Activity and Participation in Ambulatory Cerebral Palsy

动态脑瘫的活动和参与

• 批准号: 8291885
• 负责人: KRISTIE F BJORNSON
• 金额: $ 12.62万
• 依托单位: SEATTLE CHILDREN'S HOSPITAL
• 依托单位国家: 美国
• 财政年份: 2009
• 资助国家: 美国
• 起止时间: 2009-06-01 至 2014-05-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/8291885
• 关键词: Address; Adipose tissue; Adolescent; Adult; Advisory Committees; Age; Algorithms; Ankle; Award; Biomechanics; Body Composition; Body Size; Body Weight; Braces-Orthopedic appliances; Cerebral Palsy; Child; Childhood; Classification; Clinic; Clinic Activity; Clinical Research; Clinical Trials; Cross-Sectional Studies; Crossover Design; Data; Demographic Factors; Development; Doctor of Philosophy; Education; Effectiveness; Energy Metabolism; Fatty acid glycerol esters; Foundations; Friends; Gait; Genetic Crossing Over; Goals; Grant; Guidelines; Habits; Health; Height; Hip region structure; Housing; Impairment; Instruction; International; Intervention; Intervention Studies; Knee; Knowledge; Language; Leadership; Length; Life; Life Experience; Life Style; Little' s Disease; Longevity; Measurement; Measures; Mentors; Methodology; Methods; Modeling; Motor; Movement; Nursery Schools; Orthotic Devices; Outcome; Outcome Measure; Participant; Pattern; Pediatrics; Performance; Persons; Pharmaceutical Preparations; Physical activity; Play; Principal Investigator; Publishing; Randomized; Recreation; Relative (related person); Reporting; Research; Research Institute; Research Personnel; Rotation; Running; Sampling; Schools; Solid; Structure; Testing; Toes; Training Programs; Triceps Brachii Muscle; Typology; Universities; Walking; Washington; Weight; Work; Writing; Youth; arm; base; career; clinical practice; cohort; design; disability; foot; improved; intervention program; medical schools; muscle strength; novel; orthotics; patient oriented; professor; programs; rehabilitation strategy; skills; social; standardize measure; two-dimensional

The candidate, Kristie Bjornson, PhD, PT, is a pediatric physical therapist and Assistant Professor of Pediatrics, University of Washington School of Medicine/Seattle Children's Research Institute. This award will establish her as an independent investigator in a patient-oriented clinical research program of interventions focused on improving the activity and social participation of persons with cerebral palsy (CP). This overarching goal will be accomplished through a five-year program of training, mentoring and research with the following specific objectives: 1) Develop knowledge and skill in the measurement of body composition, energy expenditure, ambulatory and physical activity performance and social participation within context of daily life. 2) Employ skills in a cross-sectional descriptive study testing the relationship of the ICF components. 3) Enhance understanding of orthotic prescription and biomechanics. 4) Develop methodology and pilot within a cross-sectional orthotic intervention study. 5) Expand knowledge of clinical trials methods, study management/leadership, grant development and scholarly writing. Her sponsor is an established pediatric researcher and career mentor, while her co-sponsor and advisory committee represent clinical and research expertise directly related to the study populationand career developmentplan. The research plan focuses first on defining the relationships of activity,participation (ICF) and body composition in a descriptive cross-sectional study of ambulatory children with CP. The extent outcomes at various levels of the ICF relate requires clarification in order for the ICF to be a useful framework for clinical research and practice. Secondarily, the ICF component relationships will be tested within a randomized cross-over clinical trial of solid ankle foot orthoses (SAFO) on daily ambulatory/physical activity performance and social participation on ambulatory children with cerebral palsy with novel ambulatory accelerometry measures. There is no published data defining the impact of SAFO on physical and ambulatoryactivity performance and participation in day to day life. This information will facilitate the development of a life span orthotic management algorithm for ambulatory persons with CP. RELEVANCE (See instructions): We will explore the connection between what a child with cerebral palsy does physicallyduring motor testing to what they 'actually' do during their day to day lives. The project will also test whether ankle braces help children with cerebral palsy do what they want to do when they want to do it. This information will be used to develop ankle bracing guidelines for persons with, cerebral palsy across the life span.

候选人Kristie Bjornson博士，PT是儿科物理治疗师和助理教授 华盛顿大学医学院/西雅图儿童研究所儿科。这个奖项 将在以患者为导向的临床研究计划中建立她为独立研究者 干预措施的重点是改善脑瘫患者的活动和社会参与 （CP）。这个总体目标将通过五年的培训，指导和 具有以下特定目标的研究：1）发展身体测量的知识和技能 组成，能量消耗，门诊和体育锻炼表现以及社会参与 在日常生活的背景下。 2）在横截面描述性研究中使用技能测试 ICF组件。 3）增强对矫形处方和生物力学的理解。 4）发展 横断面矫形干预研究中的方法和试验。 5）扩大临床知识 试验方法，研究管理/领导力，赠款发展和学术写作。她的赞助商是 建立的儿科研究员和职业导师，而她的共同赞助商和咨询委员会代表 临床和研究专业知识与研究人群和职业发展计划直接相关。这 研究计划首先着重定义活动，参与（ICF）和身体组成的关系 在一项针对CP儿童的描述性横断面研究中。各个级别的结果 ICF关系需要澄清，以使ICF成为临床研究的有用框架 实践。其次，ICF组件关系将在随机交叉临床中进行测试 对每日门诊/体育锻炼表现和社交的坚实踝脚矫形器（SAFO）的试验 参与具有新型卧床加速度计量指标的脑瘫儿童的参与。 没有公开的数据来定义SAFO对物理和门诊性绩效的影响以及 参与日常生活。这些信息将促进生命周期性生命的发展 CP的门诊人员的管理算法。 相关性（请参阅说明）： 我们将探索一个孩子的脑瘫儿童在物理上发挥作用之间的联系 测试他们在日常生活中“实际上”所做的事情。该项目还将测试脚踝是否 牙套可帮助患有脑瘫的孩子在想做时要做他们想做的事情。此信息 将用于为整个生命周期中患有大脑麻痹的人制定脚踝支撑指南。