; Research Personnel; Research Project Grants; Resources; Sampling; Services; Sexual and Gender Minorities; Site; Strategic Planning; Surveys; United States National Institutes of Health; aged; cisgender; cohort; community based participatory research; community based service; community building; community organizations; dementia risk; ethnic diversity; experience; gender minority community; gender minority group; health data; health disparity; improved; informal caregiving; interest; member; minority engagement; minority healthcare; minority patient; online registry; outreach program; pilot test; programs; queer; racial diversity; recruit; research and development; research study; retention rate; satisfaction; service providers; sociodemographics; socioeconomics; virtual

Abstract By 2030, there will be nearly six million sexual and gender minority (SGM) older adults aged 50 and older in the U.S. who identify as lesbian, gay, bisexual, transgender, and/or queer. This number will more than double by 2050. Approximately 350,000 SGM older adults in the U.S. currently are living with Alzheimer's disease and related dementias (ADRD), with projections nearing one million by 2030. SGM older adults experience greater health disparities than their heterosexual counterparts. Several recent studies have shown a higher prevalence of risk factors for ADRD, including higher rates of cardiovascular disease, hypertension, diabetes, depression or frequent mental distress, and subjective cognitive decline. In addition, SGM older adults are less likely to have informal caregiving support and for those with caregivers, their caregivers often lack access to inclusive services and resources. Research participation from SGM older adults is extremely limited and the sparse research suggests that SGM older adults are interested in being engaged in research, but concerns regarding the lack of inclusive services and mistrust need to be addressed to improve participation in ADRD research, including clinical trials and intervention research studies. To overcome these barriers to participation in ADRD- related research, this study will implement culturally appropriate and inclusive recruitment strategies aimed at engaging, recruiting, and retaining SGM older adults with ADRD and SGM caregivers in research. This will be accomplished through (1) the development of a national network of existing SGM organizations, programs, and academic institutions to engage SGM people with ADRD and SGM ADRD caregivers in clinical research; 2) establishing a sustainable research registry of SGM people with ADRD and SGM caregivers by developing, implementing, and evaluating tailored recruitment and engagement programs, for use by ADRDc and clinical research institutions; and 3) the development of a replicable model for recruitment and retention of SGM people with ADRD and SGM caregivers in ADRD and aging-related research. Our collaborative team will address the National Institute of Aging's Strategic Directions for Research on Aging “F-3: Develop and implement strategies to increase inclusion of diverse populations in research.”

抽象的 到2030年，将近50岁及50岁以上的性别和性别少数族裔和性别少数民族（SGM） 美国认定是女同性恋，同性恋，双性恋，变性者和/或酷儿。这个数字将两倍多 到2050年，美国大约有350,000名SGM老年人患有阿尔茨海默氏病和 相关痴呆症（ADRD），到2030年，项目接近一百万。SGM老年人的经历更大 健康差异比其异性恋对应物。最近的一些研究表明患病率更高 ADRD的危险因素，包括较高的心血管疾病，高血压，糖尿病，抑郁症 或经常精神困扰和主观认知能力下降。此外，SGM老年人不太可能 得到非正式的护理支持，对于那些有看护人的人，他们的看护人通常无法获得包容性 服务和资源。 SGM老年人的研究参与极为有限，稀疏 研究表明，SGM老年人有兴趣参与研究，但有关 缺乏包容性服务和不信任需要解决，以改善参与ADRD研究， 包括临床试验和干预研究。为了克服这些参与Adrd-的障碍 相关研究，本研究将实施针对的文化适当和包容性的招聘策略 与ADRD和SGM护理人员一起参与，招募和保留SGM老年人。这将是 通过（1）建立了现有SGM组织，计划和的国家网络 与ADRD和SGM ADRD护理人员一起参与SGM人员参与临床研究的学术机构； 2） 通过开发， 实施和评估量身定制的招聘和参与计划，用于ADRDC和临床 研究机构； 3）开发用于招募和保留SGM的可复制模型 ADRD和SGM护理人员在ADRD和与衰老有关的研究中。我们的协作团队将 介绍国家老化研究所的衰老研究“ F-3：开发和 实施将潜水员种群纳入研究的策略。”

项目成果

Advancing Gerontological Health Research With Sexual and Gender Minorities Across the Globe.

• DOI: 10.3928/00989134-20220304-03
• 发表时间: 2022-04
• 期刊: Journal of gerontological nursing
• 影响因子: 1.3
• 作者: Flatt JD;Cicero EC;Kittle KR;Brennan-Ing M;Anderson JG;Wharton W;Hughes TL
• 通讯作者: Hughes TL

Inclusive Care Practices and Policies Among Sexual and Gender Minority Older Adults.

性和性别少数老年人的包容性护理实践和政策。

• DOI: 10.3928/00989134-20221107-03
• 发表时间: 2022
• 期刊: Journal of gerontological nursing
• 影响因子: 1.3
• 作者: Anderson,JoelG;Flatt,JasonD;Cicero,EthanC;Kittle,Krystal;Myers,CaroleR;Rose,KarenM;Wharton,Whitney
• 通讯作者: Wharton,Whitney

Transgender Adults From Minoritized Ethnoracial Groups in the U.S. Report Greater Subjective Cognitive Decline.

美国少数族裔群体的跨性别成年人主观认知能力下降幅度更大。

• DOI: 10.1093/geronb/gbad012
• 发表时间: 2023
• 期刊: The journals of gerontology. Series B, Psychological sciences and social sciences
• 作者: Cicero,EthanC;Lett,Elle;Flatt,JasonD;Benson,GPerusi;Epps,Fayron
• 通讯作者: Epps,Fayron