Demographic Data Sharing and Archiving

人口统计数据共享和存档

基本信息

批准号：
8532003
负责人：
MARY C MCENIRY
金额：
$ 58.55万
依托单位：
UNIVERSITY OF MICHIGAN AT ANN ARBOR
依托单位国家：
美国
项目类别：
财政年份：
2004
资助国家：
美国
起止时间：
2004-09-10 至 2014-09-24
项目状态：
已结题

来源：
https://reporter.nih.gov/project-details/8532003
关键词：
Adolescent Agreement Architecture Archives Area Behavioral Sciences Biological Preservation Child Welfare Cities Collaborations Collection Community Outreach Complement Complex Computer Assisted Confidential Information Consultations Contract Services Contracts Coupled Data Data Collection Databases Demographer Deposition Development Differential Mortality Disclosure Documentation Evaluation Family Fertility Foundations Funding Goals Harvest Health Health behavior Housing Imagery Information Systems Informed Consent Institutional Review Boards International Interview Legal Longitudinal Studies Los Angeles Metadata Methods Michigan Minnesota Modeling Monitor Mortality Determinants National Institute of Child Health and Human Development Neighborhoods Output Paper Phase Policies Population Population Research Population Sciences Population Study Preparation Process Production Research Research Infrastructure Research Personnel Resources Risk Science Scientist Secondary to Secure Series Services Source Source Code Standardization Structure System Technology U-Series Cooperative Agreements United States National Institutes of Health Universities Work base data acquisition data sharing digital health disparity health science research improved innovation interest knowledge base new technology open source outreach programs prototype public health relevance repository research study response social tool tool development

项目摘要

DESCRIPTION (provided by applicant): Beginning in 2003, the National Institutes of Health developed an explicit data sharing policy which encouraged scientists whose research is funded by NIH to develop ways to share their research data with the public and, more specifically, their fellow scientists. This policy coupled with other federal data sharing requirements and the explicit recognition of the synergistic value to science of broad based data sharing among scientists with similar substantive interests has led to a substantial and important expansion of structured and unstructured data archives and repositories. The first cycle of funding for this project established the basis for data infrastructure to support demographers housed at population centers and those researchers whose data collections have particular relevance to demographic research. The project proposed here is a continuation of a five year cooperative agreement that provides data archiving, preservation and dissemination and other data infrastructure services. The specific aims of this project complement the original agreement's goals which included (1) data acquisition, curation, dissemination, and preservation (2) restricted use data sharing (3) user support and outreach, and (4) improvements in the science of data sharing including disclosure risk evaluation, complex data conceptualization and shared frameworks for data sharing (the legal framework) and data documentation (the Data Documentation Initiative). In this phase of the project, we bring new technologies and data architecture to help reengineer how we provide these services and to expand the integrated infrastructure support that will help improve the delivery of the parts of the demographic data collection that reside at ICPSR and those that reside in affiliated population centers. The goal is to work toward a legal, technical, and substantive framework in which to share research data in the population sciences. Specifically, with partners at the Carolina Population Center, Minnesota Population Center, Hopkins Population Center, Rand Population Research Center and the Michigan Population Studies Center, we will add new technologies to provide open source methods of data curation and dissemination.

描述（由申请人提供）：从 2003 年开始，美国国立卫生研究院制定了一项明确的数据共享政策，鼓励由 NIH 资助研究的科学家开发与公众（更具体地说，与他们的科学家同事）共享研究数据的方法。这项政策与其他联邦数据共享要求相结合，以及对具有相似实质性利益的科学家之间广泛的数据共享对科学的协同价值的明确认识，导致了结构化和非结构化数据档案和存储库的实质性和重要扩展。该项目的第一轮资助奠定了数据基础设施的基础，以支持人口中心的人口统计学家以及数据收集与人口研究特别相关的研究人员。这里提出的项目是五年合作协议的延续，提供数据归档、保存和传播以及其他数据基础设施服务。该项目的具体目标补充了原始协议的目标，其中包括（1）数据采集、管理、传播和保存（2）限制使用数据共享（3）用户支持和推广，以及（4）数据科学的改进共享包括披露风险评估、复杂的数据概念化以及数据共享的共享框架（法律框架）和数据文档（数据文档倡议）。在该项目的这一阶段，我们引入了新技术和数据架构，以帮助重新设计我们提供这些服务的方式，并扩大综合基础设施支持，这将有助于改善 ICPSR 和其他人口数据收集部分的交付。居住在附属人口中心。目标是努力建立一个法律、技术和实质性框架来共享人口科学研究数据。具体来说，我们将与卡罗来纳人口中心、明尼苏达人口中心、霍普金斯人口中心、兰德人口研究中心和密歇根人口研究中心的合作伙伴一起添加新技术，以提供数据管理和传播的开源方法。