NEUROBIOLOGY OF DISEASE IN CHILDREN CONFERENCES

儿童疾病神经生物学会议

• 批准号: 6870274
• 负责人: BERNARD L MARIA
• 金额: $ 4.3万
• 依托单位: MEDICAL UNIVERSITY OF SOUTH CAROLINA
• 依托单位国家: 美国
• 财政年份: 2001
• 资助国家: 美国
• 起止时间: 2001-04-15 至 2006-03-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/6870274
• 关键词: developmental neurobiology; information dissemination; interdisciplinary collaboration; meeting /conference /symposium; neurology; pediatrics

This grant application describes for symposia titled "Neurobiology of Disease in Children", to be held in conjunction with the 2001 to 2005 annual Child Neurology Society (CNS) meetings. Each of the conditions selected as symposia topics- leukodystrophy, tuberous sclerosis complex, neurofibromatosis, Rett syndrome, and Tourette syndrome- are significant to the child neurology community. The symposia directors are Dr. Hugo Moser (leukodystrophy) Dr. Steven Roach (tuberous sclerosis complex), Dr. Bruce Korf (neurofibromatosis), Dr. Alan Percy (Rett syndrome), and Dr. Harvey Singer (Tourette syndrome). CNS members will constitute the largest segment of the projected 100 to 150 attendees. The symposia will bring together clinicians, scientists, caregivers, and National Institutes of Health (NIH) program officers to determine how research findings can be translated to enhance clinical understanding and affect clinical practice. Moreover, symposia attendees will identify the clinical and basic research needed to advance diagnostic accuracy and develop safe and effective therapies for these disorders. In 1998, the NIH funded a symposium on Joubert syndrome held as a satellite meeting of the annual CNS conference that will serve as a model for the proposed scientific sessions. The overall aims are (1) to review scientific advances and determine their relevance to current and future clinical practice in child neurology; (2) to coordinate efforts among various clinical and basic science disciplines lay organizations, and NIH to review current research initiatives and define future directions; and (3) to disseminate symposia proceedings to ensure that clinical and basic science disciplines are informed about scientific advances, current research initiatives, and future directions. We believe the "Neurobiology of Disease in Children" symposia will contribute to advancing the field of child neurology by facilitating the exchange of information and coordination of research efforts across disciplines and organizations. The project will help further develop a symposium model that may be applied to a broader range of conditions that affect the child's nervous system.

该拨款申请描述了题为“儿童疾病神经生物学”的研讨会，该研讨会将与 2001 年至 2005 年年度儿童神经病学学会 (CNS) 会议同时举行。 被选为研讨会主题的每种疾病——脑白质营养不良、结节性硬化症、神经纤维瘤病、雷特综合征和图雷特综合征——对儿童神经病学界都很重要。 研讨会主任包括 Hugo Moser 博士（脑白质营养不良）、Steven Roach 博士（结节性硬化症）、Bruce Korf 博士（神经纤维瘤病）、Alan Percy 博士（Rett 综合征）和 Harvey Singer 博士（抽动秽语综合征）。 CNS 成员将构成预计 100 至 150 名与会者中的最大部分。 该研讨会将汇集临床医生、科学家、护理人员和美国国立卫生研究院 (NIH) 项目官员，以确定如何转化研究成果以增强临床理解并影响临床实践。此外，研讨会与会者将确定提高诊断准确性和开发这些疾病的安全有效疗法所需的临床和基础研究。 1998 年，美国国立卫生研究院 (NIH) 资助了一次关于朱伯特综合征的研讨会，该研讨会作为中枢神经系统年度会议的卫星会议举行，该会议将作为拟议的科学会议的典范。 总体目标是（1）回顾科学进展并确定其与儿童神经病学当前和未来临床实践的相关性； (2) 协调各个临床和基础科学学科非专业组织和 NIH 之间的努力，审查当前的研究计划并确定未来的方向； (3) 传播研讨会记录，以确保临床和基础科学学科了解科学进展、当前的研究举措和未来的方向。 我们相信，“儿童疾病神经生物学”研讨会将通过促进跨学科和组织的信息交流和研究工作的协调，为推动儿童神经病学领域的发展作出贡献。 该项目将有助于进一步开发一个研讨会模型，该模型可应用于更广泛的影响儿童神经系统的疾病。