SIP22-003: Improving and evaluating measures to identify tics and tic disorders including Tourette syndrome in children in epidemiologic studies and clinic settings

SIP22-003：在流行病学研究和临床环境中改进和评估识别儿童抽动和抽动障碍（包括抽动秽语综合征）的措施

• 批准号: 10680513
• 负责人: STEVEN L BARNETT
• 金额: $ 26.29万
• 依托单位: UNIVERSITY OF ROCHESTER
• 依托单位国家: 美国
• 财政年份: 2019
• 资助国家: 美国
• 起止时间: 2019-09-30 至 2024-09-29
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/10680513
• 关键词: SIP22; 003; Improving; evaluating; measures

Deaf sign language users and people with hearing loss comprise health disparity populations overlooked by most public health research, surveillance and programs. The mission of the Rochester Prevention Research Center (RPRC) is to promote health and prevent disease with populations of Deaf American Sign Language (ASL) users and people with hearing loss through community-based participatory research (CBPR). A RPRC goal is to eliminate health disparities experienced by populations of Deaf ASL users and people with hearing loss. RPRC will work to achieve the mission and goal through five aims: Aim 1 -- To administer and maintain RPRC to carry out CBPR with its partner communities; Aim 2 -- To build RPRC capacity for community- engaged public health research and programs, and to scale those programs to reach all who would benefit; Aim 3 -- To build public health and healthcare infrastructure through training programs that increase the nation's capacity to: 1) conduct health promotion programs designed to reach deaf people and people with hearing loss, and 2) include deaf people and people with hearing loss in the public health workforce; Aim 4 -- To disseminate RPRC products and services to key audiences; Aim 5 -- To conduct an applied public health prevention research project to further the implementation, dissemination, and translation into practice of Deaf Weight Wise (DWW), an evidence-based intervention to promote healthy physical activity, diet and weight with Deaf ASL users. The overall goal of this RPRC implementation research project is to study with diverse partners the approaches and strategies that lead to successful implementation of DWW. This research is responsive to the Deaf community in that it focuses on: 1) obesity, a health disparity that the Deaf community selected as a research priority, 2) implementation and the request that RPRC translate DWW from research into a health program that is available to those who would benefit, and 3) scalability and the request that the benefits of RPRC research be extended to reach Deaf communities outside of Rochester NY. RPRC accomplishments at the end of this funding period will include: enhanced capacity for CBPR with communities of Deaf sign language users and people with hearing loss; data to inform implementation strategies and scale to connect Deaf Weight Wise programs with deaf communities; expanded RPRC reach, with stronger and new partnerships with deaf communities and implementation partners within and outside of Rochester NY; communications and products, in English and American Sign Language, to inform communities, researchers, and other stakeholders of RPRC methods, results, programs, and services. RPRC activities support the Healthy People 2020 (HP2020) goal to promote the health and well-being of people with disabilities. RPRC research aligns with CDC Chronic Disease Prevention Domains, CDC HI-5 interventions, and other HP2020 goals.

聋哑语言使用者和听力损失的人包括健康差异人群 大多数公共卫生研究，监视和计划。罗切斯特预防研究的任务 中心（RPRC）是通过聋人手语促进健康和预防疾病 （ASL）通过基于社区的参与研究（CBPR）的用户和听力损失的人。 RPRC 目标是消除聋哑用户和有听力的人所经历的健康差异 损失。 RPRC将通过五个目标来实现任务和目标：目标1-管理和维护 RPRC及其合作伙伴社区进行CBPR；目标2-建立RPRC的社区能力 - 参与公共卫生研究和计划，并扩展这些计划以达到所有受益的人； 目标3-通过增加培训计划来建立公共卫生和医疗基础设施 国家的能力：1）进行健康促进计划，旨在吸引聋人 听力损失，以及2）包括聋人和公共卫生劳动力中听力损失的人；目标4- 向关键受众传播RPRC产品和服务；目标5-进行应用公共卫生 预防研究项目，以进一步实施，传播和翻译为聋人实践 重量明智（DWW），这是一种基于证据的干预措施，可促进健康的体育锻炼，饮食和体重 聋哑用户。该RPRC实施研究项目的总体目标是研究多样 构成导致成功实施DWW的方法和策略。这项研究是 对聋人社区的反应很大，因为它的重点是：1）肥胖，聋人社区的健康差异 被选为研究优先事项，2）实施和RPRC从研究中转化DWW的要求 进入一个将受益的人使用的健康计划，以及3）可伸缩性和要求 RPRC研究的好处可扩展到纽约州罗切斯特以外的聋人社区。 RPRC 在此资助期结束时的成就将包括：CBPR的增强能力与社区 聋人手语使用者和听力损失的人；数据以告知实施策略并扩展 将聋人体重的计划与聋人社区联系起来；扩大RPRC覆盖范围，具有更强和新的 纽约州罗切斯特内外的聋人社区和实施伙伴的合作伙伴关系； 英语和美国手语的通讯和产品，以告知社区，研究人员， 以及RPRC方法，结果，程序和服务的其他利益相关者。 RPRC活动支持 健康人2020（HP2020）的目标是促进残疾人的健康和福祉。 RPRC 研究与CDC慢性疾病预防结构域，CDC HI-5干预措施和其他HP2020保持一致 目标。