Addition of Pediatric TBI Data to FITBIR

将儿科 TBI 数据添加到 FITBIR

• 批准号: 8739904
• 负责人: FREDERICK P. RIVARA
• 金额: $ 15.45万
• 依托单位: UNIVERSITY OF WASHINGTON
• 依托单位国家: 美国
• 财政年份: 2014
• 资助国家: 美国
• 起止时间: 2014-04-01 至 2016-03-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/8739904
• 关键词: Acute; Adolescent; Adult; Age; Arm Injuries; Caring; Cause of Death; Centers for Disease Control and Prevention (U.S.); Child; Child health care; Childhood; Childhood Injury; Common Data Element; Data; Data Quality; Data Set; Databases; Epidemiology; Faculty; Funding; Future; Headache; Hispanics; Incidence; Injury; Longitudinal Studies; Maps; Mental Depression; Methods; Natural History; Outcome; Parents; Persistent pain; Phase; Population; Post-Traumatic Stress Disorders; Publications; Quality of life; Recovery; Reporting; Research; Schools; Severities; Sleep Disorders; Sleep disturbances; Telephone; Trauma; Traumatic Brain Injury; disability; disability burden; follow-up; functional outcomes; girls; pediatric traumatic brain injury; population based; prospective; psychosocial; public health relevance; treatment effect

DESCRIPTION (provided by applicant): The Child Health After Injury (CHAI) study was funded by the CDC (9/2006 to 8/2012) to determine the population-based rates of disability after traumatic brain injury (TBI) to children and adolescents. This study was one of the largest prospective longitudinal studies on pediatric TBI, had outstanding follow-up over three years, included controls, provided a comprehensive examination of functional outcomes after TBI and collected a wealth of clean and validated data. These high quality data are currently available to be entered into the Federal Interagency Traumatic Brain Injury Research (FITBIR) database and combined with other existing or future pediatric data to advance the field of pediatric TBI research. There are still a number of questions which could be explored using these legacy data in combination with other pediatric TBI data to be entered into FITBIR. Specifically, the legacy CHAI data would be available for use to study: 1. Effects of treatment on 1, 2 and 3 year outcomes after moderate or severe TBI 2. Effects of TBI and its treatment on school outcomes 3. Comparison of adolescent reported functional outcomes after pediatric TBI to parent reported outcomes 4. Comparison of outcomes after TBI in children < 5 years due to abuse with that due to unintentional mechanisms 5. Comparison of outcomes after TBI in children at different ages as well as to adults The specific aims of this proposal are to 1. Map the CHAI data into the common data elements (CDE) in FTBIR 2. Provide additional pediatric TBI data not in CDE but which may be helpful to future pediatric TBI studies 3. Deliver the reformatted CHAI data into FITBIR

描述（由申请人提供）：儿童受伤后健康 (CHAI) 研究由 CDC 资助（9/2006 至 8/2012），旨在确定儿童和青少年创伤性脑损伤 (TBI) 后基于人群的残疾率。这项研究是最大的儿科 TBI 前瞻性纵向研究之一，在三年多的时间里进行了出色的随访，包括对照，对 TBI 后的功能结果进行了全面检查，并收集了大量干净且经过验证的数据。这些高质量数据目前可输入联邦机构间创伤性脑损伤研究 (FITBIR) 数据库，并与其他现有或未来的儿科数据相结合，以推进儿科 TBI 研究领域。使用这些遗留数据与要输入 FITBIR 的其他儿科 TBI 数据相结合，仍然可以探索许多问题。具体来说，遗留的 CHAI 数据可用于研究： 1. 治疗对中度或重度 TBI 后 1 年、2 年和 3 年结果的影响 2. TBI 及其治疗对学校结果的影响 3. 青少年报告的功能的比较儿童 TBI 后向家长报告的结果 4. 5 岁以下儿童因虐待导致的 TBI 后结果与无意机制导致的结果的比较 5. 不同年龄儿童以及成人 TBI 后结果的比较 具体目标该提案的目的是 1. 将 CHAI 数据映射到 FTBIR 中的通用数据元素 (CDE) 2. 提供 CDE 中没有的额外儿科 TBI 数据，但可能对未来的儿科 TBI 研究有所帮助 3. 将重新格式化的 CHAI 数据传送到 FITBIR