Spiritual Needs of Bereaved Parents

失去亲人的父母的精神需求

• 批准号: 7462628
• 负责人: KATHLEEN L. MEERT
• 金额: $ 8.28万
• 依托单位: WAYNE STATE UNIVERSITY
• 依托单位国家: 美国
• 财政年份: 2008
• 资助国家: 美国
• 起止时间: 2008-06-25 至 2010-05-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/7462628
• 关键词: Acquired Immunodeficiency Syndrome; Address; Affect; Behavioral; Beneficence; Bereavement; Caring; Cessation of life; Child; Childhood; Collaborations; Depth; Development; Dimensions; Environment; Evaluation; Family; Focus Groups; Foundations; Functional disorder; Goals; Grief reaction; Health; Hospitals; Human; Intensive Care Units; Intervention; Interview; Investigation; Knowledge; Lead; Life; Malignant Neoplasms; Measures; Mental disorders; Multicenter Studies; Outcome; Palliative Care; Parents; Patients; Pediatric Intensive Care Units; Population; Psyche structure; Psychometrics; Qualitative Research; Questionnaires; Recording of previous events; Research; Research Personnel; Resource Sharing; Resources; Scientist; Spirituality; Substance abuse problem; Surveys; Time; Transcend; United States; Universities; Validation; Work; base; clinically relevant; coping; end of life; expectation; experience; innovation; instrument; member; prevent; sound; tool

DESCRIPTION: The death of a child presents major challenges to parents' spiritual wellbeing. Our long-term goal is to understand the spiritual needs of bereaved parents, the ways in which bereaved parents' spiritual needs change over time, and the manner and extent that spiritually based interventions affect parents' health during bereavement. The objective of this R03 application, which is the next step toward attainment of our long-term goal, is to develop a reliable and valid scale to assess the spiritual wellbeing of bereaved parents. A scale is needed to assess bereaved parents' spiritual wellbeing because such a scale would facilitate the development of new spiritually based interventions that would help to prevent the mental and physical ailments that often complicate grief. We plan to accomplish the objective of this application by pursuing two specific aims. Aim 1 will triangulate the themes of bereaved parents' spiritual needs identified in our preliminary studies. Focus groups will be conducted with parents who experienced the death of their child in a pediatric intensive care unit (PICU) and with hospital chaplains who routinely care for bereaved families. Focus group discussions will be digitally recorded, transcribed and inductively analyzed to identify and describe parents' spiritual needs. Findings will be compared to the spiritual needs identified in our prior in-depth interviews with bereaved parents. Aim 2 will develop and validate the Bereaved Parent Spirituality Questionnaire (BPSQ), a scale to measure bereaved parents' spiritual wellbeing. BPSQ items will be based on the spiritual themes triangulated in Aim 1. The Wayne State University Center to Advance Palliative Care Excellence, an interdisciplinary team of end-of-life experts, will assess the content validity of the BPSQ items. In a multicenter study, the BPSQ and other related, previously validated questionnaires will be administered to 250 parents whose child died in one of 5 PICUs. Psychometric analyses including assessment of dimensionality and differential item functioning will be performed on the BPSQ. Construct and convergent validity will be evaluated by investigating relationships between the BPSQ and other validated questionnaires. The research will provide greater understanding of bereaved parents' spiritual needs and produce a reliable, valid and clinically relevant spiritual wellbeing scale specific for bereaved parents. The research is innovative because it addresses an understudied population (i.e., bereaved parents) and focuses on an important and understudied aspect of adjustment to loss (i.e., spirituality). The research is significant because it will lay the foundation for subsequent definitive studies of parental bereavement. The research is expected to lead to an R01 application that will support studies examining the effect of new spiritually based interventions on bereaved parents' mental and physical health.

描述：孩子的死亡给父母的精神健康带来了重大挑战。我们的长期目标是了解丧亲父母的精神需求、丧亲父母的精神需求随时间变化的方式，以及基于精神的干预措施在丧亲期间影响父母健康的方式和程度。 R03 应用程序的目标是开发一个可靠且有效的量表来评估失去亲人的父母的精神健康，这是实现我们长期目标的下一步。需要一个量表来评估失去亲人的父母的精神健康状况，因为这样的量表将有助于开发新的基于精神的干预措施，从而有助于预防经常使悲伤复杂化的精神和身体疾病。我们计划通过追求两个具体目标来实现此应用程序的目标。目标 1 将三角测量我们初步研究中确定的失去亲人的父母的精神需求主题。焦点小组将由在儿科重症监护病房 (PICU) 经历过孩子死亡的父母以及经常照顾死者家属的医院牧师进行。焦点小组讨论将以数字方式记录、转录和归纳分析，以识别和描述父母的精神需求。调查结果将与我们之前对失去亲人的父母进行深入访谈时确定的精神需求进行比较。目标 2 将开发并验证丧亲父母精神问卷 (BPSQ)，这是一个衡量丧亲父母精神健康状况的量表。 BPSQ 项目将基于目标 1 中三角化的精神主题。韦恩州立大学推进姑息治疗卓越中心（一个由临终专家组成的跨学科团队）将评估 BPSQ 项目的内容有效性。在一项多中心研究中，将向 250 名孩子在 5 个 PICU 之一死亡的家长进行 BPSQ 和其他相关的、先前验证的问卷调查。将在 BPSQ 上进行心理测量分析，包括维度评估和差异项目功能。将通过调查 BPSQ 和其他经过验证的问卷之间的关系来评估结构效度和收敛效度。该研究将更好地了解丧亲父母的精神需求，并针对丧亲父母制定可靠、有效且具有临床相关性的精神健康量表。这项研究具有创新性，因为它针对的是未被充分研究的人群（即失去亲人的父母），并重点关注了适应损失的一个重要且未被充分研究的方面（即灵性）。这项研究意义重大，因为它将为后续对父母丧亲之痛的明确研究奠定基础。该研究预计将产生 R01 申请，该申请将支持研究新的精神干预措施对失去父母的身心健康的影响。