Parkinson's Disease Data Organizing Center

帕金森病数据组织中心

• 批准号: 7498641
• 负责人: ROGER M KURLAN
• 金额: $ 6.5万
• 依托单位: UNIVERSITY OF ROCHESTER
• 依托单位国家: 美国
• 财政年份: 2004
• 资助国家: 美国
• 起止时间: 2004-09-30 至 2009-12-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/7498641
• 关键词: Cataloging; Catalogs; Clinical; Collection; Data; Databases; Development; Parkinson Disease; Patients; Research; Research Personnel; Resources; Site; Universities; research study; response

In response to RFA-NS-NS-05-001, we propose to establish a Parkinson's Disease Data Organizing Center (PD-DOC) at the University of Rochester. In keeping with the RFA, the PD-DOC will: 1) establish, maintain and disseminate a shared, central and standardized longitudinal database in support of the _rospective collection and analysis of clinical, neuropathological and biologic data from patients with PD and ;ontrols, 2) assess and move toward the potential integration of relevant pre-existing databases, 3) assist investigators planning to perform research studies using the shared database, 4) prepare and maintain an up-to-date catalog of research materials at participating sites that might be used for PD research and, 5) coordiante annual meetings of the PD-DOC Steering Committee. The University of Rochester has extensive expertise and resources which will facilitate the development of a highly successful PD-DOC. The PD-DOC will be a critical force in advancing collaborative research in PD.

为了响应 RFA-NS-NS-05-001，我们建议建立帕金森病数据组织 罗彻斯特大学中心 (PD-DOC)。根据 RFA，PD-DOC 将： 1) 建立， 维护和传播一个共享的、中央的和标准化的纵向数据库，以支持 _前瞻性收集和分析 PD 患者的临床、神经病理学和生物学数据 ；控制，2) 评估并推动相关现有数据库的潜在整合，3) 协助 计划使用共享数据库进行研究的研究人员，4) 准备和维护 参与地点可用于 PD 研究的最新研究材料目录，5) 协调 PD-DOC 指导委员会的年度会议。罗彻斯特大学拥有广泛的 专业知识和资源将有助于开发非常成功的 PD-DOC。 PD-DOC 将成为推进 PD 合作研究的关键力量。