Parkinson's Disease Data Organizing Center

帕金森病数据组织中心

• 批准号: 6953804
• 负责人: ROGER M KURLAN
• 金额: $ 122.05万
• 依托单位: UNIVERSITY OF ROCHESTER
• 依托单位国家: 美国
• 财政年份: 2004
• 资助国家: 美国
• 起止时间: 2004-09-30 至 2009-12-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/6953804
• 关键词: Parkinson' s disease; clinical research; cooperative study; data collection; genetics; human data; information systems; longitudinal human study; neuropathology

DESCRIPTION (provided by applicant): In response to RFA-NS-NS-05-001, we propose to establish a Parkinson's Disease Data Organizing Center (PD-DOC) at the University of Rochester. In keeping with the RFA, the PD-DOC will: 1) establish, maintain and disseminate a shared, central and standardized longitudinal database in support of the prospective collection and analysis of clinical, neuropathological and biologic data from patients with PD and controls, 2) assess and move toward the potential integration of relevant pre-existing databases, 3) assist investigators planning to perform research studies using the shared database, 4) prepare and maintain an up-to-date catalog of research materials at participating sites that might be used for PD research and, 5) coordinate annual meetings of the PD-DOC Steering Committee. The University of Rochester has extensive expertise and resources which will facilitate the development of a highly successful PD-DOC. The PD-DOC will be a critical force in advancing collaborative research in PD.

描述（由申请人提供）：根据RFA-NS-NS-05-001，我们建议在罗切斯特大学建立一个帕金森氏病数据组织中心（PD-DOC）。与RFA保持一致，PD-DOC将：1）建立，维护和传播共同的，中心和标准化的纵向数据库，以支持PD和对照患者的临床，神经病理和生物学数据的前瞻性收集和分析，2）评估和进一步研究辅助研究人员的潜在研究，以进行研究和研究辅助研究，以进行研究，以便进行研究，以便进行研究，3）辅助研究，3）3）可能用于PD研究的参与地点的研究材料的最新目录以及5）协调PD-DOC指导委员会的年度会议。罗切斯特大学拥有广泛的专业知识和资源，这将有助于开发非常成功的PD-DOC。 PD-DOC将是推进PD合作研究的关键力量。