Psychosocial Adjustment in Adolescents with Spina Bifida

脊柱裂青少年的心理社会调整

基本信息

批准号：
7280292
负责人：
Grayson Neil Holmbeck
金额：
$ 34.64万
依托单位：
LOYOLA UNIVERSITY OF CHICAGO
依托单位国家：
美国
项目类别：
财政年份：
2005
资助国家：
美国
起止时间：
2005-09-15 至 2010-07-31
项目状态：
已结题

来源：
https://reporter.nih.gov/project-details/7280292
关键词：
13 year old 15 year old Accounting Adherence Adolescent Adopted Aggressive behavior Attention Biological Biological Factors Child Code Congenital Abnormality Data Data Reporting Development Emotions Exhibits Family Family Relationship Friends Funding Health Professional Health Status Hispanics Home visitation House Call Hydrocephalus Interview Investigation Language Latino Longitudinal Studies Medical Meningomyelocele Mental Depression Methods Modeling Neuropsychological Tests Outcome Parents Participant Performance Population Prevalence Prevention intervention Psychological Models Psychological adjustment Purpose Quality of life Questionnaires Recruitment Activity Relative (related person)Research Sampling Schools Severities Social Adjustment Social Behavior Social Problems Source Spinal Dysraphism Staging Students Symptoms Testing Time Training Videotape disability executive function experience functional status neuropsychological peer programs psychologic psychosocial skills social teacher

项目摘要

DESCRIPTION (provided by applicant): The purpose of this longitudinal study is to evaluate a developmentally-oriented bio-neuropsychosocial model of psychological adjustment in young adolescents with spina bifida (10-13 years old at Time 1 and 12-15 years old at Time 2). Extensive multi-source and multi-method data will be collected across several predictor variable domains: (1) biological, (2) neuropsychological, and (3) social. A multidimensional perspective on adolescent adjustment will also be adopted, with a rigorous focus on the adolescents' social adjustment. The proposed study will be the first to collect observed peer, interaction data (target child with close friend) in adolescents with spina bifida. The degree to which neuropsychological limitations experienced by children with spina bifida contribute to their social difficulties and other psychological problems will also be examined. Participants will include a sample of 140 children and young adolescents with spina bifida (with meningomyelocele and shunted hydrocephalus) along with their parents, a close friend, teachers, and health professionals. Spanish-speaking Hispanic/Latino families will also be recruited. Questionnaire, interview, neuropsychological testing, and observational methods will be employed during two home visits at Time 1 and two home visits at Time 2. In addition to evaluating the utility of the bioneuropsychosocial model, several mediational and moderational models will also be tested within the context of the more general model. Such models will facilitate identification of underlying mechanisms for associations between variables (i.e., mediational models) and will attempt to isolate variables within one domain that compensate for deficits in another domain (i.e., moderational models). Findings of this study will provide information on the differential relevance of family relationships, peer relationships, neuropsychological factors, and biological factors for adjustment in adolescents with spina bifida. Moreover, the results will have implications for prevention and intervention efforts with families who have offspring with disabling birth defects.

描述（由申请人提供）：这项纵向研究的目的是评估患有脊柱裂的青少年（时间 1 为 10-13 岁，时间为 12-15 岁）心理调整的面向发展的生物神经心理社会模型。 2）。将跨多个预测变量领域收集广泛的多源和多方法数据：（1）生物学，（2）神经心理学，以及（3）社会。还将采用多维视角来看待青少年适应，重点关注青少年的社会适应。拟议的研究将是第一个收集脊柱裂青少年观察到的同伴互动数据（目标儿童与亲密朋友）的研究。还将检查脊柱裂儿童所经历的神经心理限制在多大程度上导致他们的社交困难和其他心理问题。参与者将包括 140 名患有脊柱裂（患有脑膜脊髓膨出和分流性脑积水）的儿童和青少年，以及他们的父母、亲密朋友、老师和卫生专业人员。讲西班牙语的西班牙裔/拉丁裔家庭也将被招募。在时间 1 的两次家访和时间 2 的两次家访期间将采用问卷、访谈、神经心理学测试和观察方法。除了评估生物神经心理社会模型的实用性外，还将在时间 2 中测试一些中介和调节模型。更一般模型的上下文。此类模型将有助于识别变量之间关联的潜在机制（即中介模型），并尝试隔离一个领域内的变量以补偿另一领域的缺陷（即调节模型）。这项研究的结果将提供有关家庭关系、同伴关系、神经心理学因素和生物因素的差异相关性的信息，以调整患有脊柱裂的青少年。此外，研究结果将对后代患有致残性出生缺陷的家庭的预防和干预工作产生影响。