Advancing the System of Care for Autistic Older Adults

推进自闭症老年人的护理系统

基本信息

  • 批准号:
    10698146
  • 负责人:
  • 金额:
    $ 36.8万
  • 依托单位:
  • 依托单位国家:
    美国
  • 项目类别:
  • 财政年份:
    2022
  • 资助国家:
    美国
  • 起止时间:
    2022-09-06 至 2027-08-31
  • 项目状态:
    未结题

项目摘要

PROJECT ABSTRACT The proposed study requests funding to conduct the most comprehensive examination to date of autistic adults (aged 40+) as they age, with the goal of gaining a comprehensive national picture of health and mental health outcomes and service needs. We will use analyses of national Medicaid and Medicare data complemented by surveys and interviews of middle aged and older autistic adults and their caregivers. The majority of research on autism spectrum disorder (ASD) has been focused on youth, but dramatic increases in the prevalence of ASD over the past three decades, the lifelong presentation of ASD, high costs of care in later segments of the lifespan, and the fact that little is known about the estimated 3.5 million autistic adults in the US who are over the age of 40, highlight the urgency of identifying the care needs of aging adults in order to improve health and mental health outcomes, costs of care, and quality of life for individuals and their families. This need for information and clinical guidance is underscored by emerging evidence of the early onset of neurological conditions such as Alzheimer’s Disease and related dementias and Parkinson’s Disease in autistic adults. As the largest healthcare insurers in the US, Medicaid and Medicare are critical sources of care for autistic adults as they age, and claims data provide a vital window for observing the prevalence and emergence of conditions, including specific neurological conditions associated with aging, and studying potentially adverse effects on health and mental health outcomes and service use. By comparing autistic adults to those without autism, we can gain further insight into comparative needs and resources. Medicaid and Medicare data are also optimal sources for studying inequities among economically disadvantaged individuals and diverse racial/ethnic groups who disproportionately experience poorer health and mental health care and subsequent suboptimal outcomes. We will link national Medicaid and Medicare data from 2014-2023, the latest years available, data about mortality, and data about communities for autistic individuals ages 40 through the end of life, and a comparison group of adults without autism. A Community Advisory Board of autistic adults will be engaged to inform a survey of a national sample of 700 autistic adults (or their caregivers), as well as interviews with a subset of survey participants, to yield contextual, real-world information about differences in health and mental health services access and utilization at individual, family, and community levels. Pairing findings from claims data with insights from the lived experiences of aging autistic adults will allow us to drive patient-centered improvements in service delivery to move toward meeting the needs of autistic adults as they age into a period of increased risk for health and mental health diagnoses. This research will generate findings that are poised to identify and inform modifiable components of service delivery through these national insurers, with potential for broad impact on the health of the autistic community.
项目摘要 拟议的研究要求资金进行真实的最全面检查 成年人(40岁以上)随着年龄的增长,目的是获得全面的健康和精神状态 健康成果和服务需求。我们将使用国家医疗补助和医疗保险数据的分析 由中年和年长的成年人及其护理人员的调查和访谈完成。 自闭症谱系障碍(ASD)的大多数研究都集中在青年上,但急剧增加 在过去的三十年中,ASD的患病率是ASD的终生表现,以后的高昂护理费用 寿命的细分市场,以及关于估计350万加速成年人的事实 40岁以上的美国,强调了确定成年人老龄化的护理需求的紧迫性 改善个人及其家人的健康和心理健康成果,护理成本以及生活质量。 这种对信息和临床指导的需求由新兴的证据表明 神经疾病,例如阿尔茨海默氏病和相关痴呆症和帕金森氏病 自闭症成年人。作为美国最大的医疗保健,医疗补助和医疗保险是关键的护理来源 对于随着年龄的增长而加速的成年人,索赔数据为观察患病率和 条件的出现,包括与衰老相关的特定神经系统状况和研究 对健康和心理健康成果和服务使用的潜在不利影响。通过比较加速的成年人 对于那些没有自闭症的人,我们可以进一步了解比较需求和资源。医疗补助和 Medicare数据也是研究经济不利个人的不平等的最佳来源 和潜水员的种族/族裔群体,他们的健康和心理保健不成比例,并且 限制结果。我们将在2014 - 2023年将国家医疗补助和医疗保险数据链接,最新的 可用的年份,有关死亡率的数据以及有关40岁以下加速个体的社区数据 生命的终结和一个没有自闭症的成年人的比较组。加速成年人社区顾问委员会 将订婚以告知对700名加速成年人(或其护理人员)的全国样本的调查,以及 与一部分调查参与者的访谈,以获取有关差异的上下文,现实世界中的信息 个人,家庭和社区层面的卫生和心理健康服务访问和利用。配对 来自索赔数据的调查结果以及来自老化加速成年人的实时经验的见解将使我们能够开车 以患者为中心的服务提供改善,以满足加速成年人的需求 年龄增加了健康和心理健康诊断风险的时期。这项研究将产生发现 被毒死以识别和告知可修改的服务交付的组成部分 确保对加速社区的健康产生广泛影响。

项目成果

期刊论文数量(0)
专著数量(0)
科研奖励数量(0)
会议论文数量(0)
专利数量(0)

暂无数据

数据更新时间:2024-06-01

Lindsay Lawer Shea的其他基金

Data Core
数据核心
  • 批准号:
    10698132
    10698132
  • 财政年份:
    2022
  • 资助金额:
    $ 36.8万
    $ 36.8万
  • 项目类别:
Advancing the System of Care for Autistic Older Adults
推进自闭症老年人的护理系统
  • 批准号:
    10523865
    10523865
  • 财政年份:
    2022
  • 资助金额:
    $ 36.8万
    $ 36.8万
  • 项目类别:
Data Core
数据核心
  • 批准号:
    10523862
    10523862
  • 财政年份:
    2022
  • 资助金额:
    $ 36.8万
    $ 36.8万
  • 项目类别:
Alternative Approaches to Supporting ASD Services for Young Adults
支持年轻人 ASD 服务的替代方法
  • 批准号:
    9769882
    9769882
  • 财政年份:
    2018
  • 资助金额:
    $ 36.8万
    $ 36.8万
  • 项目类别:
Alternative Approaches to Supporting ASD Services for Young Adults
支持年轻人 ASD 服务的替代方法
  • 批准号:
    10225311
    10225311
  • 财政年份:
    2018
  • 资助金额:
    $ 36.8万
    $ 36.8万
  • 项目类别:

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