Convoys of Care: Developing Collaborative Care Partnerships in Assisted Living

护理车队：发展辅助生活领域的协作护理伙伴关系

基本信息

批准号：
8702068
负责人：
Candace Lynn Kemp
金额：
$ 38万
依托单位：
GEORGIA STATE UNIVERSITY
依托单位国家：
美国
项目类别：
财政年份：
2013
资助国家：
美国
起止时间：
2013-08-01 至 2018-06-30
项目状态：
已结题

来源：
https://reporter.nih.gov/project-details/8702068
关键词：
Address Adult Children Affect Age Aging Assisted Living Facilities Caregivers Caring Characteristics Cognitive Communities Data Data Analyses Data Collection Development Elderly Environment Ethnic Origin Family Family Process Fees Frail Elderly Friends Future Gender Goals Health Health Personnel Healthcare Market Individual Industry Influentials Intervention Studies Interview Knowledge Lead Learning Life Light Location Long-Term Care Marital Status Mediation Medical Methods Modeling Never Married Nursing Homes Outcome Participant Personal Satisfaction Physical Function Physical environment Play Policies Policy Maker Population Process Public Health Public Policy Qualitative Methods Quality of life Race Recording of previous events Relative (related person)Religion Research Research Personnel Resources Role Site Social Environment Spouses Structure Time Variant Work base care delivery caregiving cognitive function collaborative care design expectation experience improved innovation insight marital age member policy implication response social theories trend

项目摘要

DESCRIPTION (provided by applicant): Assisted living (AL) is the fastest growing segment of the long-term care industry and preferred greatly over the more costly and medical nursing home environment. Informal caregivers play a critical role in residents' ability move to and remain in these non-medical residential care settings and also affect residents' and caregivers' quality of life. Our recent work shows that most AL residents have care convoys that include family and friends and evolve in response to resident decline and family, friend, and facility transitions. In recent years, however, AL residents have grown older and frailer and require higher levels of care, a trend that is apt to alter the demand for informal care and the configuration of care roles. Informal caregivers typically are adult children and occasionally spouses, who may have multiple competing demands and may be experiencing their own health problems. Some residents lack these traditional helpers and may rely on other family and friends or have no one. Despite the changing needs of this population and variations in the availability of support, as well as the significant public health and policy implications of learnig how to develop collaborative care partnerships in AL, research has yet to address fully the complexity of informal care in these settings, particularly how it is organized among and between care partners and unfolds over time. The overall goal of this five-year study is to learn how to support informal care and care convoys in AL in ways that promote residents' ability to age in place with optimal resident and informal and formal caregiver quality of life. The specific aims are: (1) To understand how informal care in AL is experienced, organized, and negotiated within care convoys over time; (2) To understand the factors that influence informal care work in AL and how they operate to support or hinder the development of care partnerships that promote aging in place with optimal resident and informal and formal caregiver quality of life; and (3) To determine successful strategies for building care partnerships in AL. This study will use participant observation and informal and formal interviewing in 8 AL settings that vary by key individual-, facility-, and community-level factors, collecting data in 2 waves of 4 sites each Fifty residents diverse in age, marital and parental statuses, race and ethnicity, and cognitive and physical functioning will be purposively selected, interviewed, and followed over 24-months. Their convoy members also will be identified, interviewed, and followed over the same time period. Following residents' care convoys prospectively will enhance understandings of care as a dynamic process and shed light on the ways families and friends negotiate amongst themselves and with other convoy members, including paid care workers. Grounded Theory Method will guide data collection and analysis, which will provide significant insight into the car process. This knowledge will help us identify strategies for developing and supporting collaborative care partnerships between informal and formal caregivers and recipients.

描述（由申请人提供）：辅助生活（AL）是长期护理行业中增长最快的部分，并且更偏爱更昂贵和医疗疗养院的环境。非正式护理人员在居民转移到这些非医学住宅护理环境中的能力中起着至关重要的作用，也影响居民和看护人的生活质量。我们最近的工作表明，大多数AL居民都有护理护卫队，其中包括家人和朋友，并以响应居民的衰落以及家人，朋友和设施过渡而发展。但是，近年来，AL居民已经成长较老，需要更高的护理，这种趋势易于改变对非正式护理的需求和护理角色的配置。非正式护理人员通常是成年子女，偶尔是配偶，他们可能有多种竞争要求，并且可能遇到自己的健康问题。一些居民缺乏这些传统的助手，可能依靠其他家人和朋友或没有人。尽管该人群的需求不断变化，并且在支持的可用性方面的差异以及Learnig的重大公共卫生和政策含义如何在AL中建立协作护理伙伴关系，但研究尚未在这些环境中完全解决非正式护理的复杂性，尤其是如何在护理伙伴之间以及随着时间的推移之间的组织之间组织。这项为期五年研究的总体目标是学习如何以AL的方式支持非正式护理车队，以促进居民与最佳居民以及非正式和正式护理人员生活质量的适当能力。具体目的是：（1）了解随着时间的推移，在护理车队中进行了AL的非正式护理；（2）了解影响AL中非正式护理工作的因素，以及它们如何运作以支持或阻碍与最佳居民，非正式和正式护理人员生活质量相处的护理伙伴关系的发展；（3）确定在AL建立护理合作伙伴关系的成功策略。这项研究将使用参与者的观察以及在8个AL环境中进行的非正式和正式访谈，这些环境因关键个人，设施和社区级别的因素而异，并收集2个浪潮中的4个地点的数据，每个五十名居民的年龄，婚姻和父母地位，种族和种族和种族和种族，种族和种族，认知和认知和身体运作将被目的选择，并遵循24分24分24米。他们的车队成员还将在同一时期内确定，采访和遵循。跟随居民的护理车队，前瞻性地将增强人们对护理的理解，并阐明家庭和朋友之间以及与其他车队成员（包括带薪护理人员）谈判的方式。接地理论方法将指导数据收集和分析，这将为汽车过程提供重大的见解。这些知识将帮助我们确定非正式和正式护理人员和接收者之间建立和支持协作伙伴关系的策略。