CORE-- CAREGIVING

核心——护理

• 批准号: 6611075
• 负责人: Kathleen Anne Smyth
• 金额: $ 20.26万
• 依托单位: CASE WESTERN RESERVE UNIVERSITY
• 依托单位国家: 美国
• 财政年份: 2002
• 资助国家: 美国
• 起止时间: 2002-07-15 至 2003-05-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/6611075
• 关键词: Alzheimer's disease; behavioral /social science research tag; biomedical facility; caregivers; clinical research; data collection methodology /evaluation; dyadic interaction; human subject; information systems; questionnaires; training

The Caregiving Core (CGC) is designed to: 1) continue development and maintenance of a registry of family caregivers of persons with Alzheimer's disease and related dementias (ADRD) and a comparison group of persons who are not ADRD caregivers; 2) characterize CGC Registry members across time and across major phases of the caregiving trajectory (i.e., in the community, after long-term care placement, and after bereavement); 3) support development of interdisciplinary caregiving research locally, regionally and across Alzheimer's Disease Centers and 4) facilitate the evaluation of computer-mediated communication technologies as education and support interventions for caregivers. The CGC is organized into three functional units to achieve these aims: 1) Recruitment and Retention, which develops and monitors the CGC sample to ensure enrollment of adequate numbers of subjects in targeted subgroups; 2) Sample Characterization and Measurement, which initiates and manages annual assessments of subjects, edits and Caregiving Research Development and Facilitation, which conducts specific activities involving local, regional development of innovative multi-disciplinary research projects for external funding. The CGC is based on the premise that facilitating and enhancing the quality of research on caregivers and caregiving contributes significantly to the effectiveness of research on ADRD, particularly as it relates to health care delivery and policy. The data collected are provided to the Data Management and Analysis Core for computerization and construction of merged data sets of CGC and Clinical Core data for use by investigators. The CGC collaborates on recruitment with the Clinical Core, the Minority Recruitment Satellite, and the Education and Information Transfer Core to maximize participation of caregivers and persons with ADRD in ADRC-supported projects.

护理核心 (CGC) 旨在： 1) 继续开发和维护阿尔茨海默病及相关痴呆症 (ADRD) 患者家庭护理人员登记册以及非 ADRD 护理人员的对照组； 2) 描述 CGC 登记册成员在不同时间和护理轨迹主要阶段（即在社区、长期护理安置后和丧亲之后）的特征； 3) 支持本地、区域和阿尔茨海默病中心跨学科护理研究的发展，4) 促进对计算机介导的通信技术作为护理人员教育和支持干预措施的评估。 CGC 分为三个职能单位来实现这些目标： 1) 招募和保留，开发和监控 CGC 样本，以确保在目标亚组中招募足够数量的受试者； 2) 样本表征和测量，发起和管理主题的年度评估、编辑和护理研究开发和促进，开展涉及外部资助的创新多学科研究项目的地方、区域开发的具体活动。 CGC 的前提是，促进和提高护理人员和护理研究的质量对 ADRD 研究的有效性做出了重大贡献，特别是因为它与医疗保健提供和政策有关。收集的数据提供给数据管理和分析核心，以进行计算机化并构建 CGC 和临床核心数据的合并数据集，供研究人员使用。 CGC 与临床核心、少数族裔招募卫星以及教育和信息传输核心合作进行招募，以最大限度地让护理人员和 ADRD 患者参与 ADRC 支持的项目。