Analysis of Linked NHIS Registry Data

关联 NHIS 登记数据分析

• 批准号: 8887105
• 负责人: David J Lee
• 金额: $ 7.68万
• 依托单位: UNIVERSITY OF MIAMI SCHOOL OF MEDICINE
• 依托单位国家: 美国
• 财政年份: 2014
• 资助国家: 美国
• 起止时间: 2014-07-04 至 2017-06-30
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/8887105
• 关键词: American; Behavior; Biological; Cancer Survivor; Centers for Disease Control and Prevention (U.S.); Certification; Cessation of life; Clinical; Collaborations; Complex; Confidentiality; Data; Data Analyses; Data Linkages; Data Set; Data Sources; Databases; Development; Diagnosis; Expenditure; Florida; Funding; Future; Goals; Health; Health Services Accessibility; Health Services Research; Health Status; Health Surveys; Health behavior; Healthcare; Housing; Individual; Information Systems; Interview; Journals; Leadership; Letters; Link; Malignant Neoplasms; Measures; Medical; Medical Surveillance; Medicare claim; Morbidity - disease rate; National Cancer Institute; National Health Interview Survey; National Health and Nutrition Examination Survey; Nature; Obesity; Participant; Patient Self-Report; Patients; Peer Review; Persons; Plant Roots; Population; Publications; Publishing; Reading; Recording of previous events; Records; Registries; Relative (related person); Research; Research Personnel; Respondent; Risk; Risk Factors; Series; Smoker; Staging; Surveys; Survival Rate; Time; United States; United States National Center for Health Statistics; Universities; cancer risk; cohort; data registry; demographics; health care quality; health care service utilization; health data; health disparity; improved; indexing; meetings; member; mortality; neoplasm registry; programs; screening; statistics; treatment strategy; trend

DESCRIPTION (provided by applicant): The historically de-centralized nature of cancer surveillance in the United States, combined with the paramount need for the protection of patient and survey respondent confidentiality, has hampered efforts to perform cancer registry linkages with nationally representative health studies. Expansion of such data linkages has enormous potential for furthering the disparities along the cancer continuum. Since 1986, over two million people have participated in nationally representative health surveys undertaken by the National Center for Health for Health Statistics (NCHS) including the National Health Interview Survey (NHIS). In close collaboration with key NCHS members, Investigators at the University of Miami have recently completed a linkage with NHIS survey data and the Florida cancer registry, the Florida Cancer Data System (FCDS), which annually identifies 6% of all cancer cases in the US. There were over 1.7 million eligible records from the NHIS and 2.5 million eligible records from the FCDS, which resulted in a final linked and greatly enriched dataset of 7,483 cancer cases. This linkage is now housed at the NCHS Research Data Center (RDC) with strict confidentiality controls for indirect analysis access. Our long-term objective is to create a Consortium to perform data linkages utilizing the records from the NCHS surveys with all US cancer registries. Once in place, this Consortium will enable us to create a highly enriched database of an estimated 96,000 or more persons diagnosed with cancer before and after their participation in the nationally-representative NCHS surveys, creating unique cohorts of both cancer survivors and future cancer cases. Prior to undertaking the complex task of building this Consortium, we seek R03 funding to analyze these data for the purpose of demonstrating the utility of the linkage to key stakeholders and to gather data needed for future power calculations. Our study Aims include: 1) Document health behavior, health and morbidity status of FCDS-identified cancer survivors; perform a multivariable comparison with those cancer-free at the time of their NHIS interview; 2) Document predictors of cancer onset in those cancer-free at the time of their NHIS interview; 3) Document changes in mortality trends of cancer survivors and among participants who go on to develop cancer; 4) Disseminate study findings to key stakeholders through presentations and publications in targeted peer-reviewed publications to promote development of the Consortium.

描述（由申请人提供）：美国历史上偏心的癌症监测性质，加上对保护患者和受访者的保密的重要需求，阻碍了与国家代表性健康研究进行癌症注册联系的努力。这种数据链接的扩展具有巨大的潜力，可以促进沿癌症连续体的差异。自1986年以来，超过200万人参加了由国家健康统计中心（NCH）（包括国家健康访谈调查（NHIS））进行的国家代表性健康调查。在与关键NCHS成员的密切合作中，迈阿密大学的调查人员最近与NHIS调查数据和佛罗里达癌症注册中心佛罗里达癌症数据系统（FCD）完成了联系，该数据系统每年都会确定美国所有癌症病例中6％。来自NHIS的170万条合格记录和FCD中有250万条合格记录，导致最终连接的且大量丰富了7,483例癌症病例的数据集。现在，该链接位于NCHS研究数据中心（RDC），并具有严格的机密性控制，以进行间接分析访问。我们的长期目标是 通过与美国所有癌症注册机构的NCH调查中的记录，创建一个联盟来执行数据链接。一旦到位，该财团将使我们能够在参加全国代表性的NCH调查之前和之后，创建一个高度丰富的数据库，估计有96,000名或更多的人被诊断出患有癌症的人，从而创建了癌症幸存者和未来癌症的独特同类。在承担建立该财团的复杂任务之前，我们寻求R03资金来分析这些数据，以证明与关键利益相关者的联系效用，并收集未来电力计算所需的数据。我们的研究目的包括：1）记录了由FCDS识别的癌症幸存者的健康行为，健康和发病率；在NHIS访谈时，与那些无癌的人进行了多变量的比较； 2）记录NHIS访谈时无癌症中癌症发作的预测因子； 3）记录癌症幸存者死亡率趋势以及继续发展癌症的参与者的变化； 4）通过有针对性的同行评审出版物的演讲和出版物向主要利益相关者传播研究结果，以促进该财团的发展。

项目成果

Linking the National Health Interview Survey with the Florida Cancer Data System: A Pilot Study.

将全国健康访谈调查与佛罗里达癌症数据系统联系起来：一项试点研究。

• 发表时间: 2016
• 期刊: Journal of registry management
• 作者: McClure,LauraA;Miller,EricA;Tannenbaum,StaceyL;Hernandez,MoniqueN;MacKinnon,JillA;He,Yulei;LeBlanc,WilliamG;Lee,DavidJ
• 通讯作者: Lee,DavidJ