Health and Literacy in Child and Adult Assessment(RMI)

儿童和成人健康与素养评估（RMI）

基本信息

批准号：
7285201
负责人：
DARREN A DEWALT
金额：
$ 136.01万
依托单位：
UNIV OF NORTH CAROLINA CHAPEL HILL
依托单位国家：
美国
项目类别：
财政年份：
2004
资助国家：
美国
起止时间：
2004-09-28 至 2009-07-31
项目状态：
已结题

来源：
https://reporter.nih.gov/project-details/7285201
关键词：
Activities of Daily Living Address Adherence Adult Age Age-Years Asthma Budgets Child Child health care Childhood Chronic Chronic Disease Clinic Clinical Clinical Research Cognitive Collaborations Comprehension Computers Condition Data Data Collection Development Disease Disease Outcome Doctor of Philosophy Emotional Ensure Ethnic Origin Evaluation Focus Groups Gender Generic Drugs Health Health Personnel Husband Individual Instruction Interview Laboratories Language Language Tests Leadership Low Literacy Population Measurement Measures Methodology Nature North Carolina Numbers Outcome Assessment Outcome Measure Parents Patients Population Principal Investigator Procedures Process Property Published Comment Quality of life Questionnaires Race Range Reading Reporting Research Research Personnel Sampling Schools Score Site Specific qualifier value Surveys Testing Texas Time Universities Wife base health literacy human subject improved instrument laptop literacy research study response skills social tool validation studies

项目摘要

DESCRIPTION (provided by applicant): "Health and Literacy in Child and Adult Assessment," a proposal to become a PROMIS Primary Research Site by The University of North Carolina at Chapel Hill and its partners, addresses 3 important problems in using computer adaptive testing (CAT) to measure patient-reported chronic diseases outcomes (PROs) in clinical research: (1) PRO assessment in children 8-17 years of age (Independent Project), (2) Development and testing items in low literacy populations in English and Spanish, and (3) Rigorous assessment of variables (e.g., many aspects of functional capacity or adherence to treatment) most appropriately conceptualized as dyadic (e.g., wife-husband, parent-child) rather than individual. Our Independent Project will (1) use IRT to evaluate item parameters for the PedsQLTM4.0 in 8,000 children in 4 core domains (physical, emotional, social, school/cognitive) and an asthma-specific domain, taking this widely used instrument as a starting point for a pediatric item bank, (2) develop new items and collect data in 1,060 children in North Carolina and Texas, using IRT to estimate item parameters, (3) develop and pilot test a CAT tool and use it to survey 375 children in NC and Texas. Our long-term objective is to develop CAT to assess PROs in clinical research across a wide range of chronic childhood diseases. However, this initial data collection will be in children with asthma and in healthy children. Our Network Project on literacy proposes developing a methodology for creating and testing PRO items in English and Spanish that function consistently across languages and literacy levels. We will provide leadership for (1) assessing patient literacy, (2) testing item comprehension in low literacy populations, (3) devising a strategy to develop new items that can be understood by people with low literacy, (4) testing all items in diverse samples of English- or Spanish-speaking people to evaluate differential item functioning by language or literacy in our large ethnically diverse patient population representing all literacy levels. Our Network Project on dyadic assessment proposes (1) specifying health variables that are largely interpersonal, (2) identifying existing measures of these and assessing their validity, (3) modifying measures that fail to assess interpersonal processes in a way that captures their interpersonal nature, (4) assisting the Network in collecting data on the modified measures and assessing their validity.

DESCRIPTION (provided by applicant): "Health and Literacy in Child and Adult Assessment," a proposal to become a PROMIS Primary Research Site by The University of North Carolina at Chapel Hill and its partners, addresses 3 important problems in using computer adaptive testing (CAT) to measure patient-reported chronic diseases outcomes (PROs) in clinical research: (1) PRO assessment in children 8-17 years of age (Independent Project), (2) Development and testing items in low英语和西班牙语的素养人群，以及（3）对变量的严格评估（例如，功能能力或遵守治疗的许多方面）最适当地概念化为二元（例如妻子 - 丈夫，亲子，父母）而不是个人。我们的独立项目（1）将使用IRT评估PEDSQLTM4.0在4个核心领域中的8,000名儿童中的项目参数（身体，情感，社交，学校/认知）和一个特定于哮喘的特定领域，以这种广泛使用的乐器为起点，作为儿童库的起点（3）开发和试点测试一种猫工具，并使用它来调查北卡罗来纳州和德克萨斯州的375名儿童。我们的长期目标是开发CAT，以评估各种慢性儿童疾病的临床研究专业人士。但是，此最初的数据收集将是患有哮喘和健康儿童的儿童。我们关于扫盲的网络项目提出了一种用英语和西班牙语创建和测试Pro项目的方法，该方法跨语言和识字级别始终如一地发挥作用。我们将为（1）评估患者识字，（2）在识字率低的人群中测试项目理解，（3）制定一种策略来开发一种可以被低识字率的人理解的新项目，（4）测试英语或西班牙语或西班牙语的各种样本中的所有项目，以评估我们在我们较大的民族范围内用语言或素养来评估各种文学级别的不同语言或素养。我们对二元评估的网络项目提出（1）指定在很大程度上是人际交往的健康变量，（2）确定现有的衡量标准并评估其有效性，（3）修改未能以人际关系性质评估人际过程的措施，以捕获人际关系的性质，（4）协助网络收集对经过修改的量化和评估其量化的量化，并评估了他们的量化数据。