Patterns of Service Use and Costs Associated with Autism

与自闭症相关的服务使用模式和成本

• 批准号: 7149771
• 负责人: DOUGLAS L. LESLIE
• 金额: $ 29.34万
• 依托单位: YALE UNIVERSITY
• 依托单位国家: 美国
• 财政年份: 2006
• 资助国家: 美国
• 起止时间: 2006-08-01 至 2009-05-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/7149771
• 关键词: Medicare /Medicaid; age difference; autism; behavioral /social science research tag; clinical research; comorbidity; health care cost /financing; health care service utilization; health economics; health insurance; health services research tag; human data; information systems; mental health epidemiology; patient oriented research; preschool child (1-5); socioeconomics; time resolved data

DESCRIPTION (provided by applicant): Costs associated with the treatment of autism and other autism-spectrum disorders (ASDs) are largely unknown, but are likely considerable. Although previous studies of the costs associated with ASDs suffer from a number of limitations, including small sample sizes, limited scope of cost analyses, and data sources that are not current, these studies suggest that costs associated with ASDs could be as high as $1.8 million per year, and that the lifetime costs associated with an individual with autism could be $4.3 million. With prevalence rates currently at 10 cases per 10,000 and increasing overtime, autism is becoming more of a burden on health care and educational systems in the United States. In an effort to better understand the costs associated with ASDs, and characteristics of patients that might affect these costs, the study proposed here will compute cost estimates for traditional health care services (inpatient, outpatient and pharmacy care) for individuals with ASDs. Data on health care service use and costs will come from two general sources: a national health insurance claims database reflecting the health care experiences of over 2.5 million privately insured individuals in the United States, and administrative data from the Medicaid programs of 10 states across the United States. Together, these databases will allow for a comprehensive analysis of health care service use and costs for patients treated in either the public or private sector, and represent a unique opportunity to learn more about the characteristics of patients with ASDs, the kinds of services these patients receive, and the costs of treating this vulnerable population. The aims of this project are: 1) to identify the treated prevalence of ASDs, as well as sociodemographic and clinical characteristics of individuals with ASDs; 2) to identify services used by patients with ASDs and track changes in these services over time and across age groups; and 3) to identify the costs associated with the care of patients with ASDs. The results of the study will be useful for anticipating and responding to the needs of individuals with ASDs, coordinating care across service sectors for patients with ASDs, allocating funds for the research and treatment of these disorders, and designing public and private insurance programs to provide adequate coverage for these patients and reduce the catastrophic financial burden on the families of individuals with ASDs.

描述（由申请人提供）：与治疗自闭症和其他自闭症谱系障碍 (ASD) 相关的费用很大程度上未知，但可能相当大。尽管之前对自闭症谱系障碍相关成本的研究存在许多局限性，包括样本量小、成本分析范围有限以及数据来源不是最新的，但这些研究表明，与自闭症谱系障碍相关的成本可能高达 180 万美元每年，与自闭症患者相关的终生费用可能为 430 万美元。目前，自闭症的患病率为每 10,000 人中有 10 例，并且随着时间的推移，患病率不断增加，自闭症正日益成为美国医疗保健和教育系统的负担。为了更好地了解与自闭症谱系障碍相关的成本以及可能影响这些成本的患者特征，本文提出的研究将计算自闭症谱系障碍患者的传统医疗保健服务（住院、门诊和药房护理）的成本估算。有关医疗保健服务使用和成本的数据将来自两个一般来源：反映美国超过 250 万私人保险个人医疗保健经历的国家健康保险索赔数据库，以及来自全美 10 个州医疗补助计划的管理数据。美国。总之，这些数据库将允许对在公共或私营部门接受治疗的患者的医疗保健服务使用和费用进行全面分析，并提供了一个独特的机会来更多地了解自闭症谱系障碍患者的特征以及这些患者接受的服务类型接受，以及治疗这一弱势群体的费用。该项目的目的是： 1) 确定 ASD 的治疗患病率，以及 ASD 患者的社会人口学和临床特征； 2) 识别 ASD 患者使用的服务，并跟踪这些服务随时间和年龄组的变化； 3) 确定与 ASD 患者护理相关的费用。该研究的结果将有助于预测和响应自闭症谱系障碍患者的需求，协调跨服务部门对自闭症谱系障碍患者的护理，为这些疾病的研究和治疗分配资金，以及设计公共和私人保险计划，以提供为这些患者提供足够的保险，并减少自闭症谱系障碍患者家庭的灾难性经济负担。