Dissemination and Outreach Core

传播和外展核心

• 批准号: 10523405
• 负责人: Lauren Franz
• 金额: $ 12.15万
• 依托单位: DUKE UNIVERSITY
• 依托单位国家: 美国
• 财政年份: 2017
• 资助国家: 美国
• 起止时间: 2017-09-07 至 2027-08-31
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/10523405
• 关键词: Address; Advocate; Awareness; Biological Markers; Brain; Businesses; Child; Clinic; Clinical Sciences; Clinical Trials; Collaborations; Communication; Communities; Computing Methodologies; Data Analyses; Early identification; Education; Effectiveness; Ensure; Event; Family; Family member; Funding; Goals; Government; Health Personnel; Health Services Accessibility; Healthcare; Historically Black Colleges and Universities; Home; Individual; Institutes; International; Intervention; Investigation; Lead; Life; Monitor; Nonprofit Organizations; North Carolina; Outcome; Outcome Measure; Parents; Participant; Persons; Phase; Policies; Postdoctoral Fellow; Press Releases; Program Development; Provider; Quality of life; Racial Equity; Research; Research Personnel; Research Priority; Research Support; Scientist; Screening procedure; Sensory; Sports; Stratification; Students; Translating; Translational Research; Underrepresented Populations; United States National Institutes of Health; Universities; Vision; Work; adult with autism spectrum disorder; advocacy organizations; autism community; autism spectrum disorder; autistic; autistic children; behavioral outcome; biomarker discovery; brain based; career; career development; clinical care; community engaged research; community engagement; data management; digital health; dissemination science; ethnic diversity; faculty research; improved; individuals with autism spectrum disorder; innovation; insight; interest; novel; outreach; recruit; risk benefit ratio; screening; social media; symposium; tool; trend; web site

ABSTRACT – Dissemination and Outreach Core The overall goal of the Duke Autism Center of Excellence (ACE) is to use a translational digital health and computational approach to address the critical need for effective autism screening tools, objective outcome measures, and brain-based biomarkers that can be used in clinical trials with young autistic children. The Dissemination and Outreach Core (DOC) will support this effort in three ways. First, we will facilitate communication of findings to a wide range of audiences, including scientists, practitioners, educators, legislators, autistic people and their families, and the public. Second, the DOC will promote bi-directional communication between ACE investigators and the community of autistic individuals and family members. We will engage in a wide range of community engagement activities that support our relationships and communication with the community. We will promote bi-directional communication through the ACE’s racially, culturally, and ethnically diverse Community Engagement Advisory Board (CEAB), which includes self-advocates, parents, educators, policy leaders, healthcare providers, and business leaders. Two-way communication also will be promoted by leveraging our existing strong partnerships with national and state-level government organizations, autism advocacy organizations, and education nonprofit organizations. We will continue our partnerships with organizations internal to Duke, such as the Community Engaged Research Initiative (CERI) of the Duke Clinical and Translational Science Institute (CTSI). Third, the DOC will support the careers of students, postdoctoral fellows, and early-stage investigators, and in collaboration with the Administrative Core, implement strategies to increase the number of staff, students, and investigators from underrepresented groups and the autistic community. To promote diversity in the autism research workforce, we will leverage the CTSI’s Duke-North Carolina Central University (NCCU) Bridge Office to support research collaborations with investigators and trainees at NCCU, a local historically Black university. We will leverage existing ACE, departmental, university, and national initiatives to promote equity and inclusion. Through collaboration with Duke Neurodiversity Connections and the NC Autistic Career Summit, we will support the careers of neurodiverse students. The DOC will also oversee and monitor progress toward our Plan for Enhancing Diverse Perspectives. The DOC will work with the Data Management and Analysis Core (DMAC) to track effectiveness of dissemination activities and diversity trends for staff, learners, faculty, and research participants, and if goals are not being met, will implement new strategies to reach its goals.

摘要 – 传播和外展核心 杜克大学自闭症卓越中心 (ACE) 的总体目标是利用转化型数字健康和 计算方法可满足对有效自闭症筛查工具、客观结果的迫切需求 措施以及可用于自闭症儿童临床试验的基于大脑的生物标志物。 传播和外展核心（DOC）将以三种方式支持这一努力：首先，我们将提供便利。 向广泛的受众传达研究结果，包括科学家、从业者、教育工作者、立法者、 其次，DOC 将促进自闭症患者及其家人和公众的双向沟通​​。 我们将在 ACE 调查人员与自闭症患者及其家庭成员社区之间开展一项活动。 广泛的社区参与活动，支持我们与社区的关系和沟通 我们将通过 ACE 的种族、文化和民族促进双向沟通。 多元化的社区参与咨询委员会 (CEAB)，其中包括自我倡导者、家长、教育工作者、 政策领导人、医疗保健提供者和商业领袖之间的双向沟通​​也将得到促进。 利用我们与国家和州级政府组织现有的强有力的伙伴关系，自闭症 我们将继续与倡导组织和教育非营利组织合作。 杜克大学内部组织，例如杜克大学临床的社区参与研究计划 (CERI) 第三，DOC 将支持学生、博士后的职业生涯。 研究员和早期研究人员，并与行政核心合作，实施战略 增加来自代表性不足群体和自闭症患者的教职员工、学生和调查人员的数量 为了促进自闭症研究队伍的多样性，我们将利用 CTSI 的杜克-北校区。 卡罗莱纳中央大学 (NCCU) 桥梁办公室支持与研究人员和 NCCU 是当地一所历史悠久的黑人大学，我们将利用现有的 ACE、院系、大学、 通过与杜克大学神经多样性合作促进公平和包容性的国家举措。 连接和北卡罗来纳州自闭症职业峰会，我们将支持神经多元化学生的职业生涯。 还将监督和监测我们的《增强多元化观点计划》的进展情况。商务部将发挥作用。 与数据管理和分析核心（DMAC）一起跟踪传播活动的有效性和 员工、学习者、教师和研究参与者的多样性趋势，如果目标没有实现，将会 实施新战略以实现其目标。