Detecting Alzheimer's Disease and Related Dementias in Rural Underserved Communities through Community Based Participatory Research

通过基于社区的参与性研究检测农村服务不足社区的阿尔茨海默病和相关痴呆症

• 批准号: 9976420
• 负责人: Lisa Ann Wiese
• 金额: $ 12.64万
• 依托单位: FLORIDA ATLANTIC UNIVERSITY
• 依托单位国家: 美国
• 财政年份: 2019
• 资助国家: 美国
• 起止时间: 2019-07-15 至 2022-02-28
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/9976420
• 关键词: Achievement; Active Learning; Adherence; Administrator; Aging; Alzheimer disease detection; Alzheimer' s Disease; Alzheimer' s disease diagnosis; Alzheimer' s disease related dementia; Alzheimer' s disease risk; Awareness; Behavior; Caring; Cervical Cancer Screening; Church; Clinical Research; Cognitive; Collaborations; Communities; Counseling; Dementia; Detection; Development; Development Plans; Diabetes Mellitus; Diagnosis; Discipline of Nursing; Disclosure; Disease; Early Diagnosis; Early Intervention; Early treatment; Educational Intervention; Elderly; Emotional; Environment; Evaluation; Face; Faculty; Florida; Frequencies; Funding; Geriatric Nursing; Goals; Grant; Happiness; Health; Health Personnel; Home visitation; Individual; Institutes; Institution; Institutionalization; Insurance; Intervention; Intervention Studies; K-Series Research Career Programs; Kentucky; Knowledge; Leadership; Learning; Long-Term Care; Malignant Neoplasms; Medicine; Mentors; Methodology; Modeling; Multicenter Studies; National Institute on Aging; Newsletter; Nurse Practitioners; Nurses; Nursing Research; Office Nursing; Older Population; Pap smear; Participant; Patients; Perception; Pilot Projects; Policy Developments; Population; Populations at Risk; Positioning Attribute; Preparation; Prevention; Process; Provider; Publications; Research; Research Design; Research Personnel; Research Proposals; Risk; Rural; Rural Appalachia; Rural Minority; Rural Population; Scholarship; Science; Secure; Signs and Symptoms; Site; Statistical Models; Surveys; Symptoms; Teacher Professional Development; Telephone; Testing; Training; Transportation; Travel; Underserved Population; Universities; Update; Woman; accurate diagnosis; aging in place; base; care costs; care providers; career; career development; cognitive benefits; community based participatory research; cost; dementia risk; design; early screening; empowered; ethnic diversity; experience; faith-based intervention; health disparity; improved; meetings; mild cognitive impairment; preference; professor; programs; recruit; rural dwellers; rural setting; rural underserved; screening; screening program; skills; statistics; summer research

Project Summary There is currently no effective methodology for early detection and treatment of Alzheimer’s disease in rural minority older adults, despite their increased risk. The overall objective of this K01 is to propel the development of Dr. Lisa Wiese as an independent researcher in community based participatory research (CBPR) interventions that position her for achieving her career goal of empowering these underserved residents to age-in-place and delay costly institutionalization. Research: The proposed research, Detecting Alzheimer's Disease and Related Dementias in Rural Underserved Communities through Community Based Participatory Research adapts Schoenberg’s proven model of faith-based interventions of education, screening, and referral for rural Appalachian residents (Faith Moves Mountains [FMM] 2009, 2011, 2012, 2016), to a different population and disease. We will apply the FMM intervention to increase a) AD knowledge and awareness of benefits of cognitive screening b) cognitive screening frequency among rural, minority and older adults (SA1). We will assess acceptance of dementia risk disclosure and referral, and evaluate adherence for follow-through with providers (SA2). We will examine the impact of FMM on local healthcare providers’ rates of AD diagnosis and treatment of both referred and non-referred patients (SA3). The findings from this study will inform the discovery of best practices for detection, diagnosis, and early intervention for rural and minority older populations at risk for AD; two groups vastly underrepresented in AD research. Candidate: Dr. Wiese is in her fourth year as an Assistant Professor of Nursing at Florida Atlantic University. Four training goals are designed to enhance her trajectory toward becoming an independent, successfully funded investigator: 1. Gain expertise in CBPR for designing and testing a culturally relevant intervention. 2. Enhance skills in developing advanced statistical models for analyzing intervention research. 3. Expand understanding of state of the science regarding aging, health disparities, and AD. 4. Develop leadership skills for executing multicenter studies and mentoring junior researchers. Mentors/Environment: The current career development plan includes experiential learning with Dr. Galvin (as the primary mentor) in his clinical research setting. It also includes training in CBPR, learning advanced statistics through completion of well-established academic coursework, updating knowledge regarding science of aging, disease, and disparities through attendance at National Institute of Aging and Hartford Institutes, and increasing skills as a leader and scholar through monthly Skype or face-to-face meetings with the co-mentor Dr. Lingler, and collaborators Drs. Schoenberg and Williams. Dr. Wiese will continue to receive support from her own institution through internal grants, faculty education, and travel for networking and scholarship. The Office of Nursing Research and Scholarship, which assisted Dr. Wiese with successfully securing several previous small grants, including a summer research release, and multiple publications, has multiple avenues to support junior faculty.

项目概要 目前农村地区阿尔茨海默病尚无有效的早期发现和治疗方法 尽管少数族裔老年人的风险增加，但 K01 的总体目标是推动发展。 Lisa Wiese 博士作为社区参与性研究 (CBPR) 的独立研究员 干预措施使她能够实现她的职业目标，即帮助这些服务不足的居民 就地年龄并延迟昂贵的收容研究：拟议的研究，检测阿尔茨海默氏症。 通过社区参与解决农村服务不足社区的疾病和相关痴呆症 研究采用了勋伯格经过验证的基于信仰的教育、筛查和转介干预模型 对于阿巴拉契亚农村居民（Faith Moves Mountains [FMM] 2009、2011、2012、2016）， 我们将应用 FMM 干预措施来提高 a) AD 知识和意识。 认知筛查的好处 b) 农村、少数民族和老年人的认知筛查频率 (SA1)。 我们将评估对痴呆症风险披露和转介的接受程度，并评估后续行动的依从性 我们将研究 FMM 对当地医疗保健提供者 AD 诊断率的影响。 转诊和非转诊患者的治疗（SA3） 本研究的结果将为 发现农村和少数民族老年人检测、诊断和早期干预的最佳实践 患有 AD 的人群；在 AD 研究中，有两个群体的代表性严重不足：Wiese 博士属于她的研究对象。 在佛罗里达大西洋大学担任护理学助理教授的第四年，设计了四个培训目标。 为了增强她成为一名独立的、成功资助的研究者的轨迹： 1. 获得专业知识 CBPR 设计和测试文化相关干预措施 2. 增强开发高级技能。 分析干预研究的统计模型。 3. 扩大对科学现状的理解。 4. 培养执行多中心研究和治疗的领导技能。 指导初级研究人员/环境：当前的职业发展计划包括 它还包括在高尔文博士（作为主要导师）的临床研究环境中进行体验式学习。 CBPR 培训，通过完成完善的学术课程学习高级统计学， 通过参加国家级会议更新有关衰老、疾病和差异的科学知识 老龄化研究所和哈特福德研究所，通过每月 Skype 提高领导者和学者的技能 或与联合导师林格勒博士以及合作者勋伯格博士和威廉姆斯博士进行面对面的会议。 维斯将继续通过内部教职员工资助、教育和培训获得她所在机构的支持。 护理研究和奖学金办公室，协助博士。 Wiese 之前成功获得了几笔小额资助，包括夏季研究发布，以及 发表多种出版物，有多种途径支持初级教师。