Trauma-Informed Investigation of TGNBI Experiences in HIV Stigma Research

TGNBI 在 HIV 耻辱研究中的经历的创伤知情调查

基本信息

批准号：
10548304
负责人：
Sarit A Golub
金额：
$ 27.3万
依托单位：
HUNTER COLLEGE
依托单位国家：
美国
项目类别：
财政年份：
2022
资助国家：
美国
起止时间：
2022-07-01 至 2024-06-30
项目状态：
已结题

来源：
https://reporter.nih.gov/project-details/10548304
关键词：
Address Area Attention Behavior Black race Caring Communities Consensus Data Data Collection Delphi Technique Discrimination Disease Emotional Ensure Epidemiology Family Foundations Gender Identity Guidelines HIV Health Health Personnel Health Professional Health behavior Individual Intervention Interview Investigation Measurement Measures Mental Health Methodology Participant Perception Play Population Process Protocols documentation Recommendation Recording of previous events Research Research Methodology Research Personnel Risk Factors Role Science Stigmatization Surveys Techniques Time Trauma United States National Institutes of Health data quality design emotional distress evidence base evidence based guidelines experience health equity health inequalities improved minority stress multidisciplinary negative affect people of color perceived discrimination person centered protective factors recruit repository sexual violence social stigma tool transgender transgender women willingness

项目摘要

7. PROJECT SUMMARY Transgender and non-binary individuals (TGNBI) have received increasing attention within HIV research, with studies documenting the pervasive role stigma plays in creating and sustaining health inequities. However, the proliferation of HIV stigma research with this population has also raised concerns about research practices that may unintentionally stigmatize or re-traumatize the very communities they are designed to benefit. Conducting stigma research is critical for generating accurate information about HIV epidemiology, risk and protective factors, and intervention strategies for TGNBI. Yet little, if any, research has directly examined the experiences of TGBNI when participating in these studies, or identified specific research practices (e.g., recruitment materials/study framing, choice of specific survey measures, data collection protocols, researcher behaviors) that may influence study participation, retention, and data quality. Equally important, research has not adequately examined the potential for unintended harm due to emotional distress experienced by participating in such research and what specific strategies might mitigate against potential distressful research experiences. To make meaningful strides in stigma research, it is imperative to develop a set of empirically-grounded practical recommendations for conducting this research with TGNBI in a manner that is person-centered, trauma informed, and actively de-stigmatizing. This area of inquiry is timely and particularly relevant given the NIH’s commitment to building investigators’ capacity for conducting intersectional multidisciplinary stigma research. In October 2021, the NIH released a Stigma and Discrimination Research Toolkit, which is an important contribution to health-related stigma research and represents a foundational shift towards addressing stigma through a health equity framework. However, one of the critical gaps in this toolkit is the lack of research examining experiences of stigma within the research context and identifying strategies for improving data quality and reducing unintentional harm in study recruitment, methodology, and/or implementation. As such, the specific aims of this exploratory R21 project are to: (1) Conduct in-depth interviews with TGNBI, stratified by gender identity and HIV status, to better understand how TGNBI understand and experience participation in HIV related stigma and discrimination research; (2) Conduct in-depth interviews with both investigators who conduct HIV-related stigma and discrimination research with TGNBI and mental health professionals who provide care to TGNBI to better understand perceptions of and experiences with conducting stigma and discrimination research with TGNBI, and compile existing strategies for mitigating harm; and (3) Utilize a modified Delhi technique to develop a set of empirically-informed guidelines for conducting HIV stigma research with TGNBI. The present study will be the first (to our knowledge) to develop evidence-based research guidelines to: a) increase researchers’ capacity to recruit and retain TGNBI in HIV-related stigma research, b) enhance the quality of data collected; and c) reduce unintentional harm in HIV stigma research methodology.

7. 项目概要跨性别者和非二元个体（TGNBI）在艾滋病毒研究中受到越来越多的关注，研究记录了耻辱在造成和维持健康不平等方面所发挥的普遍作用。艾滋病毒耻辱研究在这一人群中的激增也引起了人们对研究实践的担忧可能会无意中使他们本来要受益的社区受到侮辱或再次受到伤害。污名研究对于生成有关艾滋病毒流行病学、风险和保护的准确信息至关重要然而，很少有研究直接检验这些经历。 TGBNI 在参与这些研究时，或确定具体的研究实践（例如，招募材料/研究框架、具体调查措施的选择、数据收集协议、研究人员行为）这可能会影响研究参与、保留和数据质量。同样重要的是，研究还不够充分。研究了因参与此类活动而经历的情绪困扰造成意外伤害的可能性研究以及哪些具体策略可以减轻潜在的令人痛苦的研究经历。污名化研究取得有意义的进展，当务之急是开发一套以经验为基础的实用方法以以人为本、创伤的方式与 TGNBI 进行这项研究的建议考虑到 NIH 的情况，这一领域的调查是及时且特别相关的。致力于培养研究者进行跨学科耻辱研究的能力。 2021年10月，NIH发布了耻辱和歧视研究工具包，这是一个重要贡献与健康相关的耻辱研究，代表着通过健康问题解决耻辱的根本性转变然而，该工具包的关键差距之一是缺乏研究审查经验。消除研究背景下的耻辱感，并确定提高数据质量和减少研究招募、方法和/或实施中的无意伤害因此，本研究的具体目标。探索性 R21 项目旨在： (1) 与 TGNBI 进行深入访谈，按性别认同和艾滋病毒进行分层状态，以更好地了解 TGNBI 如何理解和体验参与艾滋病毒相关的耻辱和歧视研究；(2) 对进行艾滋病毒相关耻辱的两名调查人员进行深入访谈与 TGNBI 和为 TGNBI 提供护理的心理健康专业人员进行歧视研究，以便更好地了解与 TGNBI 进行耻辱和歧视研究的看法和经验，以及编制现有的减轻伤害战略；以及 (3) 利用改进的德里技术制定一套与 TGNBI 一起开展艾滋病毒耻辱研究的经验指导方针本研究将是首先（据我们所知）制定循证研究指南，以： a) 提高研究人员的能力招募并保留 TGNBI 参与艾滋病毒相关耻辱研究，b) 提高收集数据的质量，c) 减少；艾滋病毒耻辱研究方法中的无意伤害。