Cherokee Nation Health Analytics Core (CNHAC) Capacity Building Project

切罗基国家健康分析核心 (CNHAC) 能力建设项目

• 批准号: 9566251
• 负责人: Amanda E Janitz
• 金额: $ 55.76万
• 依托单位: CHEROKEE NATION
• 依托单位国家: 美国
• 资助国家: 美国
• 起止时间: 至
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/9566251
• 关键词: Address; Adherence; Age; Agreement; Alaska Native; American Indians; Area; Behavioral; Breast Cancer Treatment; Cancer Burden; Cherokee Indian; Cherokee Nation, Oklahoma; Clinical; Clinical Data; Clinical Treatment; Community Health Centers; Computerized Medical Record; Country; County; Data; Data Linkages; Data Set; Diagnosis; Enrollment; Feasibility Studies; Geographic state; Goals; Health; Health Information System; Health Insurance; Health Sciences; Health Service Area; Health care facility; Health system; Healthcare; Healthcare Systems; Hospitals; Human Resources; Incidence; Link; Malignant Neoplasms; Modernization; Monitor; Native Americans; Obesity; Oklahoma; Paper; Physicians; Policies; Population; Protocols documentation; Provider; Public Health; Records; Registries; Research; Research Infrastructure; Research Personnel; Resource Development; Risk Factors; SEER Program; Smoking; System; Testing; Treatment outcome; Tribes; United States; Universities; Woman; anticancer research; cancer diagnosis; cancer survival; cancer therapy; college; computing resources; data access; data exchange; data registry; data warehouse; experience; follow-up; health data; malignant breast neoplasm; member; mortality; neoplasm registry; physical inactivity; population based; research study; standard of care; tribal Nation; tribal community; tribal organization; validation studies; working group

Among American Indians/Alaska Natives (AI/AN), Oklahoma had the 5th highest age-adjusted incidence rate of any cancer in the US (584.3 per 100,000 in Oklahoma v. 304.8 per 100,000 in the US) from 1999-2012 and AI/ANs in the US rank poorly in cancer survival. In addition, Oklahoma ranks poorly in many health-related factors compared to other states in the US, including overall health, cancer mortality, lack of health insurance, obesity, physical inactivity, and smoking, among others, which may be related to cancer incidence and survival. In 1997, the Cherokee Nation established the first and only tribally-operated population-based Surveillance Epidemiology and End Results (SEER) cancer registry in the country, including cancer cases residing in the 14-county Cherokee Nation Tribal Jurisdictional Service Area (CNTJSA) in Northeastern Oklahoma. Many AI/ANs who reside in the CNTJSA receive treatment for their cancer at facilities outside of the Cherokee Nation health system. Thus, the CNCR needs to be linked with clinical treatment and outcomes data from health facilities both inside and outside of Cherokee Nation health system to obtain extensive follow- up and information on behavioral and other risk factors. The proposed Cherokee Nation Health Analytics Core (CNHAC) aims to build capacity by addressing the following specific aims: 1) Establish infrastructure at Cherokee Nation and the University of Oklahoma Health Sciences Center College of Public Health to develop the CNHAC through conversion of physical space, hiring data coordinators, providing computing resources, and development of a data access working group; 2) Develop policies and protocols for accessing and linking electronic health data from various health facilities including CNCR, Cherokee Nation EMR, OCCR, and MyHealth; 3) Link CNCR records with Cherokee Nation EMR and external health data from MyHealth to be used in future research studies; 4) Use the following research question focused on breast cancer to test the policies and protocols developed for secondary use of clinical data for research and to evaluate the validity and completeness of the data linkage: What factors influence adherence to standard of care for breast cancer treatment for women in Cherokee Nation?.

在美洲印第安人/阿拉斯加原住民 (AI/AN) 中，俄克拉荷马州的年龄调整发病率排名第五 1999 年至 2012 年期间，美国任何癌症的发生率（俄克拉荷马州每 10 万人中 584.3 例，美国每 10 万人中 304.8 例） 美国的 AI/AN 在癌症生存率方面排名较差。此外，俄克拉荷马州在许多与健康相关的方面排名较差 与美国其他州相比的因素，包括整体健康状况、癌症死亡率、缺乏健康保险、 肥胖、缺乏运动和吸烟等可能与癌症发病率和 生存。 1997 年，切罗基族建立了第一个也是唯一一个以部落为基础的人口管理机构。 该国的流行病学监测和最终结果 (SEER) 癌症登记处，包括癌症病例 居住在东北部切罗基民族部落管辖服务区 (CNTJSA) 的 14 个县 俄克拉荷马州。许多居住在 CNTJSA 的 AI/AN 在 CNTJSA 以外的机构接受癌症治疗 切罗基民族卫生系统。因此，CNCR 需要与临床治疗和结果联系起来 来自切罗基族卫生系统内部和外部卫生机构的数据，以获得广泛的跟踪 有关行为和其他风险因素的信息。拟议的切罗基民族健康分析核心 (CNHAC) 旨在通过实现以下具体目标来建设能力： 1) 建立基础设施 切罗基族和俄克拉荷马大学健康科学中心公共卫生学院合作开发 CNHAC通过转换物理空间、聘请数据协调员、提供计算资源、 建立数据访问工作组； 2) 制定访问和链接的政策和协议 来自各种医疗机构的电子健康数据，包括 CNCR、Cherokee Nation EMR、OCCR 和 我的健康； 3) 将 CNCR 记录与 Cherokee Nation EMR 和来自 MyHealth 的外部健康数据链接起来 用于未来的研究； 4) 使用以下针对乳腺癌的研究问题来测试 为临床数据的二次使用而制定的政策和协议用于研究并评估其有效性和 数据关联的完整性：哪些因素影响乳腺癌护理标准的遵守情况 切罗基族妇女的待遇？