Stress Management Program for Rural Family Caregivers

农村家庭照顾者压力管理计划

• 批准号: 6934203
• 负责人: KYLE E FERGUSON
• 金额: $ 12.62万
• 依托单位: PSYCHOLOGICAL HEALTH ASSOCIATES, INC.
• 依托单位国家: 美国
• 财政年份: 2005
• 资助国家: 美国
• 起止时间: 2005-09-01 至 2006-08-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/6934203
• 关键词: Alzheimer' s disease; Internet; behavioral /social science research tag; caregivers; clinical research; coping; focus groups; human subject; human therapy evaluation; longitudinal human study; patient oriented research; physiologic stressor; psychological stressor; rural health; social support network; stress management; therapy design /development

DESCRIPTION (provided by applicant): Web-based interventions hold much promise in delivering social-behavioral interventions to individuals who otherwise have difficulty accessing additional services due to challenges such as geographic isolation, functional limitations, and transportation problems. The present study seeks to develop and prospectively evaluate a web-based, interactive, computer-tailored program, which provides extensive personalized and normative feedback, designed to reduce distress and improve caregiving skills in rural family caregivers of persons with Alzheimer's disease or related dementias. To this end, this research aims to provide rural communities with a feasible, economical, consumer-driven, skills-based approach to teaching effective distress management and caregiving skills to caregivers. The project will be conducted in three phases. The first phase will establish content and construct validity through the use of expert consultation and focus groups. Focus groups will consist of family caregivers who live in rural Nevada. Based on caregiver recommendations, the empirical literature, and our experience after providing hundreds of hours of service and live workshops for family caregivers, during the second phase, a web-based intervention will be generated. Participants will be instructed via the web how to understand and manage common challenging behaviors (e.g., screaming, wandering, aggression); how to recognize physical, emotional, and behavioral signs of stress or burnout in themselves when situation demands exceed caregivers' ability to effectively cope; how to employ evidence-based coping techniques designed to improve caregiver health and wellbeing; how to access social support; how to cope with caregiver guilt, anger, and frustration. The final product (Phase II) will consist of a website that provides training using evidence-based interventions, online subscriber payment system, automatic e-mail prompts (to facilitate compliance), and several social support media (chat rooms and email digest).

描述（由申请人提供）： 基于Web的干预措施在为诸如地理隔离，功能局限性和运输问题等挑战时否则难以获得其他服务的个人提供社交行为干预方面有很大的希望。本研究旨在开发和前瞻性评估一个基于网络的，互动，计算机标准的计划，该程序提供了广泛的个性化和规范性的反馈，旨在减少困扰并提高患有阿尔茨海默氏病或​​相关痴呆症患者的农村家庭护理人员的照顾能力。为此，这项研究旨在为农村社区提供可行，经济，以消费者为基础的，基于技能的方法，以教授有效的遇险管理和护理技能。该项目将分为三个阶段。第一阶段将通过使用专家咨询和焦点小组来建立内容并构建有效性。焦点小组将包括住在内华达州农村地区的家庭护理人员。根据护理人员的建议，经验文献以及我们在为家庭护理人员提供数百个小时的服务和现场讲习班后的经验，将在第二阶段中产生基于网络的干预措施。参与者将通过网络指导如何理解和管理共同的挑战行为（例如，尖叫，流浪，侵略）；当情况需求超过护理人员有效应对的能力时，如何识别压力或倦怠的身体，情感和行为迹象；如何采用旨在改善护理人员健康和福祉的循证应对技术；如何获得社会支持；如何应对护理人员的内gui，愤怒和沮丧。最终产品（第二阶段）将由一个网站组成，该网站使用基于证据的干预措施，在线订户支付系统，自动电子邮件提示（以促进合规性）和几个社交支持媒体（聊天室和电子邮件摘要）提供培训。