Do Access Barriers to Autism Care Persist Despite Autism Insurance Mandate?

尽管有自闭症保险规定，获得自闭症护理的障碍是否仍然存在？

• 批准号: 8439498
• 负责人: Li Wang
• 金额: $ 29.54万
• 依托单位: PENNSYLVANIA STATE UNIV HERSHEY MED CTR
• 依托单位国家: 美国
• 财政年份: 2012
• 资助国家: 美国
• 起止时间: 2012-09-12 至 2015-07-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/8439498
• 关键词: Address; Affect; Area; Autistic Disorder; Behavior; Caring; Child; Child Care; Data; Databases; Eligibility Determination; Employee Retirement Income Security Act; Family; Future; Geographic Locations; Health Benefit; Health Policy; Home environment; Hospitals; Insurance; Insurance Carriers; Insurance Coverage; Knowledge; Lead; Life; Measures; Medical; Mental Health; Neurologic; Outpatients; Parents; Policies; Prevalence; Process; Provider; Relative (related person); Research; Resources; Services; Siblings; Single Parent; Statutes and Laws; Time; Training; Travel; United States; Visit; autism spectrum disorder; autistic children; base; cost; design; developmental disease; flexibility; improved; innovation; meetings; prevent; prospective; rural area; urban area

DESCRIPTION (provided by applicant): Autism spectrum disorder (ASD) is a neurological developmental disorder that affected approximately 1 in 110 children in the United States in 2006, and its prevalence has risen rapidly in recent years. In view of increasingly unmet needs for autism care, more and more states have passed mandates requiring private insurers to provide autism insurance. However, little is known about actual changes in autism services use, costs and health benefits after such mandates take effect. More importantly, access barriers to autism care persist for privately insured autistic children despite autism mandates. Without timely study and informed policy measures to address persistent access barriers, the care of children with ASD may be jeopardized. Using a unique large multi-state private insurance claims database, this research will be: 1) the first study to use post- mandate private insurance claims data to measure actual changes in autism service use, costs and health benefits after autism insurance mandates; and 2) the first study to explore access barriers that persist despite autism mandates. The findings will: 1) help evaluate autism mandates based on actual changes rather than prospective projections; and 2) help decision makers design future autism mandates and identify the next essential steps following the passage of autism insurance mandates to further remove access barriers and better serve children with ASD. PUBLIC HEALTH RELEVANCE: Access barriers to treatment care of Autism Spectrum Disorders (ASD) persist despite autism insurance mandates in more and more states that require private insurers to provide autism care coverage. Using a large, unique multi-state private insurance claims database, this research will be 1) the first study to use nation-wide post-mandate private insurance claims data to measure actual (rather than projected) changes in autism services use, costs and health benefits after the mandate; and 2) the first study to explore access barriers that persist despite autism insurance mandates. Findings from this study will 1) help evaluate autism mandates and design future autism mandates, and 2) help decision makers identify the next essential steps following insurance mandate enactment to further remove access barriers and better serve children with ASD.

描述（由申请人提供）：自闭症谱系障碍（ASD）是一种神经系统发育障碍，在2006年在美国110名儿童中大约有1个，近年来其患病率迅速上升。鉴于越来越未满足的自闭症护理需求，越来越多的州通过了要求私人保险公司提供自闭症保险的授权。但是，在这种授权生效后，自闭症服务使用，成本和健康福利的实际变化知之甚少。更重要的是，尽管自闭症的要求，但私人保险自闭症儿童的自闭症护理障碍仍然存在。如果没有及时的研究和知情政策措施来解决持续的访问障碍，则可能会危害ASD儿童的护理。使用独特的大型多国家私人保险索赔数据库，这项研究将是：1）第一项使用职责后私人保险索赔数据的研究来衡量自闭症服务使用，自闭症保险授权后的成本和健康福利的实际变化； 2）第一次探索尽管自闭症规定仍然存在的访问障碍的研究。调查结果将：1）根据实际变化而不是前瞻性预测来帮助评估自闭症授权； 2）帮助决策者设计未来的自闭症，并确定自闭症保险通过要求进一步消除访问障碍并更好地为ASD儿童提供服务的下一个基本步骤。 公共卫生相关性：尽管越来越多的州要求私人保险公司提供自闭症护理覆盖范围的州，但自闭症保险的访问障碍（ASD）仍然存在。这项研究将使用大型，独特的多国家私人保险索赔数据库，是1）首次使用全国范围内的私人保险索赔数据来衡量自闭症服务使用，授权后的成本和健康福利的实际（而不是预计）的变化； 2）第一次探索尽管自闭症保险规定的访问障碍的研究。这项研究的结果将1）帮助评估自闭症的授权和设计未来的自闭症授权，2）帮助决策者确定保险授权颁布后的下一个基本步骤，以进一步消除访问障碍，并更好地为ASD儿童提供服务。