Analysis of Linked NHIS Registry Data

关联 NHIS 登记数据分析

• 批准号: 8887105
• 负责人: David J Lee
• 金额: $ 7.68万
• 依托单位: UNIVERSITY OF MIAMI SCHOOL OF MEDICINE
• 依托单位国家: 美国
• 财政年份: 2014
• 资助国家: 美国
• 起止时间: 2014-07-04 至 2017-06-30
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/8887105
• 关键词: American; Behavior; Biological; Cancer Survivor; Centers for Disease Control and Prevention (U.S.); Certification; Cessation of life; Clinical; Collaborations; Complex; Confidentiality; Data; Data Analyses; Data Linkages; Data Set; Data Sources; Databases; Development; Diagnosis; Expenditure; Florida; Funding; Future; Goals; Health; Health Services Accessibility; Health Services Research; Health Status; Health Surveys; Health behavior; Healthcare; Housing; Individual; Information Systems; Interview; Journals; Leadership; Letters; Link; Malignant Neoplasms; Measures; Medical; Medical Surveillance; Medicare claim; Morbidity - disease rate; National Cancer Institute; National Health Interview Survey; National Health and Nutrition Examination Survey; Nature; Obesity; Participant; Patient Self-Report; Patients; Peer Review; Persons; Plant Roots; Population; Publications; Publishing; Reading; Recording of previous events; Records; Registries; Relative (related person); Research; Research Personnel; Respondent; Risk; Risk Factors; Series; Smoker; Staging; Surveys; Survival Rate; Time; United States; United States National Center for Health Statistics; Universities; cancer risk; cohort; data registry; demographics; health care quality; health care service utilization; health data; health disparity; improved; indexing; meetings; member; mortality; neoplasm registry; programs; screening; statistics; treatment strategy; trend

DESCRIPTION (provided by applicant): The historically de-centralized nature of cancer surveillance in the United States, combined with the paramount need for the protection of patient and survey respondent confidentiality, has hampered efforts to perform cancer registry linkages with nationally representative health studies. Expansion of such data linkages has enormous potential for furthering the disparities along the cancer continuum. Since 1986, over two million people have participated in nationally representative health surveys undertaken by the National Center for Health for Health Statistics (NCHS) including the National Health Interview Survey (NHIS). In close collaboration with key NCHS members, Investigators at the University of Miami have recently completed a linkage with NHIS survey data and the Florida cancer registry, the Florida Cancer Data System (FCDS), which annually identifies 6% of all cancer cases in the US. There were over 1.7 million eligible records from the NHIS and 2.5 million eligible records from the FCDS, which resulted in a final linked and greatly enriched dataset of 7,483 cancer cases. This linkage is now housed at the NCHS Research Data Center (RDC) with strict confidentiality controls for indirect analysis access. Our long-term objective is to create a Consortium to perform data linkages utilizing the records from the NCHS surveys with all US cancer registries. Once in place, this Consortium will enable us to create a highly enriched database of an estimated 96,000 or more persons diagnosed with cancer before and after their participation in the nationally-representative NCHS surveys, creating unique cohorts of both cancer survivors and future cancer cases. Prior to undertaking the complex task of building this Consortium, we seek R03 funding to analyze these data for the purpose of demonstrating the utility of the linkage to key stakeholders and to gather data needed for future power calculations. Our study Aims include: 1) Document health behavior, health and morbidity status of FCDS-identified cancer survivors; perform a multivariable comparison with those cancer-free at the time of their NHIS interview; 2) Document predictors of cancer onset in those cancer-free at the time of their NHIS interview; 3) Document changes in mortality trends of cancer survivors and among participants who go on to develop cancer; 4) Disseminate study findings to key stakeholders through presentations and publications in targeted peer-reviewed publications to promote development of the Consortium.

描述（由申请人提供）：美国癌症监测历史上的分散性质，加上保护患者和调查受访者机密性的迫切需要，阻碍了将癌症登记与全国代表性健康研究联系起来的努力。此类数据联系的扩展对于进一步扩大癌症连续体的差异具有巨大的潜力。自 1986 年以来，已有超过 200 万人参加了国家健康统计中心 (NCHS) 开展的具有全国代表性的健康调查，其中包括国家健康访谈调查 (NHIS)。迈阿密大学的研究人员与 NCHS 主要成员密切合作，最近完成了与 NHIS 调查数据和佛罗里达州癌症登记处佛罗里达州癌症数据系统 (FCDS) 的联系，该系统每年识别出美国所有癌症病例的 6% 。 NHIS 中有超过 170 万条符合条件的记录，FCDS 中有超过 250 万条符合条件的记录，最终形成了包含 7,483 例癌症病例的链接且极大丰富的数据集。该链接现在位于 NCHS 研究数据中心 (RDC)，对间接分析访问具有严格的保密控制。我们的长期目标是 创建一个联盟，利用 NCHS 调查记录与所有美国癌症登记处进行数据链接。一旦到位，该联盟将使我们能够创建一个高度丰富的数据库，其中包含估计 96,000 名或更多在参与全国代表性 NCHS 调查之前和之后被诊断患有癌症的人，从而创建癌症幸存者和未来癌症病例的独特队列。在承担建立该联盟的复杂任务之前，我们寻求 R03 资金来分析这些数据，以便向主要利益相关者展示链接的实用性，并收集未来功率计算所需的数据。我们的研究目标包括： 1) 记录 FCDS 确定的癌症幸存者的健康行为、健康和发病状况；与接受 NHIS 采访时未患癌症的人进行多变量比较； 2) 记录接受 NHIS 采访时无癌症患者的癌症发病预测因素； 3) 记录癌症幸存者和继续罹患癌症的参与者的死亡率趋势变化； 4) 通过在有针对性的同行评审出版物上发表演讲和出版物，向主要利益相关者传播研究结果，以促进联盟的发展。

项目成果

Linking the National Health Interview Survey with the Florida Cancer Data System: A Pilot Study.

将全国健康访谈调查与佛罗里达癌症数据系统联系起来：一项试点研究。

• 发表时间: 2016
• 期刊: Journal of registry management
• 作者: McClure,LauraA;Miller,EricA;Tannenbaum,StaceyL;Hernandez,MoniqueN;MacKinnon,JillA;He,Yulei;LeBlanc,WilliamG;Lee,DavidJ
• 通讯作者: Lee,DavidJ