Using Item Response Theory to Improve Children's Quality of Life Assessment

利用项目反应理论改善儿童的生活质量评估

基本信息

批准号：
7913077
负责人：
I-Chan Huang
金额：
$ 12.78万
依托单位：
UNIVERSITY OF FLORIDA
依托单位国家：
美国
项目类别：
财政年份：
2009
资助国家：
美国
起止时间：
2009-08-15 至 2012-07-31
项目状态：
已结题

来源：
https://reporter.nih.gov/project-details/7913077
关键词：
18 year old Address Age Area Asses Attitude Characteristics Child Child health care Childhood Chronic Clinic Clinical Communication Decision Making Development Devices Dimensions Disease Enrollment Ensure Environment Epidemiology Family Florida Future Generic Drugs Goals Health Health Policy High Prevalence Knowledge Laboratories Language Life Link Measurement Measures Medicaid Mental Health Mentored Patient-Oriented Research Career Development Award Mentors Methodology Methods Metric Outcome Parents Patient Self-Report Patients Perception Physical Function Physicians Policy Research Population Process Property Psychometrics Quality of life Quality-of-Life Assessment Questionnaires Race Reporting Research Research Personnel Research Training Resources Risk Role Sampling Simulate Socioeconomic Status Staging State Children&apos s Health Insurance Program Study Subject Subgroup Surveys Technology Testing Training Universities age group career clinical application clinical decision-making clinical practice computerized design functional status health related quality of life improved instrument interest mathematical model meter patient oriented research programs psychologic psychosocial public health relevance response shared decision making skills socioeconomics theories tool trait treatment planning

项目摘要

DESCRIPTION (provided by applicant): The goal of this Mentored Patient-Oriented Research Career Award (K23), in response to PA 05-143, is to allow Dr. l-Chan Huang from the U. of Florida to become an independent researcher in the area of children's health-related quality of life (HRQOL) assessment, which measures physical and psychosocial functioning, and its clinical application. This training plan, through a combination of coursework, mentored research training and direct observation in pediatric clinics, provides Dr. Huang with the opportunity to enhance his 1) skills in item response theory (IRT) and computerized adaptive test (CAT) for HRQOL measurement; 2) understanding of parent-child-physician interactions and barriers to using HRQOL measures in pediatric clinics; and, 3) knowledge of child health and development associated with HRQOL measurement. The resources at the University of Florida Department of Epidemiology and Health Policy Research and close contact with mentors will provide Dr. Huang with the ideal environment to achieve his goals. Parents report that HRQOL is one of their most important considerations in discussing treatment options with their children's physicians and in their decision making process. However, current conventional measurement methods require customized instruments for each illness (or the use of generic instruments that do not address disease-specific issues) and developmental stage and require administering the entire item set to each child. The use of IRT, combined with CAT technology, help adapt and tailor items to measure children's HRQOL more efficiently and precisely, and allows for comparison of children's HRQOL across developmental and illness trajectories. In this K23 award, Dr. Huang will use IRT and simulated CAT technology to develop children's HRQOL measures, focusing on creating HRQOL item pools and short-forms of the instruments that can be used in clinical settings. He will also explore the parents', children's and physicians' attitudes and barriers to using HRQOL in clinical settings. Study subjects will consist of parents of children 5 through 18 years old (N=2,000), children 8 through 18 years old (N=800) who are enrolled in the Florida KidCare Program (FKP) and a pediatric sample 8 through 18 years old (N=240) from three pediatric clinics. PUBLIC HEALTH RELEVANCE: IRT/CAT holds the promise of developing feasible, precise and affordable HRQOL tools for children. This K23 project will help Dr. Huang develop advanced children's HRQOL tools that can be used to measure children's health and functional status and to facilitate treatment planning and shared decision-making between parents, children and physicians

描述（由申请人提供）：为了响应PA 05-143的指导，这项导致患者的研究职业奖（K23）的目的是允许佛罗里达州的L-Chan Huang博士成为儿童健康相关生活质量（HRQOL）评估领域的独立研究人员（HRQOL）评估，以衡量身体和心理社会的临床功能及其临床功能。该培训计划通过课程工作的结合，在儿科诊所进行了研究培训和直接观察，为Huang博士提供了增强其项目响应理论（IRT）技能（IRT）和计算机化自适应测试（CAT）的机会，以进行HRQOL测量； 2）了解父母与孩子的相互作用以及在儿科诊所使用HRQOL措施的障碍； 3）了解与HRQOL测量相关的儿童健康和发展知识。佛罗里达大学流行病学与健康政策研究系的资源以及与导师的密切联系将为黄博士提供实现其目标的理想环境。父母报告说，HRQOL是他们与孩子的医生讨论治疗选择和决策过程中最重要的考虑因素之一。但是，当前的常规测量方法需要每种疾病的定制仪器（或使用不解决疾病特定问题的通用仪器）和发育阶段，并且需要对每个孩子进行整个项目。 IRT的使用与CAT技术相结合，有助于调整和量身定制物品，以更有效，更精确地测量儿童的HRQOL，并可以在发育和疾病轨迹中比较儿童的HRQOL。在这个K23奖中，黄博士将使用IRT和模拟CAT技术来开发儿童HRQOL措施，重点是创建可用于临床环境中的HRQOL项目池和短形式的仪器。他还将探索父母，儿童和医生在临床环境中使用HRQOL的态度和障碍。研究对象将由5至18岁儿童的父母（n = 2,000），8至18岁的儿童（n = 800）组成，他们参加了佛罗里达小子计划（FKP）和来自三个儿科诊所的8至18岁（n = 240）的儿科样本。公共卫生相关性：IRT/CAT持希望为儿童开发可行，精确和负担得起的HRQOL工具。这个K23项目将帮助Huang博士开发高级儿童HRQOL工具，可用于衡量儿童的健康和功能状况，并促进父母，孩子和医生之间的治疗计划和共同决策