Family Outcomes in Autism Spectrum Disorders

自闭症谱系障碍的家庭结局

基本信息

批准号：
9223757
负责人：
Sigan L Hartley
金额：
$ 39.93万
依托单位：
UNIVERSITY OF WISCONSIN-MADISON
依托单位国家：
美国
项目类别：
财政年份：
2013
资助国家：
美国
起止时间：
2013-06-01 至 2020-02-29
项目状态：
已结题

来源：
https://reporter.nih.gov/project-details/9223757
关键词：
Adult Affect Attention deficit hyperactivity disorder Autistic Disorder Behavior Behavioral Child Child Development Child Rearing Chronic Clinical Computer software Conflict (Psychology)Couples Data Data Adjustments Data Collection Dependence Developmental Disabilities Diagnosis Disease Divorce Equation Family Functional disorder Goals Husband Individual Linear Models Literature Marital Relationships Marital Therapy Marriage Measures Mental Health Modeling Oppositional Defiant Disorder Outcome Parents Pathway interactions Patient Self-Report Pattern Persons Problem behavior Process Public Health Reporting Research Spouses Stress Symptoms Testing Time Wife aged autism spectrum disorder clinical application comparison group conflict resolution coping diaries disability experience improved multilevel analysis physical conditioning public health relevance satisfaction stressor teacher virtual

项目摘要

DESCRIPTION (provided by applicant): It is now estimated that one in 88 children in the U.S. are diagnosed with an autism spectrum disorder (ASD). Few disabilities are more stressful on parents than ASD. There is theoretical and empirical evidence to suggest that chronic parenting stress affects marital adjustment. The overarching goal of this project is to examine the within-family associations between the autism symptoms and behavior problems of children with ASDs and marital adjustment as these processes unfold in naturalistic contexts and across three years. The specific study aims are: 1) Compare the self-reported and observed marital adjustment of couples of children with ASDs as compared to couples who have children without disabilities. 2) Test the within-family day-to-day temporal effects of child symptoms and behavior problems on couple interactions. 3) Examine the trajectories of global self-reported and observed marital adjustment across four waves of data collection spanning three years. In total, 175 married couples who have a child with an ASD aged five to 12 years will participate in the study. Study variables will be assessed through self-reported and teacher-reported measures and direct observations across four waves of data collection spanning three years. A matched comparison group of 150 married couples of children without a disability will also participate at Time 1 to understand how the processes in families of children with ASDs differ from normative experiences. Associations between marital adjustment and child symptoms and behavior problems will be examined using both a micro-level scale (14-day daily diary at Time 1), to examine the unfolding of real time day-to-day associations in their natural and spontaneous context, and a macro-level scale (four waves of data collection spanning three years), to examine the longer-term time-order pathways between these variables. Our primary unit of analysis is the couple, with individuals (husbands and wives) nested within couples. Multivariate multilevel modeling will be used to handle the inter-dependence of spouses' data collected at multiple time points (Raudenbush & Bryk, 2002).

描述（由申请人提供）：据估计，美国每 88 名儿童中就有 1 人被诊断患有自闭症谱系障碍 (ASD)。很少有残疾比自闭症谱系障碍给父母带来更大的压力。有理论和经验证据表明，长期养育压力会影响婚姻调整。该项目的总体目标是研究自闭症症状和自闭症儿童的行为问题与婚姻调整之间的家庭内部关联，因为这些过程在自然背景下和三年内展开。具体研究目的是： 1) 比较患有自闭症谱系障碍儿童的夫妇与有无残疾儿童的夫妇的自我报告和观察到的婚姻适应情况。 2) 测试家庭内儿童症状和行为问题对夫妻互动的日常时间影响。 3）检查三年内四波数据收集中全球自我报告和观察到的婚姻调整的轨迹。总共有 175 对有 5 至 12 岁患有自闭症谱系障碍 (ASD) 孩子的已婚夫妇将参加这项研究。研究变量将通过自我报告和教师报告的措施以及跨越三年的四波数据收集的直接观察来评估。由 150 名无残疾儿童的已婚夫妇组成的匹配对照组也将在时间 1 参与，以了解患有自闭症谱系障碍 (ASD) 儿童的家庭的过程与正常经历有何不同。将使用微观尺度（时间 1 的 14 天每日日记）来检查婚姻适应与儿童症状和行为问题之间的关联，以检查自然和自发背景下实时日常关联的展开，以及宏观尺度（跨越三年的四波数据收集），以检查这些变量之间的长期时间顺序路径。我们的主要分析单位是夫妇，个人（丈夫和妻子）嵌套在夫妇中。多元多级建模将用于处理在多个时间点收集的配偶数据的相互依赖性（Raudenbush & Bryk，2002）。