Scientific Integrity in Community-Based Participatory Research

基于社区的参与性研究的科学诚信

• 批准号: 8325516
• 负责人: Thomas A. Arcury
• 金额: $ 18.5万
• 依托单位: WAKE FOREST UNIVERSITY HEALTH SCIENCES
• 依托单位国家: 美国
• 财政年份: 2011
• 资助国家: 美国
• 起止时间: 2011-09-01 至 2015-07-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/8325516
• 关键词: Address; Affect; Breeding; Case Study; Communities; Community Participation; Consensus; Data Analyses; Data Collection; Development; Discipline; Disease Outcome; Education; Ensure; Evaluation; Goals; Health Personnel; Individual; Institution; Intervention; Knowledge; Literature; Methods; Nurses; Participant; Physicians; Public Health; Reporting; Research; Research Personnel; Research Project Grants; Research Training; Resources; Sampling; Social Environment; Solutions; Source; Training; Translational Research; Treatment outcome; Validity and Reliability; community based participatory research; community organizations; community setting; expectation; experience; improved; interest; member; practice-based research network; programs; research study; responsible research conduct; skills; stem; success; tool

DESCRIPTION (provided by applicant): Community-based participatory research (CBPR) emphasizes the importance of community participation in all aspects of research, including the definition of research questions, data collection and analysis, and application of findings. CBPR also emphasizes the importance of education and rectification of knowledge imbalances between community partners, researchers, and participants. The CBPR framework has been credited with facilitating better scientific understanding of the social context in which disease and treatment outcomes occur and, thereby, more effective and culturally tailored solutions to problems associated with them. To date, much of the CBPR research and literature focuses on its merits, the difficulties community partners and researchers encounter in their efforts to cooperate, and methods to improve that cooperation and better ensure project success and dissemination of findings. Concern for assurance of CBPR research integrity is long standing and connected to the variety of norms and conventions associated with the diverse fields, disciplines, cultures, and communities involved. Original research that systematically examines potential threats to the scientific conduct of CBPR is lacking and this exploratory study will evaluate potential threats to CBPR integrity across a broad sample of CBPR projects involving coalitions of community members and organizations, healthcare providers (nurses, physicians, and others), Practice Based Research Networks (PBRNs), and traditional academic research institutions. The specific aims of this project are: (1) to delineate knowledge and understanding among community members and organizations, healthcare providers, members of PBRNs, and academic researchers about purposes, methods, and desired consequences that may affect the scientific integrity of CBPR projects; (2) to delineate structural factors that affect the scientific rigor of CBPR projects, including availability of financial resources, data collection and analysis tools, or imbalances in research training of CBPR team members; and (3) to determine educational content that will increase and maintain CBPR research integrity. The results of this R21 exploratory study will facilitate development of standard CBPR training modules to be utilized by community members and organizations, health care providers, and academic researchers engaged in CBPR projects. This project will address concerns about the scientific merits of CBPR by systematically investigating the factors that influence research integrity in CBPR and developing methods to address threats to research integrity. In accomplishing its aims, this project will identify methods by which standards of responsible conduct may be incorporated into CBPR to ensure research integrity. These methods will facilitate increased reliability and validity of CBPR findings, and, thereby, more meaningful and effective community-engaged, translational science.

描述（由申请人提供）：基于社区的参与性研究（CBPR）强调了社区参与研究各个方面的重要性，包括研究问题的定义，数据收集和分析以及发现的应用。 CBPR还强调了教育的重要性和社区伙伴，研究人员和参与者之间知识失衡的重要性。 CBPR框架已被认为是促进对疾病和治疗结果发生的社会背景的更好的科学理解，从而对与之相关的问题进行了更有效和更有量身定制的解决方案。迄今为止，大多数CBPR研究和文献都集中在其优点上，社区伙伴和研究人员在合作方面遇到的困难以及改善合作的方法，并更好地确保项目的成功和发现的结果。关注CBPR研究完整性的担忧很长，并且与与所涉领域，学科，文化和社区相关的各种规范和惯例有联系。缺乏系统地研究对CBPR科学行为的潜在威胁的原始研究，这项探索性研究将评估涉及社区成员和组织，医疗保健提供者（护士，医师等）联盟的广泛的CBPR完整性的潜在威胁CBPR完整性的威胁。该项目的具体目的是：（1）在社区成员和组织，医疗保健提供者，PBRN成员以及学术研究人员的目的，方法和期望的后果中描述知识和理解，这些后果可能影响CBPR项目的科学完整性； （2）描述影响CBPR项目科学严谨性的结构性因素，包括财务资源的可用性，数据收集和分析工具，或者在CBPR团队成员的研究培训中的失衡； （3）确定将增加和维持CBPR研究完整性的教育内容。这项R21探索性研究的结果将有助于开发标准的CBPR培训模块，该模块将被社区成员和组织，医疗保健提供者以及从事CBPR项目的学术研究人员使用。该项目将通过系统地研究影响CBPR研究完整性的因素并开发解决研究完整性威胁的方法，以解决对CBPR科学优点的担忧。在实现其目标时，该项目将确定可以将负责行为标准纳入CBPR的方法，以确保研究完整性。这些方法将促进CBPR调查结果的可靠性和有效性的提高，从而更有意义，有效地具有转化科学。

项目成果

Variation in the interpretation of scientific integrity in community-based participatory health research.

• DOI: 10.1016/j.socscimed.2013.08.023
• 发表时间: 2013-11
• 期刊: SOCIAL SCIENCE & MEDICINE
• 影响因子: 5.4
• 作者: Diaz, Anne E. Kraemer;Johnson, Chaya R. Spears;Arcury, Thomas A.
• 通讯作者: Arcury, Thomas A.

Perceptions that influence the maintenance of scientific integrity in community-based participatory research.

• DOI: 10.1177/1090198114560016
• 发表时间: 2015-06
• 期刊: Health education & behavior : the official publication of the Society for Public Health Education
• 作者: Kraemer Diaz AE;Spears Johnson CR;Arcury TA
• 通讯作者: Arcury TA

What Does It Mean for Something to Be "Scientific"? Community Understandings of Science, Educational Attainment, and Community Representation Among a Sample of 25 CBPR Projects.

“科学”意味着什么？

• DOI: 10.1177/1090198116651038
• 发表时间: 2017
• 期刊: Health education & behavior : the official publication of the Society for Public Health Education
• 作者: SpearsJohnson,ChayaR;KraemerDiaz,AnneE;Arcury,ThomasA
• 通讯作者: Arcury,ThomasA