California Precision Medicine Research Program Consortium

加州精准医学研究计划联盟

• 批准号: 9893367
• 负责人: HODA A ANTON-CULVER
• 金额: $ 1200万
• 依托单位: UNIVERSITY OF CALIFORNIA, SAN DIEGO
• 依托单位国家: 美国
• 财政年份: 2018
• 资助国家: 美国
• 起止时间: 2018-04-01 至 2023-03-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/9893367
• 关键词: California; Catchment Area; Enrollment; Health; Individual; Institution; Medical center; Participant; Patient Recruitments; Population; Privacy; Research; Research Personnel; Resources; Risk Assessment; Sampling; Science; Vision; base; citizen science; flexibility; health data; improved; innovation; multidisciplinary; precision medicine; preservation; programs; recruit; tool

The All of UsSM Research Program is an ambitious and innovative initiative that requires flexibility in the way participants are approached, enrolled and engaged. A one-size-fits-all may not work for an initiative that strives to recruit a large representative sample of the U.S. population, as participant cultural and other differences may require adaptation to support inclusivity. Authorized individuals from any institution will be able to access this valuable resource, and the value proposition for participating institutions relies on a shared vision of how All of Us will advance research and improve health. We assembled a multidisciplinary team of Regional Medical Centers (RMCs) in a large consortium of organizations in California. The All of Us California Precision Medicine Consortium (CAPMC) epitomizes All of Us: (1) we have a large base from which to recruit participants in a state that is committed to enhancing high quality research, and scientific excellence leading to generalizability of findings; (2) the populations in our catchment areas are among the most diverse in the world; and (3) we believe that All of Us’s intent to provide health data, risk assessment for particular conditions, and tools for participants, citizen scientists, and researchers to make simple queries and obtain aggregate results in a privacy-preserving manner is critical to the advancement of science.

All of UsSM 研究计划是一项雄心勃勃的创新举措，需要灵活的方式 接触、注册和参与的参与者可能不适合一项努力的倡议。 招募大量具有代表性的美国人口样本，因为参与者的文化和其他差异可能 需要进行调整以支持包容性。任何机构的授权个人都可以访问此内容。 宝贵的资源，参与机构的价值主张依赖于共同的愿景：所有 我们将推进研究并改善健康状况，我们组建了一支由区域医疗组成的多学科团队。 位于加利福尼亚州的大型组织联盟的中心 (RMC)。 医学联盟 (CAPMC) 是我们所有人的缩影：(1) 我们拥有庞大的招募基地 致力于提高高质量研究和科学卓越性的国家的参与者 研究结果的普遍性；(2) 我们流域的人口是世界上最多样化的； (3) 我们相信我们所有人都愿意提供健康数据、特定情况的风险评估，以及 为参与者、公民科学家和研究人员提供简单查询并获得汇总结果的工具 保护隐私的方式对于科学的进步至关重要。