The Morality of Caregiving for Demented Older Women

照顾痴呆老年妇女的道德

• 批准号: 7282981
• 负责人: Helen Kathleen Black
• 金额: $ 6.77万
• 依托单位: THOMAS JEFFERSON UNIVERSITY
• 依托单位国家: 美国
• 财政年份: 2006
• 资助国家: 美国
• 起止时间: 2006-09-01 至 2008-05-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/7282981
• 关键词: Affect; African American; Aging; Alzheimer' s Disease; Anthropology; Applied Research; Attitude; Behavior; Behavioral; Belief; Belief System; Brain Pathology; Caregivers; Caring; Communities; Complex; Conflict (Psychology); Daily; Data; Daughter; Dementia; Depth; Dimensions; Discipline; Disease; Educational Status; Elderly; Ethnography; Family; Family history of; Family member; Health; Health Policy; Home environment; Individual; Internet; Intervention; Interview; Knowledge; Link; Liquid substance; Logic; Love; Medical; Methodology; Modeling; Morality; Morals; Mothers; Nature; Nursing Ethics; Ontology; Outcome; Parents; Pattern; Perception; Personal Satisfaction; Persons; Philosophy; Plant Roots; Process; Public Health; Recruitment Activity; Religion and Spirituality; Research; Respondent; Role; Shapes; Structure; Techniques; Thinking; Universities; Work; aged; base; caregiving; concept; experience; interest; older women; self esteem

DESCRIPTION (provided by applicant): Family members, particularly daughters, are the primary caregivers (CGs) of mothers with Alzheimer's disease and related disorders. The past two decades have produced much information about the outcomes of caregiving on CGs' health and well-being. What is missing is an understanding of the moral principles underlying CGs' role as caregiver. This 2-year project will examine the influence of a caregiving daughter's sense of morality, as it is based in her belief system and culture, on her role as CG. We are thus examining how the meaning of caregiving has been shaped by an individual, communal and cultural belief system. Caregiving is at the crux of important moral and cultural concepts such as right and wrong, self and other, the meaning of "love" or "duty," and aspects of self-esteem. This proposal uses new understandings of culture as dynamic and emergent in everyday interactions among individuals, in this case caregiving daughters and their demented mothers. An important value of emergent culture in regard to caregiving is folk morality, which refers to caregivers' propensity to act on principles that reference a personal belief system and guide behavior in caregiving. As a dynamic process folk morality reflects ethnic, family, religious, societal, and personal beliefs and values that act and interact to create meaning on the individual level. The construct of folk morality has been applied in other disciplines, but not as a principle for shaping research on caregiving and dementia. Through a qualitative methodology, 40 daughters of a demented mother (20 African-American and 20 white) will be ethnographically interviewed. Aims of this project are: 1) to investigate how CGs' senses of folk morality inform perception of the experience of dementia caregiving and, 2) to understand how a folk morality of caregiving shapes and is shaped by a) CGs appraisal of caregiving conflict and well-being and, 2) the deeper structure of culture. We are exploring caregiving as a 'meaning- making' process that is shaped by a complex web of factors, such as culture, beliefs systems, and folk, popular and medical attributions of dementia. Data from this research will increase knowledge of caregiving, dementia and public health care on many diverse levels. Data will aid public health understanding of the meaning of caregiving to CGs, the lifeworlds of at-home CGs, and potentially inform public health policy and intervention based on this knowledge.

描述（由申请人提供）：家庭成员，特别是女儿，是患有阿尔茨海默病和相关疾病的母亲的主要照顾者 (CG)。过去二十年已经产生了大量关于护理对 CG 健康和福祉的影响的信息。我们缺少的是对 CG 作为护理人员角色背后的道德原则的理解。这个为期两年的项目将研究照顾女儿的道德感（基于她的信仰体系和文化）对她作为 CG 角色的影响。因此，我们正在研究个人、社区和文化信仰体系如何塑造护理的意义。护理是重要道德和文化概念的核心，例如对与错、自我与他人、“爱”或“责任”的含义以及自尊的各个方面。该提案利用了对文化的新理解，认为文化是个体之间日常互动中动态和涌现的，在本例中是照顾女儿的女儿和她们精神错乱的母亲。新兴文化在护理方面的一个重要价值是民间道德，它是指护理人员按照个人信仰体系和指导护理行为的原则行事的倾向。作为一个动态过程，民间道德反映了种族、家庭、宗教、社会和个人信仰和价值观，这些信仰和价值观相互作用并在个人层面上创造意义。民间道德的建构已应用于其他学科，但并未作为形成护理和痴呆症研究的原则。通过定性方法，将对一位痴呆母亲的 40 名女儿（20 名非裔美国人和 20 名白人）进行人种学访谈。该项目的目的是：1) 调查 CG 的民间道德意识如何影响对痴呆症护理体验的认知，2) 了解护理的民间道德如何塑造以及 a) CG 对护理冲突的评估和福祉；2）更深层次的文化结构。我们正在探索将护理视为一个“意义创造”过程，该过程由一系列复杂的因素形成，例如文化、信仰体系以及痴呆症的民间、流行和医学归因。这项研究的数据将在许多不同层面上增加人们对护理、痴呆症和公共卫生保健的了解。数据将帮助公共卫生部门了解护理对 CG 的意义、家庭 CG 的生活世界，并可能为基于这些知识的公共卫生政策和干预措施提供信息。