Patterns of Service Use and Costs Associated with Autism

与自闭症相关的服务使用模式和成本

• 批准号: 7149771
• 负责人: DOUGLAS L. LESLIE
• 金额: $ 29.34万
• 依托单位: YALE UNIVERSITY
• 依托单位国家: 美国
• 财政年份: 2006
• 资助国家: 美国
• 起止时间: 2006-08-01 至 2009-05-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/7149771
• 关键词: Medicare /Medicaid; age difference; autism; behavioral /social science research tag; clinical research; comorbidity; health care cost /financing; health care service utilization; health economics; health insurance; health services research tag; human data; information systems; mental health epidemiology; patient oriented research; preschool child (1-5); socioeconomics; time resolved data

DESCRIPTION (provided by applicant): Costs associated with the treatment of autism and other autism-spectrum disorders (ASDs) are largely unknown, but are likely considerable. Although previous studies of the costs associated with ASDs suffer from a number of limitations, including small sample sizes, limited scope of cost analyses, and data sources that are not current, these studies suggest that costs associated with ASDs could be as high as $1.8 million per year, and that the lifetime costs associated with an individual with autism could be $4.3 million. With prevalence rates currently at 10 cases per 10,000 and increasing overtime, autism is becoming more of a burden on health care and educational systems in the United States. In an effort to better understand the costs associated with ASDs, and characteristics of patients that might affect these costs, the study proposed here will compute cost estimates for traditional health care services (inpatient, outpatient and pharmacy care) for individuals with ASDs. Data on health care service use and costs will come from two general sources: a national health insurance claims database reflecting the health care experiences of over 2.5 million privately insured individuals in the United States, and administrative data from the Medicaid programs of 10 states across the United States. Together, these databases will allow for a comprehensive analysis of health care service use and costs for patients treated in either the public or private sector, and represent a unique opportunity to learn more about the characteristics of patients with ASDs, the kinds of services these patients receive, and the costs of treating this vulnerable population. The aims of this project are: 1) to identify the treated prevalence of ASDs, as well as sociodemographic and clinical characteristics of individuals with ASDs; 2) to identify services used by patients with ASDs and track changes in these services over time and across age groups; and 3) to identify the costs associated with the care of patients with ASDs. The results of the study will be useful for anticipating and responding to the needs of individuals with ASDs, coordinating care across service sectors for patients with ASDs, allocating funds for the research and treatment of these disorders, and designing public and private insurance programs to provide adequate coverage for these patients and reduce the catastrophic financial burden on the families of individuals with ASDs.

描述（由申请人提供）：与自闭症和其他自闭症谱系障碍（ASD）治疗相关的成本在很大程度上是未知的，但可能是相当大的。尽管先前对与ASD相关的成本的研究遭受了许多局限性，包括小样本量，成本分析的范围有限以及不是当前的数据源，但这些研究表明，与ASD相关的成本可能高达每年180万美元，并且与自闭症患者相关的终身成本可能为430万美元。由于目前为每10,000例10案的患病率，并且加班的增加，自闭症正越来越多，在美国的医疗保健和教育系统上越来越负担。为了更好地了解与ASD相关的成本以及可能影响这些成本的患者的特征，此处提出的研究将对患有ASD的人计算传统医疗服务（住院，门诊和药房）的成本估算。医疗服务使用和成本的数据将来自两个通用来源：国家健康保险索赔数据库，该数据库反映了美国超过250万私人保险人的医疗保健经验，以及来自美国10个州的医疗补助计划的行政数据。这些数据库一起将允许对公共或私营部门治疗的患者进行全面分析医疗服务的使用和成本，并代表着一个独特的机会，可以更多地了解ASDS患者的特征，这些患者所接受的服务的类型以及治疗这种脆弱人群的成本。该项目的目的是：1）确定ASD的治疗率，以及ASDS个体的社会人口统计学和临床​​特征； 2）确定随时间和跨年龄段的ASD患者使用的服务并跟踪这些服务的变化； 3）确定与ASD患者护理相关的成本。该研究的结果将有助于预测和响应ASD的个人的需求，为ASD的患者进行服务部门的协调，为这些疾病的研究和治疗分配资金，并设计公共和私人保险计划，以为这些患者提供足够的保险并减少ASD患者家庭的灾难性财务负担。