Pediatric Dermatology Research Alliance (PeDRA) Annual Conference

小儿皮肤病学研究联盟 (PeDRA) 年会

基本信息

批准号：
9398306
负责人：
Anna Lee Bruckner
金额：
$ 3万
依托单位：
UNIVERSITY OF COLORADO DENVER
依托单位国家：
美国
项目类别：
财政年份：
2017
资助国家：
美国
起止时间：
2017-08-01 至 2021-07-31
项目状态：
已结题

来源：
https://reporter.nih.gov/project-details/9398306
关键词：
Address Affect Area Basic Science Caring Child Childhood Clinical Clinical Research Collaborations Communication Consensus Critiques Data Dermatologic Dermatology Disease Education FDA approved Faculty Foundations Funding Funding Mechanisms Genetic Goals Grant Guidelines Health Inflammatory Institution Lead Learning Mentors Mentorship Mission Natural History Neonatal Outcome Patient advocacy Pilot Projects Procedures Productivity Prospective Studies Reaction Recommendation Research Research Methodology Research Personnel Research Priority Research Project Grants Seeds Series Site Skin Skin Neoplasms Standardization Strategic Planning Therapeutic Translational Research Treatment Protocols Work Writing advocacy organizations cancer therapy cohesion comparative effectiveness design evidence base evidence based guidelines improved infancy innovation interest knowledge base lectures medical specialties meetings member organizational structure posters premature prevent skills skin disorder success symposium working group

项目摘要

PROJECT SUMMARY Pediatric dermatology is a relatively young specialty that has lacked robust data about the natural history and long-term outcomes of skin disorders that begin in infancy and childhood. In addition, evidence-based guidelines of care, standardized treatment protocols, and FDA- approved therapies for the majority of pediatric dermatologic disorders are sparse. The Pediatric Dermatology Research Alliance (PeDRA) was founded in 2012 to address these crucial yet unmet needs. PeDRA's primary mission is to promote and facilitate high-quality collaborative research in pediatric dermatology by creating and sustaining multi-site research networks. The long-term goal of PeDRA is to leverage such research to improve the health outcomes of children with skin disorders. Annual conferences have been integral to the success of PeDRA, providing a forum for educating investigators, identifying and prioritizing research needs and opportunities, and developing and initiating innovative projects. A combination of didactic lectures, expert-led interactive discussions, panel and poster sessions, and disease-focused small-group sessions are the foundation of PeDRA's meetings. This proposal is for four annual meetings from 2017 to 2020 with the following aims: 1) Provide education and mentorship to new and established pediatric dermatology investigators that attend to gaps and obstacles in research methodology, grant writing, and project management; 2) Advance existing research projects and develop new research priorities within PeDRA's five focus areas; and 3) Initiate research strategies and collaborative clinical studies that synchronize with organization-wide priorities. The expected outcome of these meetings will be productive interactions and partnerships that will enhance the productivity of clinical researchers in pediatric dermatology and lead to the conduct of impactful, high-quality studies. These activities will accelerate the pace of pediatric dermatology research, allowing clinicians to better understand, prevent and treat skin disease in children.

项目摘要小儿皮肤病学是一种相对年轻的专业，缺乏关于从婴儿期和童年开始的皮肤疾病的自然史和长期结局。在补充，基于证据的护理指南，标准化治疗方案和FDA- 大多数小儿皮肤病学疾病的批准疗法很少。小儿皮肤科研究联盟（PEDRA）成立于2012年，以解决这些关键但未满足的需求。佩德拉（Pedra）的主要任务是促进和促进高质量的合作通过创建和维持多站点研究网络的小儿皮肤病学研究。这佩德拉（Pedra）的长期目标是利用此类研究来改善患有皮肤疾病的孩子。年度会议一直是Pedra成功的组成部分提供一个教育研究人员，确定和优先考虑研究需求的论坛机会，发展和启动创新项目。教学的组合讲座，专家主导的互动讨论，小组和海报会议以及以疾病为中心小组会议是佩德拉会议的基础。该建议是针对四个年度的 2017年至2020年的会议以下目的：1）提供教育和指导新的和已建立的儿科皮肤病学调查人员会遇到差距和障碍研究方法，赠款写作和项目管理； 2）进步现有研究项目并在佩德拉（Pedra）的五个焦点领域中建立新的研究重点； 3）发起研究策略和协作临床研究，与组织范围内同步优先事项。这些会议的预期结果将是富有成效的互动，将提高小儿皮肤病学临床研究人员的生产率的伙伴关系并导致进行有影响力的高质量研究。这些活动将加速小儿皮肤病学研究的速度，使临床医生能够更好地理解，预防和治疗儿童的皮肤病。