Childhood Cancer Survivor Program to Empower Action in Care (CC-SPEAC)

儿童癌症幸存者计划，以加强护理行动 (CC-SPEAC)

基本信息

批准号：
8307222
负责人：
Lisa K Sharp
金额：
$ 14.04万
依托单位：
UNIVERSITY OF ILLINOIS AT CHICAGO
依托单位国家：
美国
项目类别：
财政年份：
2008
资助国家：
美国
起止时间：
2008-08-01 至 2014-07-31
项目状态：
已结题

来源：
https://reporter.nih.gov/project-details/8307222
关键词：
Address Adult Age Award Awareness Behavioral Research Cancer Patient Cancer Survivor Cancer Survivorship Caring Childhood Clinical Communication Communities Data Doctor of Philosophy Education Epidemiology Equation Excess Mortality Face Female Focus Groups Fright Funding Goals Grant Health Health Care Visit Health Personnel Hispanics Institute of Medicine (U.S.)Intervention Interview Investments Knowledge Late Effects Malignant Childhood Neoplasm Malignant Neoplasms Medical Medical History Medical Records Mentors Minority Morbidity - disease rate National Cancer Advisory Board Outcome Outcome Measure Participant Patient Education Patients Physicians Pilot Projects Population Preventive Price Provider Psychologist Qualitative Methods Quality of Care Randomized Relapse Reporting Research Research Methodology Research Personnel Risk Risk Reduction Sample Size Screening for cancer Second Primary Cancers Self Efficacy Side Solutions Survivors Testing Time Underrepresented Minority Work anticancer research base body system cancer prevention cancer type career childhood cancer survivor design efficacy trial empowered empowerment experience follow-up group intervention improved interdisciplinary collaboration literacy male patient oriented prevent programs skills survivorship therapy development

项目摘要

DESCRIPTION (provided by applicant): The Candidate, Lisa Sharp, Ph.D., is a clinical health psychologist with the career goal of conducting independent research by transitioning to patient-oriented cancer prevention and survivorship in minority and underserved groups. The proposed award will enable her to fill educational gaps in research methods/design, cancer prevention/control epidemiology, and intervention development. These skills will be developed through didactic course work, field experiences, interdisciplinary collaboration, and both formal and informal cross-disciplinary mentoring. The primary sponsor is Marian Fitzgibbon, Ph.D., a clinical psychologist who specializes in community-based, risk reduction interventions for minority populations. The co-sponsors are Kevin Oeffinger, MD, an expert in adult survivors of pediatric cancer, Tim Shanahan, PhD, an expert in literacy, and Nadine Peacock, Ph.D., an expert in qualitative methods. The proposed study includes three components: focus groups, intervention refinement, and a randomized controlled pilot study. Participants will be adult survivors of childhood cancer, males and females from three ethnic backgrounds (Black, Hispanic, and White). The pilot is designed to assess the acceptability/feasibility of a community-based intervention to engage childhood cancer survivors more actively in cancer follow-up care. Pilot data on outcome measures will provide data for accurate power analyses and sample size calculation to support a subsequent efficacy trial. Outcomes include: knowledge of late effects and follow-up care, fear of relapse, perceived efficacy to communicate with physician, access to childhood medical records, self-efficacy to obtain medical records, and the number of completed health care visits at a six month follow-up interview.

描述（由申请人提供）：候选人丽莎·夏普（Lisa Sharp）博士是一名临床健康心理学家，其职业目标是通过过渡到以患者为导向的癌症预防和少数群体和服务不足的群体进行独立研究。拟议的奖项将使她能够填补研究方法/设计，预防癌症/控制流行病学和干预开发方面的教育空白。这些技能将通过教学课程，实地经验，跨学科的合作以及正式和非正式的跨学科指导来发展。主要赞助商是玛丽安·菲茨吉本（Marian Fitzgibbon）博士，这是一名临床心理学家，他专门研究基于社区的，降低少数民族的风险干预措施。共同发起人是小儿癌症成人幸存者的专家凯文·奥辛格（Kevin Oeffinger），识字专家蒂姆·沙纳汉（Tim Shanahan）和定性方法专家纳丁·孔雀（Nadine Peacock）博士。拟议的研究包括三个组成部分：焦点组，干预细化和一项随机对照试验研究。参与者将是来自三种族裔背景（黑人，西班牙裔和白人）的儿童癌症，男性和女性的成年幸存者。该飞行员旨在评估基于社区的干预措施以更积极地参与癌症随访的儿童癌症幸存者的可接受性/可行性。有关结果指标的试点数据将提供数据，以进行准确的功率分析和样本量计算，以支持随后的功效试验。结果包括：有关晚期效果和后续护理的知识，对复发的恐惧，与医生沟通的感知功效，获得儿童病历，自我效能获得医疗记录以及在六个月的随访访谈中完成的医疗访问的数量。