Death in the PICU/NICU: Parent and Family Functioning

PICU/NICU 中的死亡：父母和家庭的运作

基本信息

批准号：
7283678
负责人：
JoAnne M Youngblut
金额：
$ 42.18万
依托单位：
FLORIDA INTERNATIONAL UNIVERSITY
依托单位国家：
美国
项目类别：
财政年份：
2006
资助国家：
美国
起止时间：
2006-09-05 至 2011-06-30
项目状态：
已结题

来源：
https://reporter.nih.gov/project-details/7283678
关键词：
18 year old Acculturation Affect Age Analysis of Variance Anger Area Autopsy Birth Brain Death Cessation of life Characteristics Child Child Abuse Childhood Data Disease regression Dreams Early Intervention Emotions Ethnic Origin Ethnic group Event Exclusion Criteria Family Fathers Feeling Friends Future Grief reaction Growth Guilt Health Health Professional Hispanics Home environment Hospitals Hour Individual Infant Injury Intensive Care Units Interview Latino Life Linear Models Longitudinal Studies Medical Mental Depression Mental Health Methods Modeling Mothers Nature Neonatal Neuro-Oncological Ventral Antigen 2 Not Hispanic or Latino Numbers Organ Outcome Parents Patients Pediatric Hospitals Population Post-Traumatic Stress Disorders Purpose Race Rate Reaction Recovery Recruitment Activity Reporting Research Research Personnel Resources Risk Sampling Social support Theoretical model Thinking Time Voice Withdrawal Withdrawing Treatments base experience inclusion criteria neonate parental influence prevent psychologic racial and ethnic response therapy development

项目摘要

DESCRIPTION (provided by applicant): Whether sudden or anticipated, whether parents participate in the decision to withhold or withdraw treatment, death of an infant/child is a traumatic event for parents. All hopes and dreams for the child's future are gone forever. Parents may feel that a part of them has died. Most of the more than 23,000 infant and child deaths in US hospitals in 2000 occurred in a neonatal (NICU) or pediatric (PICU) intensive care unit. The purpose of this study is to describe the experience of parents whose infant/child died in the NICU/PICU and the impact of the death on parent grief, mental health, personal growth, and family functioning during the first year after the death. Families whose infant/child dies in the NICU (n=75) or PICU (n=75) and who understand spoken English or Spanish will be recruited. Other inclusion criteria for families from the NICU are: singleton birth, neonate lived for >4 hours. Other inclusion criteria for families from the PICU are: patient in the PICU for >4 hours, deceased child 18 years old or younger. Exclusion criteria are: injury suspected to be due to child abuse, parent(s) hospitalized concurrently or death of a parent in the illness/injury event. Quantitative data will be collected in the family's home at 1, 3, 6, and 13 months after the death and through review of the infant's/ child's hospital chart. Quantitative data will include age of the infant/child at death, mode of death, parent anticipation of the death, race/ethnicity & acculturation, partner status, presence of surviving children, parent religiosity, social support, parent grief response, parent mental health (depression and post-traumatic stress disorder), parent personal growth, and family functioning (mother-father couple relationship, parent-surviving children] relationship, functioning of the family unit). Qualitative interviews will be conducted at 7 and 13 months after the infant's/child's death with a subset of 30-40 parents chosen to represent a broad picture of the families in the study. ANOVA, multiple regression, and hierarchical linear modeling will be used to explore the effects of characteristics surrounding the infant's/child's death, parent/family factors and social support on parent and family outcomes at each time point and over time. Content analysis of the qualitative data will be used to corroborate and expand the study's conceptual framework. Research in this area is crucial so that health care professionals can identify parents and families at risk for poor outcomes and target them for early intervention to prevent or minimize undesirable effects.

描述（由申请人提供）：无论是突然的还是预期的，父母是参与扣留或撤回治疗的决定，婴儿/孩子的死亡是父母的创伤事件。对孩子的未来的所有希望和梦想都永远消失了。父母可能会觉得其中一部分已经死亡。 2000年，美国医院的23,000多名婴儿和儿童死亡中的大多数发生在新生儿（NICU）或儿科（PICU）重症监护室。这项研究的目的是描述婴儿/孩子在NICU/PICU中死亡的父母的经历，以及死亡死后第一年的父母悲伤，心理健康，个人成长和家庭工作的影响。婴儿/孩子在NICU（n = 75）或PICU（n = 75）且了解英语或西班牙语的家庭将被招募。 NICU家庭的其他纳入标准是：辛格尔顿出生，新生儿居住了4个小时。来自PICU家庭的其他纳入标准是：PICU耐心4个小时，死者18岁或以下。排除标准是：怀疑伤害由于虐待儿童，父母同时住院或在疾病/伤害事件中父母死亡。定量数据将在死亡后的1、3、6和13个月内通过审查婴儿/儿童医院图表收集。定量数据将包括婴儿/孩子死亡时的年龄，死亡方式，父母对死亡，种族/民族和适应的预期，伴侣身份，伴侣的身份，幸存的孩子的存在，父母的宗教信仰，社会支持，父母的心理健康，父母的心理健康（抑郁和创伤后压力障碍），父母个人成长，个人成长，个人成长以及家庭夫妇的夫妻关系（父母夫妇关系，父母恋爱关系），家庭关系，家庭关系，工作）定性访谈将在婴儿/孩子去世后的第7和13个月进行，其中30-40个父母被选为研究中的家庭。方差分析，多重回归和分层线性建模将用于探索围绕婴儿/孩子的死亡，父母/家庭因素和社会支持对每个时间点和随时间的父母和家庭成果的特征的影响。定性数据的内容分析将用于证实和扩展研究的概念框架。在这一领域的研究至关重要，因此医疗保健专业人员可以识别出遇到不良结果的父母和家庭，并针对早期干预以预防或最大程度地减少不良影响。